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Boston genetic disorder organizations

There are 38genetic disorder and birth defect organizations in the greater Bostonmetro area, including the cities of Boston, Cambridge, Framingham, Newton, and Waltham. Combined, these Boston metro genetic disorder organizationsemploy 547 people, earn more than $106 million in revenue each year, and have assets of $108 million.
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Job trends for Boston genetic disorder organizations

Employees per organizationNumber of organizations
0
6
1-10
11
11-25
3
26-100
0
101 to 1,000
3
1,000+
0
Key takeaways for employment stats:

Sizes of genetic disorder organizations in Boston

Revenues per organizationNumber of organizations
< $250k
15
$250k to $1M
10
$1M to $5M
7
$5M to $25M
2
$25M to $100M
1
$100M+
0
Key takeaways for revenue stats:

Directory of genetic disorder organizations in Boston

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1-20 of 38

National Organization for Rare Disorders (NORD)

National Organization for Rare Disorders (NORD), organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
Revenue
$66.4m
Assets
$65.2m
Employees
118
EIN
13-3223946
IRS type
501(c)(3)

Aspire Developmental Services

Aspire Developmental Services is a genetic disorder or birth defect organization in Lynn, MA whose mission is: To provide Services to people with disabilities. To provide aid to persons with cerebral palsy.
Revenue
$9.0m
Assets
$8.2m
Employees
128
EIN
04-2204289
IRS type
501(c)(3)

United Cerebral Palsy of MetroBoston

UCP of MetroBoston affirms its commitment to advancing the independence, full citizenship and productivity of people with disabilities.
Revenue
$13.6m
Assets
$13.1m
Employees
216
EIN
04-2672599
IRS type
501(c)(3)

Massachusetts Down Syndrome Congress (MDSC)

The Massachusetts Down Syndrome Congress (MDSC) works daily to ensure that individuals with Down syndrome in Massachusetts are valued, included, and given the opportunities to pursue fulfilling lives.
Revenue
$2.1m
Assets
$5.2m
Employees
14
EIN
22-2596246
IRS type
501(c)(3)

Als One

Als knights, Inc. d/b/a Als One (the organization") is a not-for-profit organization organized in september 2015 and incorporated under the laws of the commonwealth of Massachusetts.
Revenue
$2.0m
Assets
$631.3k
Employees
0
EIN
47-4984263
IRS type
501(c)(3)

Lumind Idsc Foundation

Lumind Idsc Foundation accelerates research, empowers families with education and support, and increases access to medical care for people with Down Syndrome.
Revenue
$3.2m
Assets
$1.3m
Employees
20
EIN
37-1483975
IRS type
501(c)(3)

National Tay-Sachs and Allied Diseases Association

Ntsad detects, prevents, and researches Tay-Sachs and allied diseases. They provide family services, education, and host an annual conference.
Revenue
$1.2m
Assets
$2.9m
Employees
6
EIN
13-1912877
IRS type
501(c)(3)

Global Smile Foundation

It is our goal to alleviate the suffering of underserved patients born with facial congenital deformities with special emphasis on cleft lips and palates.
Revenue
$1.4m
Assets
$1.4m
Employees
10
EIN
26-2668127
IRS type
501(c)(3)

The Genesis Foundation for Children

The mission of The Genesis Foundation for Children is to provide funding for The diagnosis and compassionate, coordinated care of Children born with physical, intellectual, developmental, and genetic disorders, and to aid them in achieving their full pote....
Revenue
$817.6k
Assets
$891.9k
Employees
4
EIN
04-2760083
IRS type
501(c)(3)

New England Hemophilia Association

Improves quality of life for individuals with bleeding disorders via education, advocacy, and support. Located in Dedham, MA.
Revenue
$1.2m
Assets
$1.5m
Employees
6
EIN
04-6111861
IRS type
501(c)(3)

Save One Life

Save One Life empowers people with bleeding disorders in developing countries through financial assistance, scholarships, and microenterprise grants.
Revenue
$1.1m
Assets
$1.8m
Employees
6
EIN
04-3560420
IRS type
501(c)(3)

The Foundation for Faces of Children

Improves lives of children with craniofacial differences. Provides scholarships to students and funds for families to attend the CCA Annual Family Retreat.
Revenue
$91.5k
Assets
$484.5k
Employees
2
EIN
01-0422021
IRS type
501(c)(3)

Middle East Cystic Fibrosis Association

The mission of The Organization is to improve the health outcomes of cystic fibrosis patients in the Middle East through early diagnosis, quality care, medications, and equipment that extends the life expectancy.
Revenue
$304.8k
Assets
$43.5k
Employees
0
EIN
85-1096028
IRS type
501(c)(3)

21 Friends

21 Friends helps families with children with disabilities by donating funds and providing much-needed assistance. The organization focuses on helping those affected by birth defects and genetic diseases.
Revenue
$39.3k
Assets
$51.5k
Employees
N/A
EIN
27-3360971
IRS type
501(c)(3)

Friends of Race Against Dementia

Friends of Race Against Dementia champions research funding by providing grants that advance the science of dementia.
Revenue
$270.0k
Assets
$19.9k
Employees
0
EIN
93-3083895
IRS type
501(c)(3)

JB'S Keys To DMD

JB'S Keys To DMD raises awareness and funds for Duchenne Muscular Dystrophy, improving affected children's opportunities, and provides adaptive activities.
Revenue
$374.0k
Assets
$714.6k
Employees
1
EIN
27-1060320
IRS type
501(c)(3)

Spina Bifida Association of Greater New England

Support and education for families impacted by Spina Bifida in New England, affiliated with the national Spina Bifida Association.
Revenue
$261.7k
Assets
$156.4k
Employees
2
EIN
23-7305430
IRS type
501(c)(3)

Type One Families

Type One Families promotes education as a not-for-profit organization, exempt from income taxes, but did not provide program services in 2023.
Revenue
$2,925
Assets
$2,825
Employees
N/A
EIN
93-4404314
IRS type
501(c)(3)

3-21 Foundation

The 3-21 Foundation, run by Julie Messina, commits to advancing education and cognition for people with Down syndrome through evidence-based approaches. Its programs and services aim to improve teaching methods for students with Down syndrome.
Revenue
$34.1k
Assets
$66.5k
Employees
0
EIN
27-2134490
IRS type
501(c)(3)

Drews Team

Drews Team provides financial assistance to families affected by cystic fibrosis, covering medical expenses and raising awareness about the condition.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
14-1941874
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G20: Birth Defects and Genetic Diseases" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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