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Disease and disorder focused alliances and advocates

There are 557disease-focused advocates in the United States. Combined, these disease-focused advocatesemploy 219 people, earn more than $41 million in revenue each year, and have assets of $76 million.
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Job trends for Disease-focused advocates

Employees per organizationNumber of organizations
0
24
1-10
7
11-25
5
26-100
3
101 to 1,000
0
1,000+
0
Key takeaways for employment stats:

Sizes of disease-focused advocates

Revenues per organizationNumber of organizations
< $250k
43
$250k to $1M
15
$1M to $5M
10
$5M to $25M
1
$25M to $100M
0
$100M+
0
Key takeaways for revenue stats:

Directory of disease-focused advocates

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1-20 of 557

Everylife Foundation for Rare Diseases

Advancing treatment and diagnostic opportunities for rare disease patients through science-driven public policy. RDLA supports advocacy efforts.
Revenue
$6.8m
Assets
$5.8m
Employees
28
EIN
26-4614274
IRS type
501(c)(3)

Autistic Self Advocacy Network

Advocacy group for autistic adults and youth advancing disability rights principles; supports public education and outreach.
Revenue
$2.1m
Assets
$5.2m
Employees
17
EIN
26-1270198
IRS type
501(c)(3)

Activating Change

Activating Change aims to end victimization, criminalization, incarceration, and institutionalization of people with disabilities through alignment, capacity-building, and coordination.
Revenue
$2.7m
Assets
$2.3m
Employees
17
EIN
88-0922290
IRS type
501(c)(3)

Children's Choice for Hearing and Talking Sacramento

At CCHAT Center, our singular mission is to teach children who are deaf or hard of hearing to develop the necessary speaking, listening, and communication skills required for lifelong success.
Revenue
$2.7m
Assets
$7.9m
Employees
38
EIN
46-1362294
IRS type
501(c)(3)

Rare-X

Rare-X accelerates rare disease diagnosis, treatment, and understanding by enabling secure data sharing across over 9,500 rare diseases.
Revenue
$1.7m
Assets
$823.0k
Employees
0
EIN
84-2298259
IRS type
501(c)(3)

Stowers Policy Institute

SPI promotes biomedical research and therapies through philanthropy. It provides financial support to organizations with similar missions.
Revenue
$2.4m
Assets
$26.8m
Employees
0
EIN
20-3270502
IRS type
501(c)(4)

Ohio Valley Voices

To teach deaf children to speak and to understand when others speak to them. To teach children who are deaf or hard of hearing to listen and talk.
Revenue
$4.3m
Assets
$6.5m
Employees
69
EIN
31-1639795
IRS type
501(c)(3)

Samaritan Fund Foundation

The Samaritan Fund Foundation alleviates medical expenses, facilitating transitions to suitable health plans and providing financial support for participants' peace of mind and healing.
Revenue
$4.1m
Assets
$2.0m
Employees
1
EIN
87-3467536
IRS type
501(c)(3)

Native American Disability Law Center

Advocates for Native Americans with disabilities, empowering them to lead independent lives in their communities, headquartered in Farmington, NM.
Revenue
$1.5m
Assets
$1.4m
Employees
16
EIN
35-2238666
IRS type
501(c)(3)

The Coalition for Genetic Data Protection

Advocates for policies ensuring privacy and security of genetic data and responsible innovation through lobbying and education. Based in Washington, DC.
Revenue
$1.0m
Assets
$77.2k
Employees
0
EIN
87-4821255
IRS type
501(c)(4)

Southwest Mississippi Childrens Advocacy Center

Southwest Mississippi's center provides a safe place for child abuse victims with access to interviews, referral services, and treatment.
Revenue
$796.9k
Assets
$702.8k
Employees
12
EIN
64-0918739
IRS type
501(c)(3)

Shoot for A Cure

Shoot for A Cure fundraises for leukemia and lymphoma research and other charitable nonprofit organizations.
Revenue
$1.1m
Assets
$78.5k
Employees
0
EIN
80-0171936
IRS type
501(c)(3)

NETWORK Lobby for Catholic Social Justice

NETWORK Lobby educates and lobbies for socially just legislation based on Catholic values, promoting equal justice for all.
Revenue
$797.1k
Assets
$1.5m
Employees
0
EIN
52-0984255
IRS type
501(c)(4)

Be A Wonder Foundation

Be A Wonder Foundation is a disease or disorder focused alliances or advocate in Mansfield, CT that was founded in 2020.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
85-2907648
IRS type
501(c)(3)

Grants Giants Pompe Awareness Nonprofit

Grants Giants Pompe Awareness Nonprofit is a disease or disorder focused alliances or advocate in Indianapolis, IN that was founded in 2023.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
92-1236152
IRS type
501(c)(3)

Jamaa Health

Jamaa Health is a disease or disorder focused alliances or advocate in Cincinnati, OH that was founded in 2023.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
92-0346976
IRS type
501(c)(3)

Eye See You I Love U

Eye See You I Love U is a disease or disorder focused alliances or advocate in Irwin, PA that was founded in 2022.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
92-0346900
IRS type
501(c)(3)

Akathisia Alliance

Akathisia Alliance is a disease or disorder focused alliances or advocate in Utica, MI that was founded in 2019.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
82-4083757
IRS type
501(c)(3)

You Saved My Life Incorporated

You Saved My Life Incorporated is a disease or disorder focused alliances or advocate in Pineland, FL that was founded in 2019.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
83-3204582
IRS type
501(c)(3)

Relentless Overcomers

Relentless Overcomers is a disease or disorder focused alliances or advocate in Virginia BCH, VA that was founded in 2020.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
84-3558176
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G01: Voluntary Health Associations and Medical Disciplines Alliances and Advocacy" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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