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Virginia genetic disorder organizations

There are 38genetic disorder and birth defect organizations in Virginia. Combined, these Virginiangenetic disorder organizationsemploy 64 people, earn more than $12 million in revenue each year, and have assets of $22 million.
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Genetic disorder organizations by major Virginia cities

Metro areaNonprofitsRevenues
Washington DC
17
$6,935,042
Virginia Beach
6
$607,104
Richmond
6
$1,099,622
Charlottesville
3
$979,395
Lynchburg
2
$2,615,755
Winchester
1
$0
Staunton
1
$0
Roanoke
1
$33,373
Blacksburg
1
$0
Showing 9 of 9metros

Job trends for Virginia genetic disorder organizations

Employees per organizationNumber of organizations
0
7
1-10
8
11-25
2
26-100
0
101 to 1,000
0
1,000+
0
Key takeaways for employment stats:

Sizes of genetic disorder organizations in Virginia

Revenues per organizationNumber of organizations
< $250k
9
$250k to $1M
9
$1M to $5M
3
$5M to $25M
0
$25M to $100M
0
$100M+
0
Key takeaways for revenue stats:

Directory of genetic disorder organizations in Virginia

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1-20 of 38

Spina Bifida Association of America

Spina Bifida Association supports individuals with the condition through education, advocacy, and research to build a better future.
Revenue
$2.2m
Assets
$1.4m
Employees
16
EIN
58-1342181
IRS type
501(c)(3)

United Cerebral Palsy

UCP and its 58 affiliates provide resources and support for people with disabilities and their families, including housing, therapies, and assistive technologies.
Revenue
$2.2m
Assets
$10.9m
Employees
4
EIN
20-3568840
IRS type
501(c)(3)

Children's Assistive Technology Service

Redistributes donated pediatric adaptive equipment to children with disabilities at no cost, while raising awareness and advocating for policy reform.
Revenue
$2.6m
Assets
$1.0m
Employees
8
EIN
46-4866068
IRS type
501(c)(3)

Pku Hope Foundation

PKU Hope Foundation: improving PKU lives by fostering community, supporting research, and easing the burden of managing diet.
Revenue
$817.8k
Assets
$807.3k
Employees
0
EIN
93-2255729
IRS type
501(c)(3)

Foundation to Eradicate Duchenne

Dedicated to funding research for treating and curing Duchenne Muscular Dystrophy, through aggressive research grants awarded annually.
Revenue
$777.1k
Assets
$837.5k
Employees
0
EIN
71-0874241
IRS type
501(c)(3)

VOICES Of FRIEDREICHS ATAXIA

VOICES Of FRIEDREICHS ATAXIA raises awareness about Friedreichs Ataxia through its programs such as maintaining a website, running a YouTube channel, creating Facebook pages and other social media.
Revenue
$421
Assets
$6
Employees
N/A
EIN
87-1112330
IRS type
501(c)(3)

Louies Huwe

Louies Huwe is a genetic disorder or birth defect organization in Stafford, VA that was founded in 2021.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
86-1930096
IRS type
501(c)(3)

International Society for Prenatal Diagnosis

International Society advancing genetics and fetal care for child, mother, and family health worldwide through research, education, and resources.
Revenue
$609.0k
Assets
$601.9k
Employees
0
EIN
76-0487388
IRS type
501(c)(3)

New World Horizons

New World Horizons provides events for children with Down syndrome and autism and their families. However, due to Covid restrictions, NWH did not hold any events in 2021.
Revenue
$200
Assets
$2,495
Employees
N/A
EIN
82-5414119
IRS type
501(c)(3)

Lights for Lupus

We have a goal of creating craft like light fixtures to donate and sell to raise funds and awareness for the autoimmune disease, Lupus. None at this time.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
82-2411665
IRS type
501(c)(3)

Beyondpartners

Beyondpartners is a genetic disorder or birth defect organization in Stafford, VA that was founded in 2024.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
99-4110394
IRS type
501(c)(3)

Joshuas S Hope

Joshuas S Hope provides assistance and resources to Muscular Dystrophy patients in Spotsylvania, VA including specialized equipment and transportation to appointments/camps.
Revenue
$20.2k
Assets
$22.1k
Employees
N/A
EIN
45-0948897
IRS type
501(c)(3)

Virginia Hemophilia Foundation

The Virginia Hemophilia Foundation offers education, advocacy, and community support services to individuals affected by inherited bleeding disorders with the mission of providing support for these individuals.
Revenue
$512.5k
Assets
$1.8m
Employees
3
EIN
54-1183181
IRS type
501(c)(3)

The Bow Foundation

The Bow Foundation supports Gnao1 families, research, and awareness. They enhance research and increase awareness while funding cutting-edge research to benefit those with Gnao1 disabilities and similar rare diseases and neurological conditions.
Revenue
$370.4k
Assets
$615.3k
Employees
0
EIN
82-1323389
IRS type
501(c)(3)

Down Syndrome Association of the New River Valley

Down Syndrome Association of the New River Valley is a genetic disorder or birth defect organization in Blacksburg, VA that was founded in 2007.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
22-3876558
IRS type
501(c)(3)

Cloves Syndrome Foundation

Cloves Syndrome Foundation is a genetic disorder or birth defect organization in Forest, VA that was founded in 2011.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
27-4823899
IRS type
501(c)(3)

Kinsleys Grace

Kinsleys Grace is a genetic disorder or birth defect organization in Chesapeake, VA that was founded in 2015.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
47-3968342
IRS type
501(c)(3)

Hemophilia Association of the Capital Area

Supports advocacy, education, and awareness for those with bleeding disorders; holds classes, publishes newsletters, and provides limited financial support.
Revenue
$293.0k
Assets
$1.0m
Employees
2
EIN
54-1702561
IRS type
501(c)(3)

Sunshine Squad

Sunshine Squad is a genetic disorder or birth defect organization in Winchester, VA that was founded in 2017.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
81-4220526
IRS type
501(c)(3)

Ability Center of Virginia

Ability Center of Virginia is a genetic disorder or birth defect organization in Virginia Beach, VA whose mission is: Service and support for people with disabilities.
Revenue
$474.1k
Assets
$593.2k
Employees
16
EIN
54-1310168
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G20: Birth Defects and Genetic Diseases" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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