EIN 58-1654301

Rheumatology Research Foundation

IRS 501(c) type
501(c)(3)
Num. employees
0
State
Year formed
1985
Most recent tax filings
2022-06-01
Description
The mission of the Rheumatology Research Foundation is to advance Research and training to improve the health of people with rheumatic diseases. Support Research & training that advances the prevention, treatment and cure of rheumatic diseases.
Total revenues
$7,906,919
2022
Total expenses
$16,411,503
2022
Total assets
$70,647,398
2022
Num. employees
0
2022

Program areas at Rheumatology Research Foundation

Foundation programs support Research investigating the broad spectrum of rheumatic diseases, including: juvenile idiopathic arthritis, osteoarthritis, pediatric systemic lupus erythematosus, rheumatoid arthritis, scleroderma, spondyloarthropathies, systemic lupus erythematosus, and vasculitis.please see schedule o for a continuation of program services.the Rheumatology Research Foundation maintains an extensive awards and grants portfolio, with over 25 support mechanisms for rheumatologists and Rheumatology health professionals in the us. Each grant application contains very specific eligibility and review criteria (details regarding these requirements are available at www.rheumresearch.org). All applications undergo rigorous peer review in their assigned study section, and are scored and ranked according to the review criteria and overall merit of the proposal. All study section recommendations are sent to the Foundation's scientific advisory council for qualification before being presented (blinded) to the Foundation board of directors for final approval. After the awards are made, all recipients are required to complete funding contracts with institutional sign-off, and must also submit annual reports on their progress, including financial reconciliation and assurance of compliance with Foundation policies (available on the website). All reports are reviewed by the Foundation's scientific advisory council to ensure compliance with programmatic, scientific, and fiscal and administrative polices and requirements. If a recipient is found to be in compliance and making reasonable progress (i.e., meeting project benchmarks), the next year of funding is approved for disbursement. If not, the award may be terminated. Such programmatic oversight allows for excellent stewardship of Foundation funds. In addition to regular oversight as described above, portfolio reviews are conducted every five years to ensure that funding mechanisms are effectively meeting the Foundation's goals outlined in the strategic plan. In addition, the Rheumatology Research Foundation abides by the following conflict of interest guidelines: guidelines for awarding of Foundation awards and grants i. The college will not permit any external entities to select (or influence the selection of) recipients of Foundation awards or grants.ii. The college will appoint independent committees to select recipients of Foundation awards or grants based on peer review of grant applications.iii. The college will not require recipients of Foundation awards or grants to meet with external entities.iv. The college will not permit any external entity that supports Foundation awards or grants to require intellectual property rights or royalties arising out of the grant-funded research.v.the college will not permit any external entity that supports Foundation awards or grants to control or influence manuscripts that arise from the grant-funded Research. The Foundation provides funding to help recruit medical students and residents into the subspecialty, and supports investigators and practitioners working in the field of Rheumatology. Grants are awarded for different training opportunities, from medical students to established investigators, building a more capable, robust team of Rheumatology professionals around the nation. In the last five years, researchers receiving Foundation funding have published 375 papers, received $7.9m in related nih funding and given 116 scientific presentations on their projects worldwide.the Foundation is a 501(c)(3) charitable organization dedicated to advancing treatment for people living with rheumatic disease, and is the largest private funding source of Rheumatology Research and training in the united states. The organization has received a 4-star rating, the highest offered by charity navigator, for fourteen consecutive years based on good governance, sound fiscal management, and commitment to accountability and transparency. The organization has committed over $205m directly to Research and training since it was founded in 1985 by the granting of 4,110 individual awards.

Grants made by Rheumatology Research Foundation

GranteeGrant descriptionAmount
American College of RheumatologyFellows Fund$350,000
Yale UniversityInnovative Research Award- Tranaslational$200,000
University of Pennsylvania (Penn)Innovative Research Award- Tranaslational$200,000
...and 112 more grants made totalling $9,370,846

Who funds Rheumatology Research Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
American College of RheumatologyTo Support Research and Training of Rheumatic Diseases$7,500,000
ImpactAssetsGeneral Support$100,000
Norman B Gaylis Family FoundationUnrestricted Support$75,000
...and 14 more grants received

Personnel at Rheumatology Research Foundation

NameTitleCompensation
Colleen MerkelVice President , Operations and Finance$0
Lisa StueckemannVice President Development$0
Eryn MarchioloInterim Executive Director / Senior Director - Research and Training$0
Rachel MyslinskiExecutive Director / Board Member
Rhonda ArmstrongSenior Director - Finance$0
...and 13 more key personnel

Financials for Rheumatology Research Foundation

RevenuesFYE 06/2022
Total grants, contributions, etc.$6,103,597
Program services$0
Investment income and dividends$816,681
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$986,641
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$7,906,919

Form 990s for Rheumatology Research Foundation

Fiscal year endingDate received by IRSFormPDF link
2020-062021-05-05990View PDF
2019-062020-08-14990View PDF
2018-062019-06-19990View PDF
2017-062018-09-12990View PDF
2016-062017-09-06990View PDF
...and 6 more Form 990s
Data update history
May 15, 2023
Updated personnel
Identified 6 new personnel
May 6, 2023
Received grants
Identified 1 new grant, including a grant for $75,000 from Norman B Gaylis Family Foundation
August 3, 2022
Received grants
Identified 2 new grant, including a grant for $25,000 from Coalition of State Rheumatology Organizations
November 24, 2021
Updated personnel
Identified 9 new personnel
October 2, 2021
Received grants
Identified 1 new grant, including a grant for $75,000 from Norman B Gaylis Family Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
HealthMedical disciplines
Characteristics
Provides grantsConducts researchEndowed supportTax deductible donationsNo full-time employees
General information
Address
2200 Lake Blvd Ne
Atlanta, GA 30319
Metro area
Atlanta-Sandy Springs-Alpharetta, GA
County
DeKalb County, GA
Website URL
rheumresearch.org/ 
Phone
(404) 633-3777
IRS details
EIN
58-1654301
Fiscal year end
June
Taxreturn type
Form 990
Year formed
1985
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H90: Medical Specialty Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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