Grantee | Grant description | Grant year | Amount |
---|---|---|---|
Columbia University | Research | 2022-12 | $218,000 |
Stanford University / The Board of Trustees of the Leland Stanford Junior University | Research | 2022-12 | $136,264 |
Children's National Research Institute (CNHS) | Research | 2022-12 | $135,000 |
...and 10 more grants made |
Grantmaker | Grantmaker tax period | Description | Amount |
---|---|---|---|
ALS Association (ALS) | 2023-01 | Partnership Program Grant | $500,000 |
Charlottesville Area Community Foundation | 2022-12 | General Research; in Memory of Helen Smith Johnson & Angie Newman Johnson | $390,000 |
Fidelity Investments Charitable Gift Fund | 2022-06 | For Grant Recipient's Exempt Purposes | $328,350 |
...and 36 more grants received totalling $2,041,294 |
Name | Title | Compensation | Date of data |
---|---|---|---|
Kurt Woerpel | Chief Financial Officer | $95,229 | 2023-10-11 |
Ann Taylor | Chief Relationship Officer | $170,208 | 2021-12-31 |
Nora Seilheimer | Chief Advancement Officer / Director of External Affairs / Director of Development | $155,622 | 2021-12-31 |
Timothy Meakem | Chief Medical Officer | $264,335 | 2022-12-31 |
Jessica Foley | Chief Scientific Officer | $220,151 | 2022-12-31 |
...and 4 more key personnel |
Revenues | FYE 12/2022 |
---|---|
Total grants, contributions, etc. | $11,006,631 |
Program services | $317,122 |
Investment income and dividends | $368,795 |
Tax-exempt bond proceeds | $0 |
Royalty revenue | $0 |
Net rental income | $0 |
Net gain from sale of non-inventory assets | $-94,735 |
Net income from fundraising events | $0 |
Net income from gaming activities | $0 |
Net income from sales of inventory | $0 |
Miscellaneous revenues | $1,132 |
Total revenues | $11,598,945 |
Fiscal year ending | Date received by IRS | Form | PDF link |
---|---|---|---|
2022-12 | 2023-10-11 | 990 | View PDF |
2021-12 | 2022-11-10 | 990 | View PDF |
2020-12 | 2021-09-10 | 990 | View PDF |
2019-12 | 2021-04-02 | 990 | View PDF |
2018-12 | 2020-10-14 | 990 | View PDF |
...and 10 more Form 990s |
Organization | Type | Location | Revenue |
---|---|---|---|
Gbscidp Foundation International | 501(c)(3) | Conshohocken, PA | $4,567,397 |
Urology Care Foundation | 501(c)(3) | Linthicum HTS, MD | $9,488,144 |
Ehlers-Danlos Society | 501(c)(3) | New York, NY | $4,514,528 |
CurePSP | 501(c)(3) | New York, NY | $3,806,911 |
Mary Free Bed Orthotics Prosthetics and Bionics | 501(c)(3) | Grand Rapids, MI | $18,562,852 |
Cure 4 the Kids Foundation | 501(c)(3) | Las Vegas, NV | $41,727,072 |
ASCA Foundation (ASF) | 501(c)(3) | Alexandria, VA | $4,069,525 |
CH Neurology Foundation | 501(c)(3) | Boston, MA | $42,831,780 |
Brown Neurology | 501(c)(3) | Providence, RI | $40,021,052 |
CHMC Surgical Foundation | 501(c)(3) | Boston, MA | $34,006,141 |
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