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Rochester, NY genetic disorder organizations

There are 9genetic disorder and birth defect organizations in the greater RochesterNew York metro area. Combined, these Rochester metro genetic disorder organizationsemploy 742 people, earn more than $62 million in revenue each year, and have assets of $63 million.
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Job trends for Rochester, NY genetic disorder organizations

Employees per organizationNumber of organizations
0
1
1-10
0
11-25
1
26-100
1
101 to 1,000
2
1,000+
0
Key takeaways for employment stats:

Sizes of genetic disorder organizations in Rochester

Revenues per organizationNumber of organizations
< $250k
3
$250k to $1M
0
$1M to $5M
0
$5M to $25M
3
$25M to $100M
1
$100M+
0
Key takeaways for revenue stats:

Directory of genetic disorder organizations in Rochester

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1-9 of 9

Mary M Gooley Hemophilia Center

Mary M. Gooley Hemophilia Center is an independent, Hemophilia Treatment Center based in Rochester serving people that cares for people affected by hemophilia, von willebrand disease, other rare bleeding disorders, hemochromatosis and gaucher's disease.
Revenue
$25.4m
Assets
$28.7m
Employees
11
EIN
16-0836536
IRS type
501(c)(3)

Happiness House

Happiness House is an educational, residential, health and human service organization that excels in providing the highest quality, innovative and cost effective services to children and adults with and without disabilities.
Revenue
$13.1m
Assets
$11.1m
Employees
370
EIN
16-0965912
IRS type
501(c)(3)

Huntington Study Group (HSG)

The Huntington Study Group (HSG), which was formed in 1993, is the world's first HD cooperative therapeutic research organization. To be an invaluable research partner to Families, HSG Members, Sponsors, and Partners.
Revenue
$6.7m
Assets
$8.7m
Employees
25
EIN
45-5557987
IRS type
501(c)(3)

CP Rochester

Supporting people with physical and developmental disabilities in choosing and accomplishing successive individualized life goals through providing a wide range of services to people of all ages in the greater Rochester Area; including outpatient clinical....
Revenue
$16.2m
Assets
$13.9m
Employees
336
EIN
16-0743950
IRS type
501(c)(3)

Just Breathe Foundation

The Just Breathe Foundation benefits Cystic Fibrosis Pateients who apply for financial help with medical costs. The Just Breath Foundation benefits Cystic Fibrosis Patients who apply for financial help with medical costs.
Revenue
$11.2k
Assets
$82.0k
Employees
N/A
EIN
46-4014940
IRS type
501(c)(3)

Greater Rochester Ny Spina Bifida Association

Greater Rochester Ny Spina Bifida Association is a genetic disorder or birth defect organization in Fairport, NY that was founded in 2022.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
13-6015737
IRS type
501(c)(3)

Support Organization for Trisomy 1813 - Soft

Support Organization for Trisomy 1813 - Soft is a genetic disorder or birth defect organization in Rochester, NY whose mission is: Support and medical information for families of individuals with Trisomy 18/13 in Rochester, NY.
Revenue
$148.9k
Assets
$575.0k
Employees
0
EIN
94-2781004
IRS type
501(c)(3)

Lilliana S Heart Association

Lilliana S Heart Association is a genetic disorder or birth defect organization in Ontario, NY that was founded in 2021.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
87-2123561
IRS type
501(c)(3)

Cystic Fibrosis Family Connection

CF Family Connection supports those with cystic fibrosis through events and financial aid for hospital expenses. Located in Rochester, NY.
Revenue
$6,456
Assets
$83.2k
Employees
N/A
EIN
22-3243677
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G20: Birth Defects and Genetic Diseases" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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