Program areas at Alzheimers Disease Data Initiative
Development and testing of the ad workbench, which will systematize and classify the body of scientific knowledge related to alzheimer'Alzheimers's Disease and related dementias in order to present it in a useful form. The ad workbench has permissioned access to 39 datasets; it will allow researchers to more easily utilize this Data and provide resources and tools at no cost to the researchers
Communications and advocacy regarding the need for ad research and the Data sources, resources and methodologies.
Use of the ad workbench and related activity to conduct ad research and support others' research by providing a Data sharing tools and resources. About 3,295 alzheimer'Alzheimers's and related dementia researchers from 93 countries have registered for an account to use the ad workbench to discover, access, and analyze alzheimer'Alzheimers's Disease and related dementias datasets. About 284 workspaces have been commissioned, and 163 requests made to access datasets on the ad workbench.
Grants made by Alzheimers Disease Data Initiative
Who funds Alzheimers Disease Data Initiative
Grants from foundations and other nonprofits
Personnel at Alzheimers Disease Data Initiative
Name | Title | Compensation | Date of data |
---|
Tetsuyuki Maruyama | Executive Director | $0 | 2023-08-03 |
Shirley Prasad | Director of Policy, Advocacy and Communications | | 2023-08-03 |
Mukta Phatak | Director of Data Science | | 2023-08-03 |
Hillary Bounds | Secretary | $0 | 2023-11-14 |
Tony Pound | Treasurer | $0 | 2022-12-31 |
Financials for Alzheimers Disease Data Initiative
Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
---|
Total grants, contributions, etc. | $1,651,341 | $21,318,395 | -92.3% |
Program services | $0 | $0 | - |
Investment income and dividends | $4,015 | $503 | 698.2% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $0 | $46,566 | -100% |
Net income from fundraising events | $0 | $0 | - |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $0 | $0 | - |
Total revenues | $1,655,356 | $21,365,464 | -92.3% |
Organizations like Alzheimers Disease Data Initiative
Organization | Type | Location | Revenue |
---|
Brevard Alzheimer's Foundation | 501(c)(3) | Melbourne, FL | $3,635,507 |
Alzheimer's Community Care | 501(c)(3) | West Palm Beach, FL | $7,158,052 |
Alzheimer's Disease International | 501(c)(3) | Lincolnshire, IL | $2,118,188 |
Creutzfeldt-Jakob Disease Foundation | 501(c)(3) | Akron, OH | $2,861,917 |
Daughters Against Alzheimer's | 501(c)(3) | Atlanta, GA | $746,748 |
Act Now Foundation | 501(c)(3) | Union City, NJ | $689,341 |
Alzheimers Coachella Valley | 501(c)(3) | Palm Desert, CA | $570,282 |
Rick Sharp Alz Foundation | 501(c)(3) | Virginia Beach, VA | $888,776 |
Big D Powerpuff Tackling Alzheimers | 501(c)(3) | Dallas, TX | $494,824 |
Alzheimer's Association - Florida Gulf Coast Chapter | 501(c)(3) | Clearwater, FL | $4,326,670 |
Data update history
January 22, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 1, 2024
Used new vendors
Identified 3 new vendors, including , , and
August 4, 2023
Updated personnel
Identified 22 new personnel
July 14, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disordersPublic policy
Characteristics
Conducts researchPartially liquidatedOperates internationallyTax deductible donationsNo full-time employees
General information
- Address
- 4110 Carillon Point
- Kirkland, WA 98033
- Metro area
- Seattle-Tacoma-Bellevue, WA
- Website URL
- alzheimersdata.org/Â
- Phone
- (425) 497-4300
IRS details
- EIN
- 85-3776266
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2020
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G83: Alzheimers Disease
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Central organization
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