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EIN 45-3056921

Cloves Syndrome Community

IRS 501(c) type
501(c)(3)
Num. employees
0
City
West Kennebunk
State
Maine
Year formed
2011
Most recent tax filings
2023-06-01
NTEE code, primary
G80: Specifically Named Diseases
Description
CLOVES Syndrome Community supports, educates, empowers and improves the lives of those affected by CLOVES syndrome.
Total revenues
$141,229
2023
Total expenses
$292,253
2023
Total assets
$231,402
2023
Num. employees
0
2023

Program areas at Cloves Syndrome Community

Provide information and resources to educate others about CLOVES Syndrome; Foster and promote a supportive community; Build and sustain a broad base of funding sources to support our mission and goals; Utilize incoming funds to provide financial assistance to those impacted by CLOVES Syndrome; Participate in and promote CLOVES Syndrome research to assist in a complete understanding of the disease.

Grants made by Cloves Syndrome Community

GranteeGrant descriptionAmount
University of North Carolina at Chapel Hill2022 Research Recipent.$50,000
Washington University in St. Louis (Wash. U)2022 Vascular Anomalies Communication Project$9,408

Who funds Cloves Syndrome Community

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Silicon Valley Community Foundation (SVCF)Health$150,000
Handel FoundationSpecial Needs$1,000
AmazonSmile FoundationGeneral Support$787
...and 2 more grants received

Personnel at Cloves Syndrome Community

NameTitleCompensation
Kristen DavisExecutive Director$51,227
Ashley McNamaraTreasurer$0
Emily BurgessVice Chair$0
Brenda AlexanderSecretary$0

Financials for Cloves Syndrome Community

RevenuesFYE 06/2023
Total grants, contributions, etc.$114,520
Program services$26,709
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$141,229

Form 990s for Cloves Syndrome Community

Fiscal year endingDate received by IRSFormPDF link
2022-062023-02-15990View PDF
2021-062021-11-08990View PDF
2020-062021-02-17990View PDF
Data update history
December 24, 2023
Received grants
Identified 2 new grant, including a grant for $150,000 from Silicon Valley Community Foundation (SVCF)
June 19, 2023
Posted financials
Added Form 990 for fiscal year 2022
June 17, 2023
Updated personnel
Identified 3 new personnel
June 13, 2023
Used new vendors
Identified 1 new vendor, including
May 8, 2023
Received grants
Identified 1 new grant, including a grant for $2,000 from JP Morgan Chase Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchPeer-to-peer fundraisingProvides scholarshipsFundraising races, competitions, and tournamentsTax deductible donationsNo full-time employees
General information
Address
PO Box 406
West Kennebunk, ME 04094
Metro area
Portland-South Portland, ME
County
York County, ME
Website URL
clovessyndrome.org/ 
Phone
(833) 425-6837
IRS details
EIN
45-3056921
Fiscal year end
June
Taxreturn type
Form 990
Year formed
2011
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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