Program areas at Children's Tumor Foundation
Research - the Children's Tumor Foundation supports nf research through a range of funding mechanisms. Our investments in research are three-fold: 1) to attract talented investigators to nf research; 2) to support innovative research; and 3) to foster collaborative efforts to find treatments and cures for neurofibromatosis. The Foundation has been at the forefront of key advances in nf research including funding the laboratories that discovered the nf1 and nf2 genes, supporting groundbreaking clinical trials, and establishing the first nationwide nf clinic network and nf patient registry. The Foundation sponsors an annual scientific conference which brings researchers together to discuss the latest scientific developments related to nf. Additonally, our porgrams are designed to integrate with and support larger federally funded projects through the congressionally directed medical research program (cdmrp) and nih.
Public education and patient support - the Children's Tumor Foundation engages in public education through its website, quarterly newsletters, media coverage, and its national programs. Through our nf endurance and nf walk programs, the Foundation highlights nf heroes and their triumphant spirits. The Foundation also sponsors benefit dinners and regional and local events to promote awareness. The Children's Tumor Foundation is dedicated to supporting patients with nf as well as their family members. Through the nf clinic network and the annual nf forum, the Foundation brings researchers, providers, and families together to discuss developments in treatments. The Foundation also sponsors the annual nf camp which brings nf teens together for one week to enjoy the support and fellowship of their peers. Regional symposia are also held throughout the year.
Grants made by Children's Tumor Foundation
Who funds Children's Tumor Foundation
Grants from foundations and other nonprofits
Personnel at Children's Tumor Foundation
Name | Title | Compensation | Date of data |
---|
Simon Vukelj | Chief Marketing Officer Nyc / Chief Marketing Officer / Vice President of Marketing and Communications / Vice President , Marketing and Communications / Vice President of Communications | $231,365 | 2022-12-31 |
Michele Przypyszny | Chief Advancement Officer Nyc | $266,623 | 2022-12-31 |
Salvatore la Rosa | Chief Scientific Officer | $240,109 | 2022-12-31 |
Monica Sohn | Chief Growth Officer | | 2024-04-15 |
Sarah Bourne | Senior Vice President , Finance and Operations / Vice President , Finance and Operations / Director of Finance | $175,606 | 2022-12-31 |
...and 36 more key personnel |
Financials for Children's Tumor Foundation
Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
---|
Total grants, contributions, etc. | $15,521,908 | $15,156,568 | 2.4% |
Program services | $1,169,034 | $1,463,602 | -20.1% |
Investment income and dividends | $292,495 | $89,863 | 225.5% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $-11,902 | $6,161 | -293.2% |
Net income from fundraising events | $-64,494 | $-12,723 | -406.9% |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $31,944 | $53,264 | -40% |
Miscellaneous revenues | $51,340 | $22,843 | 124.8% |
Total revenues | $16,990,325 | $16,779,578 | 1.3% |
Organizations like Children's Tumor Foundation
Organization | Type | Location | Revenue |
---|
Lymphoma Research Foundation (LRF) | 501(c)(3) | New York, NY | $14,709,927 |
Melanoma Research Foundation (MRF) | 501(c)(3) | Washington, DC | $6,578,223 |
CureSearch for Children's Cancer | 501(c)(3) | Bethesda, MD | $4,389,970 |
Israel Cancer Research Fund | 501(c)(3) | New York, NY | $5,734,601 |
Lupus Research Alliance (ALR) | 501(c)(3) | New York, NY | $22,699,491 |
Tourette Association of America | 501(c)(3) | Bayside, NY | $4,883,886 |
Autism Speaks | 501(c)(3) | Washington, DC | $36,262,685 |
National Foundation for Cancer Research (NFCR) | 501(c)(3) | Rockville, MD | $8,408,059 |
American Institute for Cancer Research | 501(c)(3) | Arlington, VA | $14,473,654 |
Ovarian Cancer Research Alliance | 501(c)(3) | New York, NY | $16,425,940 |
Data update history
May 18, 2024
Received grants
Identified 4 new grant, including a grant for $823,000 from Jewish Communal Fund April 15, 2024
Updated personnel
Identified 3 new personnel
February 3, 2024
Received grants
Identified 43 new grant, including a grant for $1,500,000 from NF Forward December 23, 2023
Posted financials
Added Form 990 for fiscal year 2022
December 23, 2023
Updated personnel
Identified 4 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingFundraising eventsOperates internationallyNational levelReceives government fundingEndowed supportCommunity engagement / volunteeringGala fundraisersTax deductible donations
General information
- Address
- 697 3rd Ave 418
- New York, NY 10017
- Metro area
- New York-Newark-Jersey City, NY-NJ-PA
- County
- New York County, NY
- Website URL
- ctf.org/Â
- Phone
- (212) 344-6633
- Facebook page
- childrenstumorÂ
- Twitter profile
- @childrenstumorÂ
IRS details
- EIN
- 13-2298956
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1978
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- H30: Cancer Research
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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