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Illinois genetic disorder organizations

There are 46genetic disorder and birth defect organizations in Illinois. Combined, these Illinoisangenetic disorder organizationsemploy 863 people, earn more than $69 million in revenue each year, and have assets of $71 million.
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Genetic disorder organizations by major Illinois cities

Metro areaNonprofitsRevenues
Chicago
30
$63,739,631
St. Louis, MO
4
$3,439,699
Springfield, IL
3
$1,523,259
Peoria
2
$67,499
Champaign
2
$24,782
Bloomington, IL
2
$199,298
Rockford
1
$116,253
Danville
1
$0
Showing 8 of 8metros

Job trends for Illinois genetic disorder organizations

Employees per organizationNumber of organizations
0
7
1-10
10
11-25
3
26-100
2
101 to 1,000
1
1,000+
0
Key takeaways for employment stats:

Sizes of genetic disorder organizations in Illinois

Revenues per organizationNumber of organizations
< $250k
19
$250k to $1M
8
$1M to $5M
6
$5M to $25M
0
$25M to $100M
1
$100M+
0
Key takeaways for revenue stats:

Directory of genetic disorder organizations in Illinois

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1-20 of 46

United Cerebral Palsy Seguin of Greater Chicago

UCP Seguin of Greater Chicago, with its rich heritage spanning over 60 years, currently serves over 650 children and adults with developmental disabilities and other special needs in 65 Chicagoland communities.
Revenue
$46.5m
Assets
$32.7m
Employees
645
EIN
36-2894174
IRS type
501(c)(3)

United Cerebral Palsy Center for Disability Services (CDS)

The Center for Disability Services will provide excellence in program delivery, research driven practices and techniques, state-of-the-art technology and services for individuals and families impacted with the challenges of disabilities.
Revenue
$3.2m
Assets
$3.7m
Employees
79
EIN
36-2425572
IRS type
501(c)(3)

Special Children's Charities

Special Children's Charities fosters physical and mental health improvements and supports athletic training for Chicagoans with intellectual and developmental disabilities.
Revenue
$4.5m
Assets
$7.5m
Employees
14
EIN
23-7026774
IRS type
501(c)(3)

Magic Foundation

The Magic Foundation's mission is to provide support services to families of children afflicted with growth disorders, reducing emotional and physical trauma. The organization offers specific assistance, education materials and an annual convention.
Revenue
$976.6k
Assets
$2.7m
Employees
8
EIN
36-3673333
IRS type
501(c)(3)

National Society of Genetic Counselors (NSGC)

The National Society of Genetic Counselors advances the various roles of genetic counselors in health care by fostering education, research, and public policy to ensure the availability of quality genetic services.
Revenue
$4.7m
Assets
$5.8m
Employees
0
EIN
13-3052488
IRS type
501(c)(6)

National Foundation for Ectodermal Dysplasias

Nfed empowers and connects people through education, support, and research to improve the health of those affected by Ectodermal Dysplasias.
Revenue
$1.5m
Assets
$4.0m
Employees
8
EIN
37-1112496
IRS type
501(c)(3)

Cerebral Palsy of Southwestern Illinois

Cerebral Palsy of Southwestern Illinois is a genetic disorder or birth defect organization in Fairview Heights, IL whose mission is: Providing services to people afflicted with Cerebral Palsy and similar disabilities.
Revenue
$1.9m
Assets
$3.2m
Employees
50
EIN
37-0995954
IRS type
501(c)(3)

The Phoenix Community Center

A community center in Springfield, IL providing housing, testing, and support to Central Illinois' LGBT+ community.
Revenue
$1.6m
Assets
$1.7m
Employees
21
EIN
37-1412387
IRS type
501(c)(3)

The Haven Network For Perinatal Death & Bereavement

A support network for families grieving the loss of unborn or stillborn infants that operates in Rockford, IL with hospice and bereavement services.
Revenue
$116.3k
Assets
$271.3k
Employees
3
EIN
20-0620800
IRS type
501(c)(3)

Hidden No More NFP

Hidden No More NFP is a genetic disorder or birth defect organization in Springfield, IL that was founded in 2022.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
30-1197856
IRS type
501(c)(3)

Frankfort Family Foundation for Pku

Frankfort Family Foundation for Pku is a genetic disorder or birth defect organization in Clarendon HLS, IL that was founded in 2023.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
85-4240694
IRS type
501(c)(3)

CHD3 Foundation

CHD3 Foundation is a genetic disorder or birth defect organization in Oakwood, IL that was founded in 2023.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
88-0638104
IRS type
501(c)(3)

Maggies Rose

Maggies Rose is a genetic disorder or birth defect organization in Seymour, IL that was founded in 2020.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
82-2800257
IRS type
501(c)(3)

Sickle Cell Disease Association of Illinois

Sickle Cell Disease Association of Illinois raises awareness and improves the quality of life for patients through community outreach and patient grant programs.
Revenue
$255.6k
Assets
$47.1k
Employees
5
EIN
23-7157702
IRS type
501(c)(3)

Bleeding Disorders Alliance Illinois

Bleeding Disorders Alliance Illinois helps hemophiliacs and their families with treatment, care, advocacy and education in Chicago.
Revenue
$448.7k
Assets
$854.6k
Employees
10
EIN
36-2390156
IRS type
501(c)(3)

Blood Bond Bleeding Disorder Network

Blood Bond Bleeding Disorder Network educates, advocates, and raises awareness for the bleeding disorder community, having served around 600 individuals.
Revenue
$175.1k
Assets
$12.8k
Employees
3
EIN
47-2777844
IRS type
501(c)(3)

Kabuki Syndrome Foundation

The Kabuki Syndrome Foundation funds research and hosts conferences to treat or cure Kabuki Syndrome globally.
Revenue
$362.9k
Assets
$482.4k
Employees
0
EIN
82-5401904
IRS type
501(c)(3)

Heart of Illinois Down Syndrome Assoc

Heart of Illinois Down Syndrome Assoc supports, advocates and educates persons with Down syndrome and families, encouraging socialization and recreational activities.
Revenue
$29.5k
Assets
$120.0k
Employees
N/A
EIN
37-1367203
IRS type
501(c)(3)

Side By Side Smiles NFP

Side By Side Smiles NFP is a genetic disorder or birth defect organization in Naperville, IL whose mission is: Sell bracelets to public and raise funds to donate to various non profit organizations.
Revenue
$441
Assets
$7,433
Employees
0
EIN
83-0699032
IRS type
501(c)(3)

Grin2b Foundation

Grin2b Foundation provides support and education to individuals and families impacted by Grin2b diagnosis while funding medical research.
Revenue
$145.9k
Assets
$125.8k
Employees
N/A
EIN
82-1499966
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G20: Birth Defects and Genetic Diseases" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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