Program areas at Project Lyme
Research: Project Lyme invests money into research via grants to our partner, bay area Lyme foundation. The main focus of our research investments are diagnostics and therapeutics, given the unreliability of current Lyme testing as well as the lack of effective treatment for chronic cases. The $400k in grant expenditures went directly to this research. The additional expenditures are broken up between staff and contractor salary that help to execute all other general programming.
Education & awareness: Project Lyme spends money on education and awareness through developing and distributing informational content for printed brochures, social media, newsletters, website, television, and streaming services. Total expenditures include staff salary, contractor payments, membership dues, and advertising fees that are associated with the creation and distribution of content mentioned above. Grant expenditures included sponsoring of a documentary showing in nyc and of a national scientific conference.
Grants made by Project Lyme
Who funds Project Lyme
Grants from foundations and other nonprofits
Personnel at Project Lyme
| Name | Title | Compensation | Date of data |
|---|
| Nan Kurzman | Board Chair | $0 | 2023-05-30 |
| Noah Johnston | Executive Director | $106,459 | 2022-12-31 |
| Jennifer Hoffmann | Programming Director | | 2022-05-07 |
| David Roth | Executive Committee Chair | $0 | 2022-12-31 |
| Mark Weber | Treasurer | $0 | 2022-12-31 |
| ...and 3 more key personnel |
Financials for Project Lyme
| Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
|---|
| Total grants, contributions, etc. | $929,174 | $481,572 | 92.9% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $0 | $0 | - |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $-138,518 | $93,169 | -248.7% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $326 | $363 | -10.2% |
| Total revenues | $790,982 | $575,104 | 37.5% |
Organizations like Project Lyme
| Organization | Type | Location | Revenue |
|---|
| Global Lyme Alliance | 501(c)(3) | Stamford, CT | $2,854,709 |
| National Pku Alliance | 501(c)(3) | New York, NY | $1,305,823 |
| The Calliope Joy Foundation | 501(c)(3) | Bala Cynwyd, PA | $447,670 |
| The Parkinson Council | 501(c)(3) | Philadelphia, PA | $614,637 |
| Gene Spotlight | 501(c)(3) | Miami Beach, FL | $475,304 |
| The Amyloidosis Foundation | 501(c)(3) | Clarkston, MI | $710,435 |
| The NVLD Project | 501(c)(3) | New York, NY | $347,838 |
| Cloves Syndrome Community | 501(c)(3) | West Kennebunk, ME | $310,706 |
| Diabetes Empowerment International Foundation | 501(c)(3) | New York, NY | $290,305 |
| National MPS Society | 501(c)(3) | Durham, NC | $1,837,186 |
Data update history
September 24, 2023
Received grants
Identified 1 new grant, including a grant for $2,500 from Taub Family Foundation August 1, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsGala fundraisersTax deductible donations
General information
- Address
- 229 E 85th St Suite 38
- New York, NY 10028
- Metro area
- New York-Newark-Jersey City, NY-NJ-PA
- County
- New York County, NY
- Website URL
- projectlyme.org/Â
- Phone
- (207) 370-9313
IRS details
- EIN
- 81-1138289
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2015
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G80: Specifically Named Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
Free account sign-up
Want updates when Project Lyme has new information, or want to find more organizations like Project Lyme?
Create free Cause IQ account