EIN 26-1761329

A Foundation Building Strength

IRS 501(c) type
501(c)(3)
Num. employees
0
Year formed
2008
Most recent tax filings
2023-12-01
Description
A Foundation Building Strength seeks to find treatments for nemaline myopathy. It provides research grants to both foreign and domestic organizations that focus on nemaline myopathy science, especially testing the inhibitory molecule to the protein myostatin and gene replacement technology.
Total revenues
$1,461,428
2023
Total expenses
$907,012
2023
Total assets
$3,531,624
2023
Num. employees
0
2023

Program areas at A Foundation Building Strength

The largest program services include the research grants to foreign and domestic organizations researching Nemaline Myopathy science. Domestically, these grants supported research to test the inhibitory molecule to the protein myostatin; gene replacement therapy on gene KLHl41; correcting muscle function in nm by mutation independent approaches; and soft robotic garments research to assist in lower-limb function.The foreign grants supported research on drug repurposing for the treatment of NEB Nemaline Myopathy; tested genetic therapies on ACTA NM; and CRISPR/CAS9 research on NEB NM.

Grants made by A Foundation Building Strength

GranteeGrant descriptionAmount
Partners Healthcare System / Brigham & Womens Hospital IncResearch$244,175
Regents of the University of California at RiversideResearch$69,786
Cure CMDResearch$5,429

Who funds A Foundation Building Strength

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Silicon Valley Community Foundation (SVCF)Health$626,000
Goldhirsh Yellin FoundationGeneral Operating Support$50,000
GS Daf (GSPF)Medical$50,000
...and 12 more grants received

Personnel at A Foundation Building Strength

NameTitleCompensation
Marc GuilletPresident$0
Jennifer TozerDevelopment Director$101,009
Dr. Dziewczapolski ReceivedScientific Director of Cure CMD and Then Also
Gus Dziewczapolski, PHDScientific Director
Sharon Fiedler ShimanovskyBoard Member$0
...and 3 more key personnel

Financials for A Foundation Building Strength

RevenuesFYE 12/2023
Total grants, contributions, etc.$1,269,206
Program services$0
Investment income and dividends$51,267
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$140,955
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$1,461,428

Form 990s for A Foundation Building Strength

Fiscal year endingDate received by IRSFormPDF link
2023-122024-10-08990View PDF
2022-122023-11-14990View PDF
2021-122022-09-30990View PDF
2020-122021-09-22990View PDF
2019-122021-02-22990View PDF
...and 9 more Form 990s
Data update history
December 5, 2024
Posted financials
Added Form 990 for fiscal year 2023
November 27, 2024
Updated personnel
Identified 1 new personnel
November 27, 2024
Used new vendors
Identified 2 new vendors, including , and
May 18, 2024
Received grants
Identified 3 new grant, including a grant for $50,000 from Goldhirsh Yellin Foundation
February 21, 2024
Updated personnel
Identified 6 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
Health
Characteristics
Provides grantsConducts researchFundraising eventsOperates internationallyTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
3825 El Camino Real
Palo Alto, CA 94306
Metro area
San Jose-Sunnyvale-Santa Clara, CA
County
Santa Clara County, CA
Website URL
buildingstrength.org/ 
Phone
(650) 320-8000
IRS details
EIN
26-1761329
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2008
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H12: Medical Research Fund Raising and Fund Distribution
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current - Awaiting Reporting
FTB status revoked
Not revoked
AG Registration Number
CT0155548
FTB Entity ID
3073420
AB 488 data last updated ("as-of") date
2024-12-31
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