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Washington DC disease-focused advocates

There are 26disease and disorder focused alliances and advocates in the greater Washington DCmetro area, including the cities of Washington DC, Bethesda, Frederick, Gaithersburg, Rockville, Alexandria, Arlington, and Reston within the states of Maryland, District of Columbia, and Virginia. Combined, these Washington DC metro disease-focused advocatesemploy 45 people, earn more than $13 million in revenue each year, and have assets of $14 million.
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Job trends for Washington DC disease-focused advocates

Employees per organizationNumber of organizations
0
4
1-10
0
11-25
1
26-100
1
101 to 1,000
0
1,000+
0
Key takeaways for employment stats:

Sizes of disease-focused advocates in Washington DC

Revenues per organizationNumber of organizations
< $250k
2
$250k to $1M
2
$1M to $5M
3
$5M to $25M
1
$25M to $100M
0
$100M+
0
Key takeaways for revenue stats:

Directory of disease-focused advocates in Washington DC

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1-20 of 26

Everylife Foundation for Rare Diseases

Advancing treatment and diagnostic opportunities for rare disease patients through science-driven public policy. RDLA supports advocacy efforts.
Revenue
$6.8m
Assets
$5.8m
Employees
28
EIN
26-4614274
IRS type
501(c)(3)

Autistic Self Advocacy Network

Advocacy group for autistic adults and youth advancing disability rights principles; supports public education and outreach.
Revenue
$2.1m
Assets
$5.2m
Employees
17
EIN
26-1270198
IRS type
501(c)(3)

Rare-X

Rare-X accelerates rare disease diagnosis, treatment, and understanding by enabling secure data sharing across over 9,500 rare diseases.
Revenue
$1.7m
Assets
$823.0k
Employees
0
EIN
84-2298259
IRS type
501(c)(3)

The Coalition for Genetic Data Protection

Advocates for policies ensuring privacy and security of genetic data and responsible innovation through lobbying and education. Based in Washington, DC.
Revenue
$1.0m
Assets
$77.2k
Employees
0
EIN
87-4821255
IRS type
501(c)(4)

NETWORK Lobby for Catholic Social Justice

NETWORK Lobby educates and lobbies for socially just legislation based on Catholic values, promoting equal justice for all.
Revenue
$797.1k
Assets
$1.5m
Employees
0
EIN
52-0984255
IRS type
501(c)(4)

Bryan Louis Chaney Memorial Fund

Bryan Louis Chaney Memorial Fund is a disease or disorder focused alliances or advocate in Frederick, MD that was founded in 2022.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
87-4663434
IRS type
501(c)(3)

Asdlove

Asdlove is a disease or disorder focused alliances or advocate in Chevy Chase, MD that was founded in 2022.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
88-0553574
IRS type
501(c)(3)

Bravely Ending Anemia Together

Bravely Ending Anemia Together is a disease or disorder focused alliances or advocate in North Potomac, MD that was founded in 2020.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
85-2898234
IRS type
501(c)(3)

Endoarmy

Endoarmy is a disease or disorder focused alliances or advocate in Hillsboro, VA that was founded in 2019.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
83-4584768
IRS type
501(c)(3)

Eating Disorders Coalition for Research Policy and Action Jaffe Management

Eating Disorders Coalition for Research Policy and Action Jaffe Management is a disease or disorder focused alliances or advocate in Washington, DC whose mission is: To advance the federal recognition of Eating Disorders.
Revenue
$285.1k
Assets
$86.0k
Employees
0
EIN
20-8067474
IRS type
501(c)(4)

Yvonne Daise Mcmanus Foundation

Yvonne Daise Mcmanus Foundation is a disease or disorder focused alliances or advocate in Bowie, MD that was founded in 2022.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
87-2663396
IRS type
501(c)(3)

Life Support 4 CRPS

Life Support 4 CRPS is a disease or disorder focused alliances or advocate in Fredericksbrg, VA that was founded in 2021.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
84-3798499
IRS type
501(c)(3)

Texas PACE Association

Providing advocacy, outreach, communication, training, and education services for texas-based programs of all-inclusive care for the elderly.
Revenue
$85.1k
Assets
$142.3k
Employees
N/A
EIN
45-3327054
IRS type
501(c)(6)

Maryland Association of the Deaf

Maryland Association of the Deaf is a disease or disorder focused alliances or advocate in Burtonsville, MD that was founded in 1982.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
52-6051060
IRS type
501(c)(3)

The Perseus Foundation

Provide financial assistance to pets with cancer, promote and fund cancer research, educate the pet owner and public at large on cancer and the importance of funding comparative oncology.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
31-1658057
IRS type
501(c)(3)

Adventures for Alopecia

Adventures for Alopecia is a disease or disorder focused alliances or advocate in Washington, DC that was founded in 2019.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
83-3349739
IRS type
501(c)(3)

Helping Hearts Foundation

Helping Hearts Foundation is a disease or disorder focused alliances or advocate in Monrovia, MD that was founded in 2019.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
84-3738305
IRS type
501(c)(3)

Foundation for the Advancement of Cardiothoracic Surgical Care

Annual multi-disciplinary continuing medical education conference cardiovascular-thoracic scvt) critic care 2015 dedicated to further advancing knowledge and expertise in the complex field of CVT critical care the conference is directed to surgeons cardiologists interventionalists intensivists anesthesiologists critical care nurses nurse practitioners in physician assistants, perfusionists and pharmacists. Web-site, www.facts-care.org, to provide educational information, a forum job postings, and information about upcoming conference and courses relate to CVT critical care.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
55-0902728
IRS type
501(c)(3)

Aortic Hope

Aortic Hope is a disease or disorder focused alliances or advocate in Herndon, VA that was founded in 2018.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
82-2084008
IRS type
501(c)(3)

Cluster Headache Foundation

Cluster Headache Foundation is a disease or disorder focused alliances or advocate in Accokeek, MD that was founded in 2022.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
87-3046420
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G01: Voluntary Health Associations and Medical Disciplines Alliances and Advocacy" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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