| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| Drexel University | The Organization Is A Grantor of Two Grants To Drexel University To Perform Als Research. | 2014-06 | $176,173 |
| Barrow Neurological Foundation | To Support Barrow Neurological Institute, A Department of ST. Joseph's Hospital and Medical Center, Which Is in Turn A Division of Catholic Healthcare West. | 2014-06 | $11,396 |
| North East Als Consortium | To Translate Scientific Advances Into New Treatments for People With Amyotrophic Lateral Sclerosis and Motor Neuron Disease As Rapidly As Possible. | 2014-06 | $10,000 |
| ...and 1 more grant made | |||
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| Orange County Community Foundation (OCCF) | 2023-06 | Health and Wellness | $35,000 |
| Fidelity Investments Charitable Gift Fund | 2023-06 | For Grant Recipient's Exempt Purposes | $25,680 |
| American Online Giving Foundation | 2023-03 | General Support | $17,671 |
| ...and 13 more grants received | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Jamey Piggott | Executive Director | $0 | 2023-06-30 |
| Terry Heiman-Patterson | President | $0 | 2024-05-24 |
| Lawrence Corrigan | Vice President | $0 | 2023-06-30 |
| Mike McCool | Treasurer | $0 | 2023-06-30 |
| Debbie Santarpio-Stan Fa | Director | $0 | 2014-06-30 |
| ...and 2 more key personnel | |||
| Revenues | FYE 06/2023 |
|---|---|
| Total grants, contributions, etc. | $694,654 |
| Program services | $0 |
| Investment income and dividends | $643 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $0 |
| Net income from fundraising events | $0 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $0 |
| Total revenues | $695,297 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2023-06 | 2024-05-24 | 990 | View PDF |
| 2022-06 | 2023-05-12 | 990 | View PDF |
| 2021-06 | 2022-07-11 | 990 | View PDF |
| 2020-06 | 2021-04-19 | 990 | View PDF |
| 2019-06 | 2020-08-20 | 990 | View PDF |
| ...and 9 more Form 990s | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| Reflex Sympathetic Dystrophy Syndrome Association of America | 501(c)(3) | Milford, CT | $606,080 |
| Miles for Migraine | 501(c)(3) | Jericho, VT | $1,647,652 |
| Lupus Foundation of America DC / MD / VA Chapter | 501(c)(3) | Washington, DC | $761,790 |
| Lupus Foundation of New England | 501(c)(3) | Worcester, MA | $220,303 |
| Fabry Support and Information Group (FSIG) | 501(c)(3) | Concordia, MO | $680,471 |
| The Als Association - Arizona Chapter | 501(c)(3) | Phoenix, AZ | $1,372,285 |
| Epilepsy Services of New Jersey A NJ Nonprofit Corporation | 501(c)(3) | East Windsor, NJ | $709,913 |
| Epilepsy Association | 501(c)(3) | Orlando, FL | $813,501 |
| Cure JM Foundation | 501(c)(3) | Leesburg, VA | $2,243,763 |
| Spina Bifida Association of Kentucky | 501(c)(3) | Louisville, KY | $277,959 |
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