Program areas at RSRT
The organization provides funding to leading Research institutions and companies working on Rett Syndrome and related mecp2 disorders.
The organization sponsors scientific workshops that bring the leading Rett researchers together with elite scientists in synergistic fields to exchange data and set Research direction.
The organization provides funding to leading Research institutions working on Rett Syndrome and related mecp2 disorders. Research is aimed at 1) restoring levels of mecp2 protein, 2) identifying objective tools to measure Rett symptoms 3) establish a clinical trial network 4) identify function of mecp2 protein.
The organization sponsors scientific workshops that bring the leading Rett researchers together with elite scientists in synergistic fields to exchange data and set Research direction.
Who funds Rett Syndrome Research Trust (RSRT)
Grants from foundations and other nonprofits
Personnel at RSRT
| Name | Title | Compensation | Date of data |
|---|
| Monica Coenraads | Chief Executive Officer | $220,000 | 2023-05-11 |
| Tim Freeman | Chief Development Officer | $220,000 | 2022-07-21 |
| Randall Carpenter | Chief Medical Officer | $165,000 | 2022-07-21 |
| Emily Dulcan | Vice President of Communications and Community | | 2022-07-21 |
| Paul Nioi, PhD | Vice President, Discovery and Translational Research, Alnylam Pharmaceuticals | | 2022-07-21 |
| ...and 5 more key personnel |
Financials for RSRT
| Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
|---|
| Total grants, contributions, etc. | $7,028,813 | $7,981,420 | -11.9% |
| Program services | $39,122 | $115,073 | -66% |
| Investment income and dividends | $30,209 | $29,868 | 1.1% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $-151 | $-1,550 | 90.3% |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $7,097,993 | $8,124,811 | -12.6% |
Organizations like RSRT
| Organization | Type | Location | Revenue |
|---|
| Progeria Research Foundation (PRF) | 501(c)(3) | Peabody, MA | $1,793,850 |
| Bill and Melinda Gates Medical Research Institute | 501(c)(3) | Cambridge, MA | $12,321,803 |
| Amyloidosis Research Consortium | 501(c)(3) | Newton, MA | $2,260,256 |
| Icahn Medical Research Foundation | 501(c)(3) | Sunny Isles Beach, FL | $1,891,008 |
| The Alfred E Mann Foundation for Scientific Research (AMF) | 501(c)(3) | Santa Clarita, CA | $31,054,042 |
| Pennington Biomedical Research Foundation (PBRF) | 501(c)(3) | Baton Rouge, LA | $5,462,788 |
| Drugs for Neglected Diseases Initiative North America | 501(c)(3) | New York, NY | $3,931,942 |
| CMT Research Foundation | 501(c)(3) | Atlanta, GA | $4,352,285 |
| Georgia Center for Oncology Research and Education | 501(c)(3) | Atlanta, GA | $3,062,853 |
| Children's Health Foundation / Children's Medical Research Inc | 501(c)(3) | Oklahoma City, OK | $5,543,428 |
Data update history
August 14, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 8, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
Health
Characteristics
Provides grantsConducts researchOperates internationallyNational levelTax deductible donations
General information
- Address
- 67 Under Cliff Rd
- Trumbull, CT 06611
- Metro area
- Bridgeport-Stamford-Norwalk, CT
- County
- Fairfield County, CT
- Website URL
- reverserett.org/Â
- Phone
- (203) 445-0041
- Twitter profile
- @rsrtÂ
IRS details
- EIN
- 26-0687439
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2007
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- H90: Medical Specialty Research
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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