EIN 81-4429034

Additional Ventures Foundation

IRS 501(c) type
501(c)(3)
Num. employees
6
Year formed
2018
Most recent tax filings
2022-12-01
NTEE code, primary
Description
The Additional Ventures Foundation is a private foundation located in Palo Alto, CA that primarily funds support research on single ventricle heart defects and related conditions, as well as the molecular and genetic basis of single ventricle disease. Last year, they made 11 grants, with Emory University being one of their grantees.
Also known as...
The Hoffmann Schroepfer Foundation; The Whole Heart Foundation
Total revenues
$19,582,543
2022
Total expenses
$10,587,777
2022
Total assets
$180,921,457
2022
Num. employees
6
2022

Program areas at Additional Ventures Foundation

Project singular - Additional Ventures is investing in building a genomics registry for single ventricle patients and their families in the united states in order to understand the genetic causes of single ventricle heart disease as well as the genetic contributors to the many associated co-morbidities. At least 5,000 single ventricle patients and their immediate family members (parents and siblings) will be recruited and consented virtually with dna sequencing kits mailed to their homes as well as consented and their dna collected in cardiac clinics. Whole genome sequencing will be conducted with participants' samples. The deidentified dataset will be made available for free to all qualified researchers worldwide, fueling not just one research study but many. In 2022, Additional Ventures began the registry build, conducted a soft launch, and prepared for full launch in 2024.
Single ventricle investigators meeting - Additional Ventures held its second annual and first in-person single ventricle investigators meeting (svim) october 7-9, 2022 with more than 170 attendees, 50 plus plenary sessions, 40 plus poster presentations and 16 plus breakout sessions. This was the largest event of its kind for the single ventricle research community, featuring more than 120 speakers across multiple disciplines including basic science, clinical care, engineering, and translational medicine. Presentations addressed the following areas of single ventricle research: understanding single ventricle etiology, defining biological mechanisms of outcomes, addressing complications and comorbidities, developing functional cures, developing functional cures, and optimizing transplant outcomes.
Single ventricle speaker series - responding to a need to provide a forum for single ventricle focused investigators across basic science, tissue engineering, clinical care, and genomics, Additional Ventures conducts a biweekly virtual seminar series over 6 months of the year. Each session addresses ongoing research efforts in key knowledge gap areas identified in the organization's research roadmap, with presenters spanning early career to senior investigators, and topics including single ventricle etiology, biology of outcomes, clinical sequelae, and function cures. In 2022, there were hundreds of multi-disciplinary researchers who participated in the speaker series.

Grants made by Additional Ventures Foundation

GranteeGrant descriptionAmount
Cincinnati Children's Hospital Medical Center (CCHMC)Advanced Cardiac Therapies Improving Outcomes Network$415,000
Enduring HeartsGrants for Research on Pediatric Donor Heart Availability and Quality$237,000
Washington University in St. Louis (Wash. U)Cures Collaborative$231,183
...and 29 more grants made totalling $5,915,094

Personnel at Additional Ventures Foundation

NameTitleCompensation
Michael SchroepferSecretary and Chief Financial Officer and Director / Secretary , Director and Fo$0
Kirstie KellerVice President of PR$258,710
Diane PicklesProgram Director , PR$211,725
Kaitlin DavisSenior Program Manager / Program Manager , Res$124,192
Susan MartelleProgram Manager$109,760
...and 1 more key personnel

Financials for Additional Ventures Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$6,907,530
Investment income and dividends$2,800,597
Net rental income$0
Net gain from sale of non-inventory assets$1,962,638
Gross sales of inventory$0
Miscellaneous revenues$7,911,778
Total revenues$19,582,543

Form 990s for Additional Ventures Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-13990PFView PDF
2021-122022-11-15990PFView PDF
2020-122021-11-12990PFView PDF
2019-122021-06-14990PFView PDF
2018-122020-01-28990PFView PDF
...and 2 more Form 990s

Organizations like Additional Ventures Foundation

OrganizationLocationRevenue
Volo FoundationPalm Beach Gardens, FL$7,029,223
The Steele FoundationPhoenix, AZ$6,342,764
The Carmel Hill Fund Education ProgramNew York, NY$11,882,919
Dean and Margaret Lesher FoundationWalnut Creek, CA$21,147,069
North Dakota Natural Resources Trust (NDNRT)Bismarck, ND$7,179,341
Harold K.L. Castle FoundationKailua, HI$8,125,647
Phil Hardin FoundationMeridian, MS$9,018,103
Jacobson Family Foundation TrustBoston, MA$12,297,548
Dwoskin Charitable Trust FoundationHollywood, FL$7,232,473
Windsong TrustManhattan Beach, CA$36,236,726
Data update history
January 2, 2024
Posted financials
Added Form 990PF for fiscal year 2022
January 2, 2024
Updated personnel
Identified 1 new personnel
December 25, 2023
Used new vendors
Identified 2 new vendors, including , and
July 26, 2023
Posted financials
Added Form 990PF for fiscal year 2021
July 8, 2023
Updated personnel
Identified 1 new personnel
Nonprofit Types
Grantmaking organizationsPrivate foundationsPrivate non-operating foundationsCharities
Issues
No issues found
Characteristics
Provides grantsPartially liquidatedState / local levelTax deductible donations
General information
Address
314 Lytton Ave
Palo Alto, CA 94301
Metro area
San Jose-Sunnyvale-Santa Clara, CA
County
Santa Clara County, CA
Phone
(650) 804-7100
IRS details
EIN
81-4429034
Fiscal year end
December
Taxreturn type
Form 990-PF
Year formed
2018
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
T20: Private Foundations
NAICS code, primary
813211: Grantmaking Foundations
Parent/child status
Independent
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