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North Carolina genetic disorder organizations

There are 44genetic disorder and birth defect organizations in North Carolina. Combined, these North Caroliniangenetic disorder organizationsemploy 132 people, earn more than $26 million in revenue each year, and have assets of $37 million.
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Genetic disorder organizations by major North Carolina cities

Metro areaNonprofitsRevenues
Charlotte
15
$1,096,058
Raleigh
9
$2,883,901
Greensboro
5
$4,434,655
Durham
5
$17,359,860
Jacksonville, NC
2
$39,786
Winston-Salem
1
$162,798
Wilmington
1
$171,992
New Bern
1
$0
Myrtle Beach, SC
1
$0
Hickory
1
$0
Showing 10 of 11metros

Job trends for North Carolina genetic disorder organizations

Employees per organizationNumber of organizations
0
9
1-10
6
11-25
2
26-100
2
101 to 1,000
0
1,000+
0
Key takeaways for employment stats:

Sizes of genetic disorder organizations in North Carolina

Revenues per organizationNumber of organizations
< $250k
18
$250k to $1M
4
$1M to $5M
4
$5M to $25M
1
$25M to $100M
0
$100M+
0
Key takeaways for revenue stats:

Directory of genetic disorder organizations in North Carolina

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1-20 of 44

MiracleFeet

MiracleFeet treats clubfoot in children to prevent lifelong disability, with low-cost tools and mobile app to collect patient data.
Revenue
$14.3m
Assets
$18.1m
Employees
32
EIN
27-3764203
IRS type
501(c)(3)

Piedmont Health Services and Sickle Cell Agency

To provide outreach, education, screening and case management for people with high-risk Health problems. Our vision is to become a leading community-based preventive Health and outreach Agency for all people.
Revenue
$3.7m
Assets
$3.7m
Employees
48
EIN
23-7362747
IRS type
501(c)(3)

American Cleft Palate - Craniofacial Association

ACPA partners with families, patients, and professionals to improve the care, education, research, and support of those living with craniofacial conditions.
Revenue
$1.5m
Assets
$4.6m
Employees
6
EIN
43-0793521
IRS type
501(c)(3)

STXBP1 Foundation

STXBP1 Foundation creates awareness, funds and drives research towards a cure, provides tools to families, advocates for early detection, and fosters activism.
Revenue
$1.8m
Assets
$1.7m
Employees
0
EIN
82-1439459
IRS type
501(c)(3)

Fore Batten Foundation

Fore Batten Foundation funds research to cure rare diseases, including juvenile Batten disease and compassionately supports the Batten community.
Revenue
$1.5m
Assets
$2.2m
Employees
1
EIN
82-2661656
IRS type
501(c)(3)

Coastal Bringing Up Down Syndrome Southeastern NC

Supporting and connecting individuals with Down Syndrome and their families in southeastern NC through resources, programming, and funding.
Revenue
$172.0k
Assets
$212.8k
Employees
N/A
EIN
81-4628292
IRS type
501(c)(3)

Skraban-Deardorff Syndrome Foundation

Skraban-Deardorff Syndrome Foundation is a genetic disorder or birth defect organization in Indian Trail, NC that was founded in 2022.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
88-2790552
IRS type
501(c)(3)

Brighter Onward Beliefs

Brighter Onward Beliefs is a genetic disorder or birth defect organization in Charlotte, NC that was founded in 2022.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
86-2394218
IRS type
501(c)(3)

Easter Seals United Cerebral Palsy NC Housing

Easter Seals United Cerebral Palsy NC Housing offers group housing programs for adults with developmental disabilities to provide them with a comfortable place to live.
Revenue
$414.8k
Assets
$1.0m
Employees
0
EIN
58-1620890
IRS type
501(c)(3)

CDH International

Global initiative to stop congenital diaphragmatic hernia. Promotes research, awareness and supports families of children born with CDH.
Revenue
$213.5k
Assets
$35.0k
Employees
3
EIN
56-1916661
IRS type
501(c)(3)

The Down Syndrome Association of Greater Charlotte

Supporting individuals with Down syndrome and their families through education, social activities, and inclusive camps in Charlotte, NC.
Revenue
$196.2k
Assets
$427.6k
Employees
15
EIN
56-1541529
IRS type
501(c)(3)

Follow the Elite Stars World Travel

Follow the Elite Stars World Travel is a genetic disorder or birth defect organization in Charlotte, NC whose mission is: Awarded 200 dollars Travel gift to underprivileged child. Provide Travel experience to underprivil.
Revenue
$4,119
Assets
$0
Employees
N/A
EIN
85-1894065
IRS type
501(c)(3)

Four Iv

Raise Money for Cystic Fibrosis and Remit Monies to other Not-For-Profit Entities for Research for the Cure for Cystic Fibrosis. Raised $12,800 for cystic fibrosis research.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
46-1014815
IRS type
501(c)(3)

Bryce Martin Foundation for Children

Bryce Martin Foundation for Children supports its charitable mission by providing assistance and education to children that are visually impaired. The organization focuses on diseases of specific organs and is located in Raleigh, NC.
Revenue
$1,950
Assets
$40.6k
Employees
N/A
EIN
81-2873851
IRS type
501(c)(3)

Genetic Metabolic Dietitians (GMDI)

Genetic Metabolic Dietitians (GMDI) supports metabolic dietitians through education, resources, and guidelines, promoting excellence in nutrition therapy for genetic metabolic disorders.
Revenue
$118.0k
Assets
$561.4k
Employees
0
EIN
20-3935476
IRS type
501(c)(3)

Batten Disease Support and Research Association / Southeast Chapter

Batten Disease Support & Research association's mission is to be an international Support and Research networking organization for families of children and young adults with an inherited neurological degenerative disorder known as Batten Disease.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
56-1918696
IRS type
501(c)(3)

Minutes Matter - Mcadd

Minutes Matter - Mcadd is a genetic disorder or birth defect organization in Wilkesboro, NC whose mission is: Minutes Matter - MCADD exists to raise awareness of the metabolic disorder, MCADD.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
83-0656552
IRS type
501(c)(3)

Alveolar Capillary Dysplasia Association

Alveolar Capillary Dysplasia Association is a genetic disorder or birth defect organization in Huntersville, NC that was founded in 2014.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
46-2915711
IRS type
501(c)(3)

Highlights Childrens Foundation

Highlights Childrens Foundation is a genetic disorder or birth defect organization in Mooresville, NC that was founded in 2021.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
85-3703299
IRS type
501(c)(3)

Makhosi Michaela Foundation

Makhosi Michaela Foundation is a genetic disorder or birth defect organization in Concord, NC that was founded in 2023.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
93-1581477
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G20: Birth Defects and Genetic Diseases" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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