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Philadelphia genetic disorder organizations

There are 38genetic disorder and birth defect organizations in the greater Philadelphiametro area, including the cities of Philadelphia, Wilmington, and Camden within the states of New Jersey, Delaware, and Pennsylvania. Combined, these Philadelphia metro genetic disorder organizationsemploy 959 people, earn more than $83 million in revenue each year, and have assets of $123 million.
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Job trends for Philadelphia genetic disorder organizations

Employees per organizationNumber of organizations
0
6
1-10
3
11-25
5
26-100
3
101 to 1,000
2
1,000+
0
Key takeaways for employment stats:

Sizes of genetic disorder organizations in Philadelphia

Revenues per organizationNumber of organizations
< $250k
11
$250k to $1M
7
$1M to $5M
4
$5M to $25M
4
$25M to $100M
1
$100M+
0
Key takeaways for revenue stats:

Directory of genetic disorder organizations in Philadelphia

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1-20 of 38

Charcot-Marie-Tooth Association (CMTA)

The mission of Charcot-Marie-Tooth Association is to support the development of new drugs to treat CMT, to improve the quality of life for people with CMT, and, ultimately, to find a cure.
Revenue
$5.8m
Assets
$9.6m
Employees
11
EIN
22-2480896
IRS type
501(c)(3)

Association for Frontotemporal Degeneration (AFTD)

We envision a world where frontotemporal degeneration is understood, effectively diagnosed, treated, cured and ultimately prevented. To improve the quality of life of people affected by FTD and drive research to a cure.
Revenue
$8.5m
Assets
$47.5m
Employees
47
EIN
41-2073220
IRS type
501(c)(3)

CHILDREN AND ADULT DISABILITY AND Educational Services (CADES)

CADES is a human services organization dedicated to improving the lives of children and adults with intellectual and physical disabilities, using a family-centered approach to care.
Revenue
$35.9m
Assets
$35.7m
Employees
516
EIN
23-1409677
IRS type
501(c)(3)

Hollydell School

The mission of HollyDELL School is to provide exceptional educational, social, emotional, therapeutic and technological programs for individuals with physical and medical challenges from age 3 through adulthood.
Revenue
$8.8m
Assets
$5.4m
Employees
158
EIN
21-0699002
IRS type
501(c)(3)

Adult Congenital Heart Association (ACHA)

The mission of the Adult Congenital Heart Association is to improve and extend the lives of the millions born with heart defects through education, advocacy and promoting research.
Revenue
$2.4m
Assets
$2.0m
Employees
18
EIN
04-3447959
IRS type
501(c)(3)

Githens Center

Githens Center provides quality programs for children and adults with disabilities to improve their quality of life and promote independence.
Revenue
$3.2m
Assets
$3.2m
Employees
86
EIN
21-0695537
IRS type
501(c)(3)

Emily's Entourage

Emilys Entourage accelerates research and drug development for nonsense mutations of Cystic Fibrosis by raising money through direct solicitation activities.
Revenue
$2.8m
Assets
$5.0m
Employees
6
EIN
45-3768161
IRS type
501(c)(3)

Cerebral Palsy Association of Chester County Incorporated

Cerebral Palsy Association of Chester County Incorporated's mission is to enhance the abilities and support the independence of people with Cerebral Palsy and disabilities throughout their lives.
Revenue
$1.7m
Assets
$2.5m
Employees
11
EIN
23-2233854
IRS type
501(c)(3)

Advancing Opportunities

Advancing Opportunities provides advocacy, education, and direct services for persons with developmental and other disabilities to enhance their lives.
Revenue
$10.5m
Assets
$6.4m
Employees
0
EIN
22-1550592
IRS type
501(c)(3)

Sydneys Soldiers / Erin P Gelman Ttee

Sydneys Soldiers / Erin P Gelman Ttee is a genetic disorder or birth defect organization in Morton, PA that was founded in 2020.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
84-7041649
IRS type
501(c)(3)

Down To Box

Down To Box is a genetic disorder or birth defect organization in Wilmington, DE that was founded in 2019.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
82-4841428
IRS type
501(c)(3)

Crescent Foundation / Kyle Smith

Crescent Foundation / Kyle Smith supports Sickle Cell Disease survivors, families, and communities through professional societies and associations in arts, culture, and humanities. Kyle Smith leads the organization from Philadelphia, PA.
Revenue
$154.8k
Assets
$70.8k
Employees
N/A
EIN
35-2656326
IRS type
501(c)(3)

CTX Alliance NFP

CTX Alliance NFP promotes CTX research and education advocacy through webinars and sponsored international scientific meetings. Based in Lansdale, PA.
Revenue
$116.4k
Assets
$21.3k
Employees
N/A
EIN
87-1964096
IRS type
501(c)(3)

Wishes and Dreams for Cystic Fibrosis

Wishes and Dreams for Cystic Fibrosis is comprised of CF families, caregivers, and friends to raise awareness and funds for the Cystic Fibrosis Foundation. Its mission is to actively support those affected by CF.
Revenue
$107.7k
Assets
$92.8k
Employees
0
EIN
46-3537810
IRS type
501(c)(3)

Iskra

Iskra is a genetic disorder or birth defect organization in Wynnewood, PA that was founded in 2023.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
36-5013809
IRS type
501(c)(3)

DPD Deficiency Foundation

To foster awareness of DPD Deficiency, provide general information to support families, promote scientific collaboration, and fund research in pursuit of a cure for this genetic disease. 2.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
46-0529044
IRS type
501(c)(3)

Brandywine Valley Hemophilia Foundation

Brandywine Valley Hemophilia Foundation provides college scholarships to students with bleeding disorders.
Revenue
$27.2k
Assets
$85.0k
Employees
N/A
EIN
23-2237720
IRS type
501(c)(3)

Bohring-Opitz Syndrome Foundation

Bohring-Opitz Syndrome Foundation is a genetic disorder or birth defect organization in Oaks, PA that was founded in 2015.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
47-4872776
IRS type
501(c)(3)

Coach-Ed

Coach-Ed empowers Cystic Fibrosis patients through financial assistance for fitness, scholarships, mentoring, and promoting healthy lifestyles and social awareness.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
45-3399942
IRS type
501(c)(3)

American Behcets Disease Association

ABDA supports the Behcet's community, provides free literature kits, advocates for research and treatment, offers support and networking opportunities.
Revenue
$80.6k
Assets
$239.5k
Employees
0
EIN
41-1579632
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G20: Birth Defects and Genetic Diseases" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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