EIN 30-0964243

Adnp Kids Research Foundation

IRS 501(c) type
501(c)(3)
Num. employees
0
Year formed
2016
Most recent tax filings
2023-05-01
Description
The Adnp Kids Research Foundation supports, advocates for, educates and funds research and trials. One of their program service accomplishments includes creating an online registry through a compliant platform purchased from Survey Monkey. Additionally, they provided funding for the 15th-ever drug trial for Adnp syndrome, which is a low-dose ketamine trial in FDA Phase 2. The trial can be found on clinicaltrials.gov. The foundation is located in Brush Prairie, WA.
Total revenues
$158,160
2023
Total expenses
$87,757
2023
Total assets
$438,008
2023
Num. employees
0
2023

Program areas at Adnp Kids Research Foundation

Program payments for research including prep for Phase 2b study an ADNP specific paper joint neurodevelopmental rare disease study part 2 and development of research of cell lines
Advocacy and Research conferences and meetings are part of our "advocacy and research drug development programs". This year we made an effort to attend many important events. These events were held around the country and resulted in important interactions with the NIH FDA and pharmaceutical company engagement for possible acquisition of our drug trial and multiple meetings at different locations working on current research drug development gene therapy and animal model characterization and provide project management.
Program payments for our Contact and Patient Registry. We updated and redesigned the online platform to include instant live information grafts on secure patient portal to make de-identified real time data available to families participants of patient registry as well as the ongoing HIPPA compliant platform.

Grants made by Adnp Kids Research Foundation

GranteeGrant descriptionAmount
Continuum Health PartnersKetamine Trial and Adnp Paper$10,000
John Carroll UniversityNet Study Part 2$7,200

Who funds Adnp Kids Research Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Goldman Sachs Philanthropy Fund (GSPF)Medical / Public Services$10,000
BWL CharitiesTo Fund Research, Publish Papers and Promote Awareness for Adnp Syndrome.$7,500
The Geaton and Joann Decesaris Family FoundationCharity$1,000
...and 2 more grants received

Personnel at Adnp Kids Research Foundation

NameTitleCompensation
Sandra Bedrosian SermoneBoard Member$0
Genie Egerton-WarburtonBoard Chairman$0
Debbie AbrahamBoard Secretary$0
Tim MosierBoard Treasurer$0

Financials for Adnp Kids Research Foundation

RevenuesFYE 05/2023
Total grants, contributions, etc.$158,160
Program services$0
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$158,160

Form 990s for Adnp Kids Research Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-052022-07-19990View PDF
2021-052022-06-07990EZView PDF
2021-052021-12-14990EZView PDF
2020-052021-11-11990EZView PDF
2019-052019-09-10990EZView PDF
...and 2 more Form 990s
Data update history
August 6, 2023
Posted financials
Added Form 990 for fiscal year 2022
May 22, 2023
Received grants
Identified 2 new grant, including a grant for $7,500 from BWL Charities
May 8, 2023
Updated personnel
Identified 4 new personnel
February 3, 2023
Posted financials
Added Form 990EZ for fiscal year 2021
March 1, 2022
Posted financials
Added Form 990EZ for fiscal year 2020
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
Health
Characteristics
Funds one specific organizationPolitical advocacyProvides grantsConducts researchPartially liquidatedTax deductible donationsNo full-time employees
General information
Address
24500 Ne 132nd Cir
Brush Prairie, WA 98606
Metro area
Portland-Vancouver-Hillsboro, OR-WA
County
Clark County, WA
Website URL
adnpfoundation.org/ 
Phone
(360) 831-3069
IRS details
EIN
30-0964243
Fiscal year end
May
Taxreturn type
Form 990
Year formed
2016
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H11: Medical Research Single Organization Support
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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