New York disease-focused nonprofits

Name: Top 20 Disease-focused nonprofits in New York
Creator: Cause IQ
License: https://creativecommons.org/licenses/by-nc-nd/4.0/

There are 1,673 medical disease and disorder focused nonprofits in New York. Combined, these New Yorker disease-focused nonprofits employ 52,411 people, earn more than $7 billion in revenue each year, and have assets of $7 billion.

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List of New York disease-focused nonprofits
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Types of disease-focused nonprofits in New York

Nonprofit type	Number	Employees	Revenues	Assets
Cancer nonprofits	405	848	$338,138,102	$662,030,457
Organizations focused on specific diseases	374	15,249	$1,215,031,913	$1,499,734,644
Organ disease nonprofits	205	3,289	$1,052,771,341	$2,033,697,554
Medical specialty organizations	154	8,543	$1,021,977,347	$752,478,240
Autism awareness organizations	138	9,125	$573,711,957	$628,424,423
Genetic disorder and birth defect organizations	128	15,194	$2,184,750,801	$1,444,127,191
Organizations supporting multiple disease or disorder focused nonprofits	114	9	$8,785,428	$12,887,748
HIV / AIDS focused organizations	98	3,887	$464,734,768	$593,771,481
Arthritis, muscular dystrophy, multiple sclerosis, and epilepsy organizations	89	8,463	$582,712,298	$567,021,399
Disease and disorder focused professional societies	81	771	$90,294,021	$112,161,923

Showing 10 of 17 categories

Disease-focused nonprofits by major New York cities

Metro area	Nonprofits	Employees	Revenues	Assets
New York City	1,180	34,617	$4,208,807,954	$5,592,848,290
Buffalo	98	2,714	$303,729,692	$179,160,090
Rochester, NY	89	3,698	$167,890,536	$169,448,447
Albany, NY	81	428	$1,148,378,040	$451,772,752
Syracuse	55	2,056	$116,282,768	$110,166,697
Poughkeepsie	46	2,660	$220,743,427	$295,084,299
Utica	22	2,814	$145,076,856	$112,003,080
Binghamton	20	135	$9,709,718	$56,213,751
Kingston	15	363	$19,997,790	$21,724,831
Glens Falls	12	40	$4,589,158	$8,916,888

Showing 10 of 13 metros

Job trends for New York disease-focused nonprofits

Employees per organization	Number of organizations
0	363
1-10	196
11-25	57
26-100	54
101 to 1,000	61
1,000+	12

Key takeaways for employment stats:

Employment in New York disease-focused nonprofits is driven by large organizations like Ahrc Nyc, Braverhood, Developmental Disabilities Institute (DDI), Upstate Cerebral Palsy, and The Center for Discovery.

Sizes of disease-focused nonprofits in New York

Revenues per organization	Number of organizations
< $250k	582
$250k to $1M	184
$1M to $5M	146
$5M to $25M	82
$25M to $100M	34
$100M+	14

Key takeaways for revenue stats:

Large organizations like WFH Usa, Ahrc Nyc, CHS Physician Partners PC, NY Presbyterian Medical GroupQueens, and Constructive Partnerships Unlimited (CP of NYS) earn the majority of revenues among nonprofits in New York disease-focused nonprofits.
Organizations with less than $1 million in revenue account for 2.1% of combined nonprofit revenues, whereas organizations in New York disease-focused nonprofits with more than $100 million account for 53.0% of nonprofit earnings.

Directory of disease-focused nonprofits in New York

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1-20 of 1,673

The American Geriatrics Society

The American Geriatrics Society improves the health and quality of life for older people through education, grants, and special projects.

Revenue

$9.9m

Assets

$14.7m

Employees

EIN

13-1950856

IRS type

501(c)(3)

National Kidney Foundation (NKF)

The National Kidney Foundation is dedicated to preventing kidney and urinary tract diseases, improving the health and well-being of individuals and families affected by kidney disease and increasing the availability of all organs for transplantation.

Revenue

$46.7m

Assets

$52.5m

Employees

271

EIN

13-1673104

IRS type

501(c)(3)

Gay Men's Health Crisis

Gay Men's Health Crisis combats the AIDS epidemic, providing vital services like advocacy, testing, mental health support, housing assistance, and workforce development.

Revenue

$38.7m

Assets

$113.6m

Employees

239

EIN

13-3130146

IRS type

501(c)(3)

Helen Keller Services (HKS)

HKS' mission is to enable individuals who are blind or deaf-blind live, work and thrive in their community of choice.

Revenue

$45.3m

Assets

$150.9m

Employees

467

EIN

11-1630807

IRS type

501(c)(3)

Children's Tumor Foundation

The Children's Tumor Foundation is dedicated to ending neurofibromatosis (NF), to fund research, increase public awareness, support patients and families, encourage establishment of NF clinics.

Revenue

$19.7m

Assets

$30.7m

Employees

EIN

13-2298956

IRS type

501(c)(3)

National Multiple Sclerosis Society

The National MS Society's mission is that people affected by MS can live their best lives as they stop MS in its tracks, restore what has been lost and end MS forever.

