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Disease and disorder focused research and public policy institutes

There are 73disease-focused research institutes in the United States. Combined, these disease-focused research institutesemploy 97 people, earn more than $16 million in revenue each year, and have assets of $32 million.
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Job trends for Disease-focused research institutes

Employees per organizationNumber of organizations
0
3
1-10
5
11-25
5
26-100
0
101 to 1,000
0
1,000+
0
Key takeaways for employment stats:

Sizes of disease-focused research institutes

Revenues per organizationNumber of organizations
< $250k
17
$250k to $1M
2
$1M to $5M
6
$5M to $25M
0
$25M to $100M
0
$100M+
0
Key takeaways for revenue stats:

Directory of disease-focused research institutes

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1-20 of 73

Concussion Legacy Foundation

The Concussion Legacy Foundation is a 501(c)(3) registered non-profit organization dedicated to the study, treatment, and prevention of the effects of brain trauma in athletes and other at-risk groups.
Revenue
$2.3m
Assets
$3.9m
Employees
15
EIN
77-0689904
IRS type
501(c)(3)

Health and Medicine Policy Research Group

Health and Medicine Policy Research Group conducts independent research, educates, collaborates, and advocates policies to improve health equity in Chicago.
Revenue
$2.6m
Assets
$3.1m
Employees
23
EIN
36-3143826
IRS type
501(c)(3)

Personalized Medicine Coalition

Personalized Medicine Coalition promotes personalized medicine adoption, educates decision-makers and advocates for modernized regulatory policies.
Revenue
$2.9m
Assets
$2.8m
Employees
8
EIN
54-2134884
IRS type
501(c)(3)

Center for Disease Dynamics Economics and Policy

CCDEP advances worldwide health and wellbeing by studying antibiotic resistance and evaluating the benefits of early childhood nutrition.
Revenue
$4.0m
Assets
$13.9m
Employees
11
EIN
27-3235008
IRS type
501(c)(3)

The Johnson Center for Child Health and Development

Advancing childhood development understanding through clinical care, research, education & outreach. Lectures, studies, & collaborations with caregivers and professionals.
Revenue
$1.1m
Assets
$859.4k
Employees
14
EIN
20-0802572
IRS type
501(c)(3)

The Thanc Foundation

The Thanc Foundation supports research and education for early detection and treatment of thyroid, head, and neck cancer in New York.
Revenue
$1.5m
Assets
$5.6m
Employees
12
EIN
80-0062118
IRS type
501(c)(3)

Integrative Health Research and Evaluation

Integrative Health Research and Evaluation is a disease or disorder focused research or public policy institute in Atlanta, GA that was founded in 2018.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
47-4084695
IRS type
501(c)(3)

Global Pandemic Prevention and Biodefense Center

Global Pandemic Prevention and Biodefense Center is a disease or disorder focused research or public policy institute in MC Lean, VA that was founded in 2022.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
87-2108020
IRS type
501(c)(3)

American Institute For Voice And Ear Research

Clinical & basic Research on the causes, prevention, treatment of Ear & Voice disorders. Development of audiometric testing to detect hearing loss at an earlier stage.
Revenue
$226.3k
Assets
$107.2k
Employees
0
EIN
23-2222726
IRS type
501(c)(3)

Metco Directors Association (MDA)

MDA provides educational and social experiences for all students, with a focus on creating opportunities for children of color.
Revenue
$111.6k
Assets
$43.5k
Employees
N/A
EIN
37-1574499
IRS type
501(c)(3)

Orthopedic and Neurologic Research Institute

Orthopedic and Neurologic Research Institute is a disease or disorder focused research or public policy institute in Fort Worth, TX, which was founded in 2019 and most recently had $152,016 in revenue and no employees.
Revenue
$152.0k
Assets
$27.4k
Employees
N/A
EIN
83-3745449
IRS type
501(c)(3)

International Society for the Trace Element Research In Humans

International Society for the Trace Element Research in Humans encourages and promotes increased scientific and clinical research on the causes, alleviation of suffering, and cure of trace element disorders with a mission of medical research.
Revenue
$0
Assets
$26.5k
Employees
N/A
EIN
45-3577363
IRS type
501(c)(3)

Global Support Initiatives

Global Support Initiatives is a disease or disorder focused research or public policy institute in Moorhead, MN that was founded in 2013.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
80-0665364
IRS type
501(c)(3)

F A R Institute

Fari's intent is to improve healthcare delivery by performing and supporting research to develop and utilize innovative techniques for analysis of data within electronic medical records.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
46-0884268
IRS type
501(c)(3)

Bone and Joint Clinic of Baton Rouge Research Foundation

Bone and Joint Clinic of Baton Rouge Research Foundation is a disease or disorder focused research or public policy institute in Baton Rouge, LA that was founded in 2018.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
82-2092130
IRS type
501(c)(3)

Heart Valve Collaboratory

Heart Valve Collaboratory catalyzes clinical research and advances regulatory science through collaborative projects on valvular heart disease with stakeholders.
Revenue
$239.7k
Assets
$237.9k
Employees
0
EIN
85-3443532
IRS type
501(c)(3)

T1International

T1international empowers communities worldwide to advocate for their rights and access to diabetes care and supplies.
Revenue
$374.0k
Assets
$341.2k
Employees
9
EIN
84-2544817
IRS type
501(c)(3)

Regenemed-Center for Translational Medicine

Regenemed-Center for Translational Medicine is a disease or disorder focused research or public policy institute in Ann Arbor, MI that was founded in 2014.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
46-2348064
IRS type
501(c)(3)

The Brain Institute of America Foundation

The Brain Institute of America Foundation is a disease or disorder focused research or public policy institute in New Haven, CT that was founded in 2017.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
82-1442957
IRS type
501(c)(3)

Alliance for Hippocratic Medicine

Alliance for Hippocratic Medicine is a disease or disorder focused research or public policy institute in Bristol, TN that was founded in 2023.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
92-1316926
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G05: Voluntary Health Associations and Medical Disciplines Research Institutes and Public Policy Analysis" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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