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  5. Boston nerve, muscle, and bone disease organizations

Boston nerve, muscle, and bone disease organizations

There are 36arthritis, muscular dystrophy, multiple sclerosis, and epilepsy organizations in the greater Bostonmetro area, including the cities of Boston, Cambridge, Framingham, Newton, and Waltham. Combined, these Boston metro nerve, muscle, and bone disease organizationsemploy 582 people, earn more than $120 million in revenue each year, and have assets of $188 million.
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Job trends for Boston nerve, muscle, and bone disease organizations

Employees per organizationNumber of organizations
0
10
1-10
3
11-25
2
26-100
1
101 to 1,000
3
1,000+
0
Key takeaways for employment stats:

Sizes of nerve, muscle, and bone disease organizations in Boston

Revenues per organizationNumber of organizations
< $250k
16
$250k to $1M
3
$1M to $5M
8
$5M to $25M
3
$25M to $100M
1
$100M+
0
Key takeaways for revenue stats:

Directory of nerve, muscle, and bone disease organizations in Boston

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1-20 of 36

National Organization for Rare Disorders (NORD)

National Organization for Rare Disorders (NORD), organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
Revenue
$59.9m
Assets
$49.5m
Employees
123
EIN
13-3223946
IRS type
501(c)(3)

Epilepsy Foundation New England

Epilepsy Foundation New England helps individuals and families affected by epilepsy in the region through resource and youth services.
Revenue
$6.6m
Assets
$10.4m
Employees
100
EIN
22-2505819
IRS type
501(c)(3)

The Boston Home

The Boston Home serves adults with advanced Multiple Sclerosis and other progressive neurological diseases.
Revenue
$17.6m
Assets
$72.7m
Employees
259
EIN
04-2103905
IRS type
501(c)(3)

ALS Therapy Development Institute (ALS TDI)

We are the world's first and largest nonprofit biotech focused 100 percent on ALS research. Led by people with ALS and drug development experts, we understand the urgent need to slow and stop this disease.
Revenue
$11.4m
Assets
$21.1m
Employees
59
EIN
04-3462719
IRS type
501(c)(3)

Accelerated Cure Project (ACP)

The Accelerated Cure Project is a non-profit organization dedicated to accelerating research efforts to improve diagnosis, to optimize treatment and to cure multiple sclerosis.
Revenue
$2.3m
Assets
$2.7m
Employees
7
EIN
04-3555864
IRS type
501(c)(3)

FSHD Society

The FSH Society is a nonprofit, patient-driven organization supporting research and education for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy.
Revenue
$3.5m
Assets
$6.1m
Employees
17
EIN
52-1762747
IRS type
501(c)(3)

Jett Foundation

To increase worldwide awareness of duchenne muscular dystrophy with the purpose or raising and appropriating funds for research that will realize a cure for this fatal disease and ensure that children like Jett have the opportunity to enjoy a full life.
Revenue
$3.5m
Assets
$3.5m
Employees
13
EIN
04-3563445
IRS type
501(c)(3)

National Scleroderma Foundation

The Scleroderma Foundation is the national organization for people with scleroderma and their families and friends. Their mission is support, education and research.
Revenue
$4.6m
Assets
$11.5m
Employees
0
EIN
52-1375827
IRS type
501(c)(3)

Auto-Immune Rare Disease Fund

Airdf funds treatments for rare autoimmune diseases, collaborates with research programs, and expands fundraising efforts in Boston.
Revenue
$2.8m
Assets
$2.8m
Employees
0
EIN
87-4578704
IRS type
501(c)(3)

The Sumaira Foundation

The Sumaira Foundation generates global awareness and support for NMOSD/MOGAD patients, and funds research towards a cure. "From The Experts" offers education.
Revenue
$1.5m
Assets
$457.1k
Employees
0
EIN
47-2398246
IRS type
501(c)(3)

Als One

Als knights, Inc. d/b/a Als One (the organization") is a not-for-profit organization organized in september 2015 and incorporated under the laws of the commonwealth of Massachusetts.
Revenue
$2.0m
Assets
$637.0k
Employees
2
EIN
47-4984263
IRS type
501(c)(3)

Angel Fund

Angel Fund supports ALS research at UMass Chan Med School by funding through campaigns, events, and grants.
Revenue
$928.6k
Assets
$3.1m
Employees
0
EIN
04-3478977
IRS type
501(c)(3)

Global for Good Fund

Global for Good Fund is an arthritis, muscular dystrophy, multiple sclerosis, or epilepsy organization in Waltham, MA whose mission is: Fundraising for research and aid to those with cystic fibrosis and multiple sclerosis.
Revenue
$882.3k
Assets
$202.5k
Employees
0
EIN
27-0467647
IRS type
501(c)(3)

North East Als Consortium

Neals translates scientific advances into new treatments for ALS and MND with an annual meeting to discuss potential treatments.
Revenue
$1.1m
Assets
$1.1m
Employees
0
EIN
56-2547779
IRS type
501(c)(3)

Camer Rand Fund

Camer Rand Fund collects data, evaluates surgery techniques, and improves outcomes for patients with complex spinal deformity.
Revenue
$119.3k
Assets
$110.0k
Employees
0
EIN
88-0926974
IRS type
501(c)(3)

MS Is BS New England

MS Is BS New England raises funds for Multiple Sclerosis by awarding grants to individuals. Two individuals were granted $5,000 each while one individual received $1,700 and twenty others received $1,000 grants. The organization is located in Dracut, MA.
Revenue
$44.1k
Assets
$23.9k
Employees
N/A
EIN
81-2082094
IRS type
501(c)(3)

Road Back Foundation

Road Back Foundation promotes education about treatment of rheumatic diseases with antibiotics and serves as a patient and physician resource for the exchange and dissemination of information on research.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
31-1364545
IRS type
501(c)(3)

Scleroderma Foundation Minnesota Chapter

Scleroderma Foundation Minnesota Chapter provides patient support and outreach programs to help MN scleroderma patients. The organization focuses on disease, disorders, and general medical disciplines.
Revenue
$50.1k
Assets
$116.6k
Employees
N/A
EIN
41-1802254
IRS type
501(c)(3)

Sail for Epilepsy

Continued building upon initial efforts to expand the international audienceof people with epilepsy via online presence while planning in-person events for next fiscal year that will take place on the west coast of the USA.
Revenue
$138.9k
Assets
$187.6k
Employees
N/A
EIN
83-4684629
IRS type
501(c)(3)

Empower Spinal Cord Injury

Empower SCI offers in-person programs with holistic services, including peer mentoring, education, and recreation to 21 spinal cord injury participants.
Revenue
$103.4k
Assets
$119.8k
Employees
N/A
EIN
27-5575042
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G50: Nerve, Muscle, and Bone Diseases" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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