Revenue

$171.8m

Assets

$201.1m

Employees

1,035

EIN

13-5661935

IRS type

501(c)(3)

American Parkinson Disease Association (APDA)

The American Parkinson's Disease Association was founded in 1961 to "ease the burden and find a cure" for Parkinson's disease. The organization focuses its energies on research, patient support, education and raising public awareness of the disease.

Revenue

$23.4m

Assets

$30.3m

Employees

EIN

13-1962771

IRS type

501(c)(3)

Cooley's Anemia Foundation

The Cooley's Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley's anemia/thalassemia major.

Revenue

$2.8m

Assets

$6.4m

Employees

EIN

11-1971539

IRS type

501(c)(3)

Parkinsons Disease Foundation Incorporated (PDF)

The Parkinson's Disease Foundation (PDF) is a leading national presence in Parkinson's disease research, education and public advocacy.

Revenue

$84.2m

Assets

$62.7m

Employees

202

EIN

13-1866796

IRS type

501(c)(3)

Quality Services for the Autism Community (QSAC)

Quality Services for the Autism Community (QSAC) provides person-centered services for children and adults with autism throughout New York City and Long Island.

Revenue

$103.6m

Assets

$87.6m

Employees

1,885

EIN

11-2482974

IRS type

501(c)(3)

Young Survival Coalition (YSC)

Young Survival Coalition (YSC) is the premier organization dedicated to the critical issues unique to young women who are diagnosed with breast cancer. YSC offers resources, connections and outreach so women feel supported, empowered and hopeful.

Revenue

$3.0m

Assets

$2.4m

Employees

EIN

13-4057685

IRS type

501(c)(3)

Aids Research Foundation AMFAR

Aids Research Foundation amfAR advances AIDS research, prevention, and advocacy, raising nearly $900 million and awarding over 3,800 grants to combat the epidemic.

Revenue

$24.8m

Assets

$53.4m

Employees

EIN

13-3163817

IRS type

501(c)(3)

Crohn's and Colitis Foundation (CCFA)

CCFA's mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults who suffer from these diseases.

Revenue

$85.2m

Assets

$50.6m

Employees

372

EIN

13-6193105

IRS type

501(c)(3)

Smile Train

Smile Train empowers local medical professionals globally to provide free cleft surgery and care, transforming lives through sustainable training and education programs.

Revenue

$99.6m

Assets

$384.2m

Employees

111

EIN

13-3661416

IRS type

501(c)(3)

HSS Orthopedics Stamford

HSS Orthopedics Stamford collaborates with Stamford Health to provide top orthopedic care, featuring HSS specialists and surgeries at renowned local facilities.

Revenue

$14.8m

Assets

Employees

EIN

81-5178969

IRS type

501(c)(3)

The Eye-Bank for Sight Restoration

The Eye-Bank for Sight Restoration is a independent, not-for-profit organization devoted to restoring sight through eye donations and cornea transplants, as well as providing ocular tissue for research into treatment and cures for other eye diseases.

Revenue

$13.6m

Assets

$89.2m

Employees

EIN

13-1623998

IRS type

501(c)(3)

After Hours Project (AHP)

After Hours Project (AHP) is a community-based harm reduction program that, since May 2002, has addressed the continued spread of HIV/AIDS in predominantly low income and minority neighborhoods.

Revenue

$8.0m

Assets

$7.5m

Employees

EIN

33-1007278

IRS type

501(c)(3)

Voces Latinas Corporation

Voces Latinas Corp provides HIV and violence prevention education, referrals, and leadership training for immigrant Latinos; reaching ~2k individuals in NY.

Revenue

$5.0m

Assets

$3.6m

Employees

EIN

20-2312651

IRS type

501(c)(3)

Braverhood

Hand in Hand Family Services is a Brooklyn, NY based organization that provides programs and support services to developmentally disabled individuals.

Revenue

$129.5m

Assets

$109.6m

Employees

3,981

EIN

20-4157876

IRS type

501(c)(3)

Iris House - A Center for Women Living with Hiv

Iris House saves lives through comprehensive support, prevention and education services for women, families, and under served populations affected by HIV/AIDS and other health disparities in a safe, family-centered environment.

Revenue

$10.4m

Assets

$14.0m

Employees

EIN

13-3699201

IRS type

501(c)(3)

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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.

This category corresponds to the "G00: Disease, Disorders, Medical Disciplines: General" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.

New York disease-focused nonprofits

Types of disease-focused nonprofits in New York

Disease-focused nonprofits by major New York cities

Job trends for New York disease-focused nonprofits

Sizes of disease-focused nonprofits in New York

Directory of disease-focused nonprofits in New York

The American Geriatrics Society

National Kidney Foundation (NKF)

Gay Men's Health Crisis

Helen Keller Services (HKS)

Children's Tumor Foundation

National Multiple Sclerosis Society

American Parkinson Disease Association (APDA)

Cooley's Anemia Foundation

Parkinsons Disease Foundation Incorporated (PDF)

Quality Services for the Autism Community (QSAC)

Young Survival Coalition (YSC)

Aids Research Foundation AMFAR

Crohn's and Colitis Foundation (CCFA)

Smile Train

HSS Orthopedics Stamford

The Eye-Bank for Sight Restoration

After Hours Project (AHP)

Voces Latinas Corporation

Braverhood

Iris House - A Center for Women Living with Hiv

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