1. Directory
  2. Virginia
  3. Arlington
  4. Cure LBSL
EIN 46-2829156

Cure LBSL

IRS 501(c) type
501(c)(3)
Num. employees
1
City
Arlington
State
Virginia
Year formed
2013
Most recent tax filings
2023-12-01
NTEE code, primary
G12: Voluntary Health Associations and Medical Disciplines Fund Raising and Fund Distribution
Description
Cure LBSL provides funding to rare disease research and supports affected families. The organization has provided $600,000 to a research program at the Kennedy Krieger Institute in Baltimore, Maryland and $529,010 to the Childrens Hospital of Orange County (CA) for research aimed at creating a treatment for Leukodystrophy - LBSL.
Also known as...
A Cure for Ellie
Total revenues
$1,852,552
2023
Total expenses
$1,661,665
2023
Total assets
$739,400
2023
Num. employees
1
2023

Program areas at Cure LBSL

We provided $1,502,000 to a research program at the Kennedy Krieger Institute in Baltimore, Maryland. The research seeks to create a treatment for the rare disease, Leukodystrophy - LBSL. This years research continued building cells with disease attributes, building animal models, testing therapeutics, and expanded a natural history study with a sample of known patients.

Grants made by Cure LBSL

GranteeGrant descriptionAmount
Kennedy Krieger InstituteResearch$1,502,000

Who funds Cure LBSL

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Network for GoodUnrestricted$42,171
AmazonSmile FoundationGeneral Support$768

Personnel at Cure LBSL

NameTitleCompensation
Elizabeth A McGinnDirector$0
Elizabeth GulugianBoard Chair$0
Eliabeth McGinnDirector$0

Financials for Cure LBSL

RevenuesFYE 12/2023
Total grants, contributions, etc.$1,850,787
Program services$0
Investment income and dividends$1,765
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$1,852,552

Form 990s for Cure LBSL

Fiscal year endingDate received by IRSFormPDF link
2023-122024-10-18990View PDF
2022-122023-11-15990View PDF
2021-122022-07-22990View PDF
2020-122021-10-14990View PDF
2019-122020-09-18990View PDF
...and 3 more Form 990s

Organizations like Cure LBSL

OrganizationLocationRevenue
Team Jack FoundationAtkinson, NE$1,516,323
Kruzn for A Kure FoundationMuscle Shoals, AL$486,955
Ian's Friends FoundationAtlanta, GA$1,393,479
Cure Rare DiseaseWoodbridge, CT$2,300,944
Gamechanger CharityRancho Mission Viejo, CA$545,069
Aleh FoundationBrooklyn, NY$559,128
StacheStrongVestal, NY$1,014,435
Autism Strong FoundationWaxhaw, NC$909,201
LiveLikeLou FoundationOxford, OH$2,796,333
Digestive Health FoundationChicago, IL$2,738,336
Data update history
January 7, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 1, 2024
Updated personnel
Identified 2 new personnel
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 13, 2023
Received grants
Identified 2 new grant, including a grant for $600,000 from Silicon Valley Community Foundation (SVCF)
May 17, 2023
Updated personnel
Identified 1 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
Health
Characteristics
Provides grantsConducts researchPartially liquidatedTax deductible donationsAccepts online donations
General information
Address
3520 S Wakefield St
Arlington, VA 22206
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
County
Arlington County, VA
Website URL
curelbsl.org/ 
Phone
(202) 487-4235
IRS details
EIN
46-2829156
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2013
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G12: Voluntary Health Associations and Medical Disciplines Fund Raising and Fund Distribution
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
Free account sign-up

Want updates when Cure LBSL has new information, or want to find more organizations like Cure LBSL?

Create free Cause IQ account
Cause IQ is a website that helps companies grow, maintain, and serve their nonprofit clients, and helps nonprofits find additional foundation funding. Our data and tools help professionals prospect for nonprofits, research opportunities, benchmark their clients, and enrich existing information.
Nonprofits
Product
Customers
About

© 2025 Nonprofit Metrics LLC
Terms of Service and Privacy Policy