| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| Nationwide Children's Hospital | The Purpose of the Grants Are To Advance Scientific and Clinical Efforts To Advance the Cure of Slc6a1. | 2022-12 | $639,381 |
| Weill Cornell Imaging at NewYork-Presbyterian | The Purpose of the Grants Are To Advance Scientific and Clinical Efforts To Advance the Cure of Slc6a1. | 2022-12 | $70,000 |
| Children's Hospital Colorado Foundation | The Purpose of the Grants Are To Advance Scientific and Clinical Efforts To Advance the Cure of Slc6a1. | 2022-12 | $30,000 |
| ...and 3 more grants made | |||
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| Schwab Charitable Fund | 2022-06 | Health | $208,000 |
| PayPal Giving Fund | 2022-12 | General Support | $89,542 |
| Fidelity Investments Charitable Gift Fund | 2022-06 | For Grant Recipient's Exempt Purposes | $52,250 |
| ...and 11 more grants received | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Amber Freed | Chief Executive Officer | $0 | 2023-06-05 |
| Dan House | Director of Engagement | $0 | 2022-12-31 |
| Chantal Pittman | Patient Advocate | $0 | 2022-12-31 |
| Kelsey Piro | Secretary and Treasurer | $0 | 2022-12-31 |
| Kimberly Fry | Vice President | $0 | 2022-12-31 |
| ...and 3 more key personnel | |||
| Revenues | FYE 12/2022 |
|---|---|
| Total grants, contributions, etc. | $917,577 |
| Program services | $0 |
| Investment income and dividends | $27,196 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $0 |
| Net income from fundraising events | $0 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $0 |
| Total revenues | $944,773 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2022-12 | 2023-06-05 | 990 | View PDF |
| 2021-12 | 2022-02-21 | 990 | View PDF |
| 2020-12 | 2021-05-26 | 990 | View PDF |
| 2019-12 | 2020-10-08 | 990 | View PDF |
| 2019-12 | 2020-09-29 | 990 | View PDF |
| ...and 1 more Form 990 | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| Lupus and Allied Diseases Association | 501(c)(3) | Verona, NY | $1,081,866 |
| Camp Hendon | 501(c)(3) | Louisville, KY | $380,683 |
| Huntington's Disease Society of America Group | 501(c)(3) | New York, NY | $3,567,800 |
| Gi Health Foundation | 501(c)(3) | Holmdel, NJ | $2,544,312 |
| Bacon Bash Texas | 501(c)(3) | Hamilton, TX | $264,149 |
| Lupus Foundation of Northern California | 501(c)(3) | San Jose, CA | $308,062 |
| Adld Center | 501(c)(3) | Troy, MI | $561,167 |
| Claire's Place Foundation | 501(c)(3) | Redondo Beach, CA | $294,137 |
| Digestive Health Foundation | 501(c)(3) | Chicago, IL | $1,666,523 |
| Ald Connect | 501(c)(3) | Middleton, MA | $378,350 |
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