| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| Stanford University / The Board of Trustees of the Leland Stanford Junior University | Support for Neurofibromatosis Research | 2022-12 | $2,434,903 |
| Children's Tumor Foundation | Support for Neurofibromatosis Research | 2022-12 | $1,500,000 |
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| The Gilbert Family Foundation / Matthew Rizik Ttee | 2022-12 | Benefit X Gala Match & Tribute | $2,928,683 |
| National Philanthropic Trust | 2022-06 | Health | $904,000 |
| United Jewish Foundation | 2023-05 | To Support Medical Research | $232,350 |
| ...and 19 more grants received totalling $4,720,428 | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Laura Grannemann | Executive Director | $0 | 2022-12-31 |
| Caroline Poole | Associate Grants and Operation Manager | 2023-09-20 | |
| Dorienne Sherrod | Associate Grants and Operations Manager | 2023-09-20 | |
| Julia Sommers | Associate Grants and Operation Manager | 2023-09-20 | |
| Mar Paricio Sunyer | Grants and Operations Manager | 2023-09-20 | |
| ...and 5 more key personnel | |||
| Revenues | FYE 12/2022 |
|---|---|
| Total grants, contributions, etc. | $9,827,323 |
| Program services | $0 |
| Investment income and dividends | $29,585 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $0 |
| Net income from fundraising events | $-1,798,169 |
| Net income from gaming activities | $57,170 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $0 |
| Total revenues | $8,115,909 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2022-12 | 2023-11-14 | 990 | View PDF |
| 2021-12 | 2022-11-14 | 990 | View PDF |
| 2020-12 | 2021-11-12 | 990 | View PDF |
| 2019-12 | 2021-04-01 | 990 | View PDF |
| 2018-12 | 2020-01-22 | 990 | View PDF |
| ...and 1 more Form 990 | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| Alexs Lemonade Stand Foundation (ALSF) | 501(c)(3) | Wynnewood, PA | $26,830,754 |
| Joe Andruzzi Foundation | 501(c)(3) | North Attleboro, MA | $3,860,461 |
| Orthopaedic Foundation | 501(c)(3) | Los Angeles, CA | $17,778,217 |
| Concern Foundation | 501(c)(3) | Los Angeles, CA | $3,012,671 |
| Cure Rare Disease | 501(c)(3) | Woodbrdge, CT | $2,797,783 |
| Jessie Rees Foundation (JRF) | 501(c)(3) | Rancho Santa Margarita, CA | $4,703,087 |
| Mt Washington Pediatric Foundation | 501(c)(3) | Baltimore, MD | $3,303,879 |
| Brevard Alzheimer's Foundation | 501(c)(3) | Melbourne, FL | $3,635,507 |
| The Marfan Foundation | 501(c)(3) | Port Washington, NY | $8,195,380 |
| American Parkinson Disease Association (APDA) | 501(c)(3) | Staten Island, NY | $19,021,103 |
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