ALS Association (ALS)

Patient and community services: The Association is committed to providing fully developed, managed and evaluated programs and services to people living with Als, families, caregivers and professionals across The united states. Programs incorporate The perspectives from key stakeholders including people living with The disease, subject matter experts, clinical best practice, caregivers, technology, academicians and research. Activities address current needs and explore future services, creating a foundation for innovative and advanced program development based on specific community needs and knowledge advancements. Specific activities include 1) developing and implementing clinical and professional education programs based on ongoing needs assessments and best practice; 2) implementing certified care center certification and recertification programs based on nationally-recognized standards of practice, including grants to support centers of excellence; 3) developing strategies and actualizing plans to deliver care through other than certified centers; 4) providing current information, resources and referrals to The communities we serve; and 5) developing and implementing comprehensive, consistent programs and services that address individual, family, and caregiver needs based on 'best practice and available resources.

Public and professional education: The Association's public policy department develops awareness and understanding of Als and The work of The Association among The general public, healthcare professionals, The scientific community, and elected and other government officials. For The year ending january 31, 2023, The Association worked with congress to continue funding for The national Als registry and The Als research program at The department of defense as well as funding for Als research at The national institutes of health. In addition, The advocacy department secured funding from state governments for care and support of people living with Als.

Research programs - The Association funds scientific research grants to doctors/scientists to find The cause and cure of Amyotrophic Lateral Sclerosis (Als).