EIN 20-0588190

Center for Information and Study on Clinical Research Participation (CISCRP)

IRS 501(c) type
501(c)(3)
Num. employees
65
City
Year formed
2004
Most recent tax filings
2023-12-01
Description
The Center for Information and Study on Clinical Research Participation (CISCRP) was founded in 2003, and is a non-profit organization dedicated to engaging the public and patients as partners in the clinical research process.
Total revenues
$11,669,707
2023
Total expenses
$10,637,071
2023
Total assets
$7,667,635
2023
Num. employees
65
2023

Program areas at CISCRP

Health communication services - provide Study volunteers with the results of their Clinical trial by creating and delivering plain language summaries, plain language translations of informed consent documents, legal documents, websites, plain language summaries of publications & protocol synopses. Health literacy education and workshops.
Content licensing - licensing or purchase of ciscrp educational content, videos and brochures.
Research services - engaging patients and their support network to obtain meaningful insights for sponsors - including but not limited to pharmaceutical, biotechnology and medical device companies, contract Research organizations, academic and for-profit institutions, foundations and nonprofit organizations. Provide patient & care partner advisory boards, Clinical trial journey workshops, and custom Research projects.
Marketing - provide educational materials to help the public learn about Clinical Research and what it means to be a Clinical Research volunteer. Minority outreach media campaign to highlight the importance of diversity among Clinical Study participants.

Personnel at CISCRP

NameTitleCompensation
Caroline CaseyChief Financial Officer$209,710
Jill McNairChief Growth Officer$198,384
Joan ChambersSenior Director , Marketing$160,569
Julia Farides MitchellDirector , Health Comm Services$109,941
Annick DebruinSenior Director , Research Services$178,283
...and 2 more key personnel

Financials for CISCRP

RevenuesFYE 12/2023
Total grants, contributions, etc.$354,851
Program services$11,287,504
Investment income and dividends$18,705
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$8,647
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$11,669,707

Form 990s for CISCRP

Fiscal year endingDate received by IRSFormPDF link
2023-122024-05-05990View PDF
2022-122023-04-26990View PDF
2021-122022-04-26990View PDF
2020-122021-05-21990View PDF
2019-122020-10-19990View PDF
...and 10 more Form 990s

Organizations like CISCRP

OrganizationLocationRevenue
Human Immunome ProjectNew York, NY$3,415,032
Institute for Health Equity Research Evaluation and PolicyBoston, MA$5,587,155
Phenome HealthSeattle, WA$3,072,624
Citizens Committee for Children of New YorkNew York, NY$4,597,658
Riordan ClinicWichita, KS$8,181,480
Amga FoundationAlexandria, VA$3,922,329
Pennsylvania Economy LeaguePhiladelphia, PA$4,318,756
INDEPTH NetworkCanada, $3,589,660
Institute for Humane StudiesArlington, VA$17,158,040
1day SoonerClaymont, DE$3,461,187
Data update history
July 16, 2024
Used new vendors
Identified 1 new vendor, including
January 26, 2024
Updated personnel
Identified 1 new personnel
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 9, 2023
Posted financials
Added Form 990 for fiscal year 2022
July 1, 2023
Updated personnel
Identified 1 new personnel
Nonprofit Types
Social advocacy organizationsMedical research organizationsCharities
Issues
HealthPublic policy
Characteristics
Conducts researchCommunity engagement / volunteeringTax deductible donationsAccepts online donations
General information
Address
1 Liberty Sq 1100
Boston, MA 02109
Metro area
Boston-Cambridge-Newton, MA-NH
County
Suffolk County, MA
Website URL
ciscrp.org/ 
Phone
(617) 725-2750
Facebook page
CISCRPpage 
Twitter profile
@ciscrp 
IRS details
EIN
20-0588190
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2004
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H05: Medical Research Research Institutes and Public Policy Analysis
NAICS code, primary
813319: Social Advocacy Organizations
Parent/child status
Independent
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