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  5. Kansas City genetic disorder organizations

Kansas City genetic disorder organizations

There are 14genetic disorder and birth defect organizations in the greater Kansas Citymetro area, including the cities of Kansas City, Lenexa, and Overland Park within the states of Kansas and Missouri. Combined, these Kansas City metro genetic disorder organizationsemploy 49 people, earn more than $7 million in revenue each year, and have assets of $17 million.
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Job trends for Kansas City genetic disorder organizations

Employees per organizationNumber of organizations
0
3
1-10
0
11-25
1
26-100
1
101 to 1,000
0
1,000+
0
Key takeaways for employment stats:

Sizes of genetic disorder organizations in Kansas City

Revenues per organizationNumber of organizations
< $250k
5
$250k to $1M
0
$1M to $5M
4
$5M to $25M
0
$25M to $100M
0
$100M+
0
Key takeaways for revenue stats:

Directory of genetic disorder organizations in Kansas City

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1-14 of 14

International FOP Association

International FOP Association funds research and supports individuals with Fop to find a cure while raising awareness worldwide.
Revenue
$3.1m
Assets
$5.1m
Employees
0
EIN
59-2918100
IRS type
501(c)(3)

Down Syndrome Innovations

DSI provides support and resources for individuals with Down Syndrome, their families, and professionals. It promotes awareness and education through parent-to-parent programs and conferences.
Revenue
$1.5m
Assets
$4.3m
Employees
26
EIN
43-1427760
IRS type
501(c)(3)

Inclusion Connections Pawsabilities

Inclusion Connections Pawsabilities provides job training for individuals with disabilities to increase their employment skills and access to meaningful work.
Revenue
$1.4m
Assets
$1.3m
Employees
23
EIN
46-2754831
IRS type
501(c)(3)

American Pancreatic Association

The American Pancreatic Association fosters research to cure pancreatic diseases and trains future researchers. They conducted a virtual annual conference with 500+ participants.
Revenue
$1.1m
Assets
$5.9m
Employees
0
EIN
43-1422062
IRS type
501(c)(3)

Congenital Heart Defects Families Association

Supporting families impacted by congenital heart defects with care packages, support groups, educational resources and family activities.
Revenue
$49.1k
Assets
$156.6k
Employees
N/A
EIN
20-0391453
IRS type
501(c)(3)

Racing for Rett

Racing for Rett is a genetic disorder or birth defect organization in Harrisonville, MO that was founded in 2015.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
47-2426694
IRS type
501(c)(3)

Leo H Rheam Foundation for Cleft and Craniofacial Orthodontics

Leo H Rheam Foundation for Cleft and Craniofacial Orthodontics is a genetic disorder or birth defect organization in Kansas City, MO that was founded in 2012.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
45-3700887
IRS type
501(c)(3)

Jadons Hope Foundation

Jadons Hope Foundation supports families affected by the terminal childhood disease Spinal Muscular Atrophy (SMA) and promotes educational awareness and research efforts.
Revenue
$11.5k
Assets
$140.8k
Employees
N/A
EIN
45-3280260
IRS type
501(c)(3)

Kansas Fasd Support Network

Kansas Fasd Support Network is a genetic disorder or birth defect organization in Olathe, KS that was founded in 2022.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
87-3460731
IRS type
501(c)(3)

Shwachman Diamond Syndrome Research Fund

Shwachman Diamond Syndrome Research Fund is a genetic disorder or birth defect organization in Olathe, KS that was founded in 2017.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
82-0939237
IRS type
501(c)(3)

Angels with Missing Pieces

We provided gift bags to the local children's hospital for families and siblings of individuals dealing with 22q. We hosted a family event for families to engage with each other.
Revenue
$1,000
Assets
$1,398
Employees
N/A
EIN
45-3695966
IRS type
501(c)(3)

Spina Bifida Kansas Club

Spina Bifida Kansas Club is a genetic disorder or birth defect organization in Olathe, KS that was founded in 2018.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
83-2456096
IRS type
501(c)(3)

Uriel E Owens Sickle Cell Disease Association of the Midwest

Midwest-based organization providing emergency & financial support, counseling, scholarships, and assistance with prescriptions, rent, utilities & transportation to sickle cell patients.
Revenue
$22.9k
Assets
$56.3k
Employees
0
EIN
48-0930211
IRS type
501(c)(3)

Turner Syndrome Global Alliance

Connecting science, resources, and funding to the Turner Syndrome community through research, social media, and evidence-based information.
Revenue
$10.4k
Assets
$42.7k
Employees
N/A
EIN
46-5424047
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G20: Birth Defects and Genetic Diseases" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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