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Minnesota genetic disorder organizations

There are 22genetic disorder and birth defect organizations in Minnesota. Combined, these Minnesotangenetic disorder organizationsemploy 139 people, earn more than $25 million in revenue each year, and have assets of $14 million.
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Genetic disorder organizations by major Minnesota cities

Metro areaNonprofitsRevenues
Minneapolis
18
$11,633,871
St. Cloud
3
$13,445,113
Rochester, MN
1
$13,030
Showing 3 of 3metros

Job trends for Minnesota genetic disorder organizations

Employees per organizationNumber of organizations
0
5
1-10
3
11-25
3
26-100
1
101 to 1,000
0
1,000+
0
Key takeaways for employment stats:

Sizes of genetic disorder organizations in Minnesota

Revenues per organizationNumber of organizations
< $250k
6
$250k to $1M
4
$1M to $5M
3
$5M to $25M
1
$25M to $100M
0
$100M+
0
Key takeaways for revenue stats:

Directory of genetic disorder organizations in Minnesota

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1-20 of 22

Connectability of MN

Connectability of MN empowers people with disabilities through assistive technology and transportation coordination for independence, productivity, and citizenship advancement.
Revenue
$13.2m
Assets
$3.6m
Employees
65
EIN
41-0807591
IRS type
501(c)(3)

National Ataxia Foundation Incorporated

National Ataxia Foundation Incorporated advances treatment development, supports families affected by Ataxia, and fosters research collaborations to eliminate the condition.
Revenue
$4.0m
Assets
$4.1m
Employees
21
EIN
41-0832903
IRS type
501(c)(3)

Minnesota Organization on Fetal Alcohol Syndrome (MOFAS)

The mission of MOFAS is to eliminate disability caused by alcohol consumption during pregnancy and to improve the quality of life for those living with Fetal Alcohol Spectrum Disorders throughout Minnesota.
Revenue
$4.2m
Assets
$1.8m
Employees
24
EIN
41-1904618
IRS type
501(c)(3)

Jack's Basket

Jack's Basket celebrates babies with Down Syndrome through a nonprofit organization, providing resources and support to families from diagnosis to first birthday.
Revenue
$1.3m
Assets
$1.5m
Employees
8
EIN
81-4310519
IRS type
501(c)(3)

Lupus Research Foundation

The Lupus Research Foundation raises money for lupus research and provides resources to lupus patients through their programs, which include raising funds for research.
Revenue
$130.9k
Assets
$140.8k
Employees
N/A
EIN
81-5446248
IRS type
501(c)(3)

Down Syndrome Diagnosis Network

Connecting, supporting, and providing accurate information to families with Down Syndrome diagnosis through retreats, scholarships, gifts, and local volunteers.
Revenue
$636.3k
Assets
$701.3k
Employees
2
EIN
46-3042112
IRS type
501(c)(3)

National Society of Genetic Counselors / Minnesota Genetic Counselors Assoc

National Society of Genetic Counselors / Minnesota Genetic Counselors Assoc is a genetic disorder or birth defect organization in Minneapolis, MN that was founded in 2008.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
90-0436175
IRS type
501(c)(6)

Nicholas Viner Heart Foundation

Nicholas Viner Heart Foundation is a genetic disorder or birth defect organization in Oakdale, MN that was founded in 2015.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
47-3856570
IRS type
501(c)(3)

Turner Syndrome Society of MN

Turner Syndrome Society of MN is a genetic disorder or birth defect organization in Edina, MN that was founded in 1989.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
41-1636412
IRS type
501(c)(3)

Ronnies Fight for CDH

Ronnies Fight for CDH is a genetic disorder or birth defect organization in Zimmerman, MN that was founded in 2023.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
92-1817041
IRS type
501(c)(3)

Hemophilia Foundation of Minnesota / Dakotas

We dedicate ourselves to advancing the quality of life of individuals and families affected by Hemophilia or other bleeding disorders by providing a broad range of services and programs.
Revenue
$401.5k
Assets
$536.3k
Employees
2
EIN
41-6032276
IRS type
501(c)(3)

Down Syndrome Association of Minnesota

Empowers individuals and families, creates community, and celebrates abilities of people with Down syndrome. Provides resources and support to families.
Revenue
$643.0k
Assets
$287.2k
Employees
17
EIN
41-1631873
IRS type
501(c)(3)

Hopeful Halos Foundation

The Hopeful Halos Foundation raises funds for Angelman Syndrome research and is a non-profit organization dedicated to this cause. Todd Werner leads the foundation, which focuses on supporting those with this specific disease.
Revenue
$48.8k
Assets
$16.6k
Employees
N/A
EIN
83-4475176
IRS type
501(c)(3)

Love To Henry Foundation

Love To Henry Foundation is a genetic disorder or birth defect organization in Sartell, MN that was founded in 2017.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
82-1311608
IRS type
501(c)(3)

Fasd Speaks

Fasd Speaks is a genetic disorder or birth defect organization in Eden Prairie, MN that was founded in 2015.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
47-2297686
IRS type
501(c)(3)

Carly May Foundation

The Carly May Foundation supports families that include a child with Down Syndrome and/or a chronic illness. It successfully held its fifteenth annual golf event in 2022, albeit with limited participation due to venue constraints.
Revenue
$161.6k
Assets
$117.7k
Employees
0
EIN
26-2543215
IRS type
501(c)(3)

Indian Organization for Rare Diseases

Indian Organization for Rare Diseases is a genetic disorder or birth defect organization in Mendota HTS, MN that was founded in 2014.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
46-3234183
IRS type
501(c)(3)

North American Fetal Therapy Network

NAFTNet facilitates fetal therapy research in North America through a network of hospitals and organizations with active clinical programs.
Revenue
$133.8k
Assets
$511.5k
Employees
0
EIN
56-2629825
IRS type
501(c)(3)

Breathe Easy for CFF

Support for individuals suffering from cystic fibrosis by supporting the cystic fibrosis foundation in order to find a cure for the disease.
Revenue
$275
Assets
$1,195
Employees
0
EIN
45-2494472
IRS type
501(c)(3)

Minnesota Lions Diabetes Foundation

The Minnesota Lions Diabetes Foundation raises funds and collaborates with partners to improve the lives of people with diabetes, as founded by the Lions Clubs of Minnesota and their dedicated volunteer members who strongly commit to this cause.
Revenue
$252.6k
Assets
$199.0k
Employees
0
EIN
26-3238179
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G20: Birth Defects and Genetic Diseases" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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