Program areas at CPF
The Foundation provides financial support to rigorously reviewed, scientifically important research relevant to Cerebral Palsy and other developmental disabilities. The Foundation also provides medical expertise as requested by other organizations and serves as a resource for the international public, clinicians and policy-makers about best health care practices, prevention and curative strategies for Cerebral Palsy. The Foundation is also focusing its attention on research directed at issues of early diagnosis, mechanisms of nervous system injury and repair, regenerative treatments, neurological rehabilitation, orthopedic rehabilitation and engineering solutions as well as research to prevent the secondary neuromuscular, musculoskeletal and cardiovascular complications seen in adults with Cerebral Palsy. There are approximately 1 million children and adults in the usa with Cerebral Palsy and related developmental disabilities, more clinical and basic biomedical research is urgently needed for improving neurological functions, preventing medical complications, and optimizing quality of life in these individuals from infancy through adulthood.
Who funds Cerebral Palsy Foundation (CPF)
Grants from foundations and other nonprofits
Personnel at CPF
Name | Title | Compensation | Date of data |
---|
Rebecca Lam | Vice President of Programs and Operations | $112,449 | 2022-09-30 |
Deborah Fink | Vice President of Education and Inclusion | $107,354 | 2022-09-30 |
Rachel Jordan | Executive Director | $210,250 | 2023-07-24 |
Richard Ellenson | Former Chief Executive Officer / Chief Executive Officer and President | $314,500 | 2021-09-30 |
Patrick Downes | Treasurer | $0 | 2022-09-30 |
...and 7 more key personnel |
Financials for CPF
Revenues | FYE 09/2022 | FYE 09/2021 | % Change |
---|
Total grants, contributions, etc. | $1,916,963 | $1,867,379 | 2.7% |
Program services | $230,538 | $146,196 | 57.7% |
Investment income and dividends | $5,085 | $2,010 | 153% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $0 | $0 | - |
Net income from fundraising events | $-832 | $-900 | 7.6% |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $0 | $0 | - |
Total revenues | $2,151,754 | $2,014,685 | 6.8% |
Organizations like CPF
Organization | Type | Location | Revenue |
---|
Huntington's Disease Society of America (HDSA) | 501(c)(3) | New York, NY | $10,709,965 |
Osteogenesis Imperfecta Foundation | 501(c)(3) | Gaithersburg, MD | $2,214,512 |
International FOP Association | 501(c)(3) | North Kansas City, MO | $3,050,181 |
National Down Syndrome Society (NDSS) | 501(c)(3) | Washington, DC | $3,354,289 |
Emilys Entourage | 501(c)(3) | Ardmore, PA | $1,789,652 |
Association for Frontotemporal Degeneration (AFTD) | 501(c)(3) | King of Prussia, PA | $8,537,416 |
Williams Syndrome Association | 501(c)(3) | Newark, NJ | $2,421,502 |
Kids Center for Pediatric Therapies | 501(c)(3) | Louisville, KY | $4,230,655 |
Save One Life | 501(c)(3) | Danvers, MA | $1,076,794 |
New England Hemophilia Association | 501(c)(3) | Dedham, MA | $1,196,989 |
Data update history
December 25, 2023
Received grants
Identified 2 new grant, including a grant for $225,000 from Dechomai Foundation August 25, 2023
Posted financials
Added Form 990 for fiscal year 2022
August 23, 2023
Updated personnel
Identified 2 new personnel
August 21, 2023
Received grants
Identified 8 new grant, including a grant for $200,000 from Hearst Foundations August 1, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsOperates internationallyNational levelEndowed supportGala fundraisersTax deductible donations
General information
- Address
- 3 Columbus Cir Floor Suite 15th
- New York, NY 10019
- Metro area
- New York-Newark-Jersey City, NY-NJ-PA
- County
- New York County, NY
- Website URL
- yourcpf.org/Â
- Phone
- (212) 520-1686
- Facebook page
- cerebralpalsyfoundationÂ
- Twitter profile
- @yourcpfÂ
IRS details
- EIN
- 13-6093337
- Fiscal year end
- September
- Taxreturn type
- Form 990
- Year formed
- 1955
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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