EIN 13-5661935

National Multiple Sclerosis Society

IRS 501(c) type
501(c)(3)
Num. employees
833
Year formed
1946
Most recent tax filings
2022-09-01
Description
The National MS Society's mission is that people affected by MS can live their best lives as they stop MS in its tracks, restore what has been lost and end MS forever.
Total revenues
$171,945,464
2022
Total expenses
$159,668,291
2022
Total assets
$185,523,085
2022
Num. employees
833
2022

Program areas at National Multiple Sclerosis Society

Client and community services (see schedule o)client and community services - the Society aims to enpower people affected by ms to solve everyday challenges. We feel if people are informed, connected and supported by loved ones, their communities, their healthcare providers and the Society, they will have improved qualify of life, increased confidence, make new connections and take positive actions. We achieve this by being a trusted source of support for people living with ms and health care providers through our ms navigator service and the educational programming and connection sites we offer online, in person and on demand or self-service. Ms navigators partner with individuals to navigate the challenges of ms unique to each situation. They provide: information and education; emotional support resources; assist with the complexities of finding a healthcare provider, benefits, insurance and access to coverage, and employment; resources to face financial challenges and plan for the future; wellness strategies that can make an impact on quality of life with ms; assessment of personalized case management; and crisis intervention in times of need. In 2022, ms navigators provided support to 46,799 people. Our self service applications assisted an additional 129,141 people in finding doctors and other resources directly.in addition, in fy2022, the Society offered 84 educational programs (in person, phone based, and online) in which 13,300 attendees attended live. 514,560 people accessed this content on demand, and globally reached 22 international countries outside of the us. Topics included epstein barr, how ms affects men, adapting to a new identity, invisible symptoms, how sleep affects ms, and, how aging affects ms, to name a few. In our efforts to connect with more newly diagnosed, young, rural and ethnically diverse people affected by ms the Society offered its first new to ms program, 2nd annual black ms experience summit and our first ever hispanic latinx summit.community programs include collaborating with other community organizations, focusing on access to healthcare, rehabilitation, treatments and therapies; long-term care; disability rights issues; vocational training and rehabilitation, wellness and fitness; and, outreach and education to rural and underserved populations.
Research and scientific studies (see schedule o)research and scientific studies - in fiscal 2022, the Society invested $30.4 million to support 308 new and ongoing research projects around the world aimed at stopping ms in its tracks, restoring function, and ending the disease forever. The Society engaged 80 expert peer reviewers to evaluate 286 proposals for research grants, fellowships and early career awards, commercial research and development agreements, and targeted research grants. We also engaged 13 lay community reviewers to help the Society identify the most promising and appropriate research investments.research priority areas to drive breakthroughs to a cure include: accelerating promising research to empower people affected by ms to live their best lives and advance the pathways to ms cures roadmap, including: stopping disease activity and progression through precision medicine and early detection; restoring what's been lost by reversing symptoms and disability through regeneration and functional recovery enhanced by rehabilitation and wellness; and ending the disease through prevention by limiting exposure to risk factors across the population and for those most at-risk.
Public education (see schedule o)public education - people with ms can better manage their disease when they have the support and understanding of the people around them-from doctors to employers to family members. That's why we work relentlessly to tell the world what it means to live with ms. we educate the public through the Society's awareness campaigns, public service announcements, and momentum, which is the Society's flagship magazine distributed quarterly to nearly 500,000 people living with ms, healthcare providers, and supporters of the Society. Nearly 800,000 people receive bimonthly emails with news and information about ms and 6.8 million people visit the Society's website each year to access information and support and get involved.in addition, many people get engaged in conversations and learn more about ms via the Society's social media, with more than 1 million followers.
Professional education and training - the Society wants scientists and healthcare professionals to be aware of and trained in ms so that the very best expertise worldwide is engaged in finding treatments and solutions for everyone with ms. This includes activities and programs designed to improve the knowledge, skills, and critical judgement of scientists, physicians and other healthcare professionals engaged (directly or indirectly) in providing services to people living with ms by keeping them abreast of new diagnostic techniques and therapies - 154 clinicians, who provide care for approximately 5,300 people with ms, participated in the echo ms program in 2022. 98% reported increased knowledge about patient resources.

Grants made by National Multiple Sclerosis Society

GranteeGrant descriptionAmount
University of California San Francisco / Ucsf Payroll OfficeResearch$2,101,846
Johns Hopkins University (JHU)Research$1,727,835
University of UtahResearch$1,718,985
...and 74 more grants made totalling $20,401,603

Who funds National Multiple Sclerosis Society

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$2,405,235
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$2,405,235
American Online Giving FoundationGeneral Support$2,347,573
...and 609 more grants received totalling $18,552,254

Personnel at National Multiple Sclerosis Society

NameTitleCompensation
Cynthia ZagieboyloPresident and Chief Executive Officer$473,993
Tami CaesarChief Operating Officer$322,722
John ScottChief Marketing and Development Officer$325,645
Tim EnsuresChief Advocacy, Services and Science Officer
Eric HiltyChief Legal Off. / Chief Legal Officer$212,642
...and 23 more key personnel

Financials for National Multiple Sclerosis Society

RevenuesFYE 09/2022
Total grants, contributions, etc.$166,995,681
Program services$7,830
Investment income and dividends$3,029,683
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$572,775
Net gain from sale of non-inventory assets$502,829
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$836,666
Total revenues$171,945,464

Form 990s for National Multiple Sclerosis Society

Fiscal year endingDate received by IRSFormPDF link
2022-092023-05-24990View PDF
2021-092022-06-28990View PDF
2020-092021-06-02990View PDF
2019-092021-01-21990View PDF
2018-092019-09-10990View PDF
...and 15 more Form 990s

Organizations like National Multiple Sclerosis Society

OrganizationLocationRevenue
ALS Association (ALS)Arlington, VA$55,567,608
Arthritis FoundationAtlanta, GA$59,471,904
Muscular Dystrophy AssociationChicago, IL$63,227,837
Parkinsons Disease Foundation Incorporated (PDF)New York, NY$48,333,484
The Leukemia and Lymphoma SocietyincRye Brook, NY$378,338,490
American Cancer Society (ACS)Kennesaw, GA$674,472,929
Cystic Fibrosis FoundationBethesda, MD$248,630,352
Susan G KomenDallas, TX$107,597,705
American Foundation for Suicide PreventionNew York, NY$48,034,966
National Kidney Foundation (NKF)New York, NY$45,765,317
Data update history
May 17, 2024
Received grants
Identified 12 new grant, including a grant for $44,151 from Givengain Foundation USA
February 3, 2024
Received grants
Identified 151 new grant, including a grant for $361,072 from Greater Houston Community Foundation
October 26, 2023
Received grants
Identified 48 new grant, including a grant for $1,137,968 from The Blackbaud Giving Fund
August 19, 2023
Received grants
Identified 332 new grant, including a grant for $2,347,573 from American Online Giving Foundation
August 7, 2023
Posted financials
Added Form 990 for fiscal year 2020
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingOperates internationallyNational levelReceives government fundingEndowed supportCommunity engagement / volunteeringProvides scholarshipsFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
733 Third Ave
New York, NY 10017
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
New York County, NY
Website URL
nationalmssociety.org/ 
Phone
(800) 344-4867
Facebook page
nationalmssociety 
Twitter profile
@mssociety 
IRS details
EIN
13-5661935
Fiscal year end
September
Taxreturn type
Form 990
Year formed
1946
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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