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Disease and disorder focused alliances and advocates

There are 554disease-focused advocates in the United States. Combined, these disease-focused advocatesemploy 219 people, earn more than $40 million in revenue each year, and have assets of $76 million.
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Job trends for Disease-focused advocates

Employees per organizationNumber of organizations
0
24
1-10
7
11-25
5
26-100
3
101 to 1,000
0
1,000+
0
Key takeaways for employment stats:

Sizes of disease-focused advocates

Revenues per organizationNumber of organizations
< $250k
46
$250k to $1M
16
$1M to $5M
9
$5M to $25M
1
$25M to $100M
0
$100M+
0
Key takeaways for revenue stats:

Directory of disease-focused advocates

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1-20 of 554

Everylife Foundation for Rare Diseases

Advancing treatment and diagnostic opportunities for rare disease patients through science-driven public policy. RDLA supports advocacy efforts.
Revenue
$6.8m
Assets
$5.8m
Employees
28
EIN
26-4614274
IRS type
501(c)(3)

Autistic Self Advocacy Network

Advocacy group for autistic adults and youth advancing disability rights principles; supports public education and outreach.
Revenue
$2.1m
Assets
$5.2m
Employees
17
EIN
26-1270198
IRS type
501(c)(3)

Activating Change

Activating Change aims to end victimization, criminalization, incarceration, and institutionalization of people with disabilities through alignment, capacity-building, and coordination.
Revenue
$2.7m
Assets
$2.3m
Employees
17
EIN
88-0922290
IRS type
501(c)(3)

Children's Choice for Hearing and Talking Sacramento

At CCHAT Center, our singular mission is to teach children who are deaf or hard of hearing to develop the necessary speaking, listening, and communication skills required for lifelong success.
Revenue
$2.7m
Assets
$7.9m
Employees
38
EIN
46-1362294
IRS type
501(c)(3)

Rare-X

Rare-X accelerates rare disease diagnosis, treatment, and understanding by enabling secure data sharing across over 9,500 rare diseases.
Revenue
$1.7m
Assets
$823.0k
Employees
0
EIN
84-2298259
IRS type
501(c)(3)

Stowers Policy Institute

SPI promotes biomedical research and therapies through philanthropy. It provides financial support to organizations with similar missions.
Revenue
$2.4m
Assets
$26.8m
Employees
0
EIN
20-3270502
IRS type
501(c)(4)

Ohio Valley Voices

To teach deaf children to speak and to understand when others speak to them. To teach children who are deaf or hard of hearing to listen and talk.
Revenue
$4.3m
Assets
$6.5m
Employees
69
EIN
31-1639795
IRS type
501(c)(3)

Samaritan Fund Foundation

The Samaritan Fund Foundation alleviates medical expenses, facilitating transitions to suitable health plans and providing financial support for participants' peace of mind and healing.
Revenue
$4.1m
Assets
$2.0m
Employees
1
EIN
87-3467536
IRS type
501(c)(3)

Native American Disability Law Center

Advocates for Native Americans with disabilities, empowering them to lead independent lives in their communities, headquartered in Farmington, NM.
Revenue
$1.5m
Assets
$1.4m
Employees
16
EIN
35-2238666
IRS type
501(c)(3)

Southwest Mississippi Childrens Advocacy Center

Southwest Mississippi's center provides a safe place for child abuse victims with access to interviews, referral services, and treatment.
Revenue
$796.9k
Assets
$702.8k
Employees
12
EIN
64-0918739
IRS type
501(c)(3)

Shoot for A Cure

Shoot for A Cure fundraises for leukemia and lymphoma research and other charitable nonprofit organizations.
Revenue
$1.1m
Assets
$78.5k
Employees
0
EIN
80-0171936
IRS type
501(c)(3)

NETWORK Lobby for Catholic Social Justice

NETWORK Lobby educates and lobbies for socially just legislation based on Catholic values, promoting equal justice for all.
Revenue
$797.1k
Assets
$1.5m
Employees
0
EIN
52-0984255
IRS type
501(c)(4)

Asdlove

Asdlove is a disease or disorder focused alliances or advocate in Chevy Chase, MD that was founded in 2022.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
88-0553574
IRS type
501(c)(3)

Edisto Belles

Edisto Belles is a disease or disorder focused alliances or advocate in Edisto Island, SC that was founded in 2015.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
47-3134525
IRS type
501(c)(3)

Project Vida Academy

Project Vida Academy is a disease or disorder focused alliances or advocate in El Paso, TX that was founded in 2000.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
74-2899231
IRS type
501(c)(3)

Key Learning Center

Key Learning Center is a disease or disorder focused alliances or advocate in Houston, TX that was founded in 2016.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
81-2432720
IRS type
501(c)(3)

Heart of Dylan Foundation

Heart of Dylan Foundation is a disease or disorder focused alliances or advocate in Mount Holly, NC that was founded in 2018.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
82-3767592
IRS type
501(c)(3)

Arizona Consortium for Children with Chronic Illness

Arizona Consortium for Children with Chronic Illness is a disease or disorder focused alliances or advocate in Tempe, AZ that was founded in 1990.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
86-0613584
IRS type
501(c)(3)

A Good Steward Community Outreach

A Good Steward Community Outreach is a disease or disorder focused alliances or advocate in Montgomery, AL that was founded in 2018.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
83-2254949
IRS type
501(c)(3)

Find A Cure for Our Daughters

Find A Cure for Our Daughters is a disease or disorder focused alliances or advocate in Stafford, TX that was founded in 2018.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
47-3674153
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G01: Voluntary Health Associations and Medical Disciplines Alliances and Advocacy" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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