Program areas at Alaska Hemophilia Association
Camp Frozen Chosen: Annual summer camp for family and children with genetic bleeding disorders. The goal of this event is to improve the lives of those with bleeding disorders and their families, by providing the experience of camp activities, and providing educational sessions to help children gain skills in self care, teaching them to have control and life skills over their medical condition.
Direct Patient Services: health insurance assistance for premiums, medical expenses, clinic appointments, and living assistance for patients with bleeding disorders, post-secondary scholarships for patients with bleeding disorders and nurse staffing for Providence Alaska Medical Center and treatment center support.
Educational activities: Annual women's retreat, newsletter, annual meeting.
Who funds Alaska Hemophilia Association
Grants from foundations and other nonprofits
Personnel at Alaska Hemophilia Association
| Name | Title | Compensation | Date of data |
|---|
| John Palmatier | Executive Director | $107,520 | 2023-03-27 |
| Matthew Findley | President | $0 | 2022-12-31 |
| Wayne Cobb | Treasurer | $0 | 2022-12-31 |
| Marjorie Allard | Secretary | $0 | 2022-12-31 |
Financials for Alaska Hemophilia Association
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $225,803 | $131,006 | 72.4% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $4,278 | $3,812 | 12.2% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $35,195 | -100% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $24 | -100% |
| Total revenues | $230,081 | $170,037 | 35.3% |
Organizations like Alaska Hemophilia Association
| Organization | Type | Location | Revenue |
|---|
| Hemophilia Foundation of Northern California | 501(c)(3) | Martinez, CA | $515,346 |
| Pacific Northwest Bleeding Disorders | 501(c)(3) | Corvallis, OR | $603,450 |
| Midwest Hemophilia Association | 501(c)(3) | Ozark, MO | $264,464 |
| Down Syndrome Association of Delaware | 501(c)(3) | Middletown, DE | $516,763 |
| Bleeding Disorders Alliance Illinois | 501(c)(3) | Chicago, IL | $448,700 |
| Sickle Cell Association of South Louisiana | 501(c)(3) | Baton Rouge, LA | $328,701 |
| The Hemophilia Association of San Diego County | 501(c)(3) | San Diego, CA | $277,450 |
| Rio Grande Down Syndrome Network | 501(c)(3) | Albuquerque, NM | $221,960 |
| Hemophilia Foundation of Greater Florida | 501(c)(3) | Winter Park, FL | $1,137,139 |
| Sharing Down Syndrome Arizona | 501(c)(3) | Gilbert, AZ | $195,195 |
Data update history
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 15, 2023
Posted financials
Added Form 990 for fiscal year 2022
June 10, 2023
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersCampsDisease-focused nonprofitsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Conducts researchPeer-to-peer fundraisingState / local levelFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- 4100 Lake Otis Pkwy 312
- Anchorage, AK 99508
- Metro area
- Anchorage, AK
- County
- Anchorage Municipality, AK
- Website URL
- alaskahemophilia.com/Â
- Phone
- (907) 343-9232
IRS details
- EIN
- 94-3143226
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1990
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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