Program areas at Alternating Hemiplegia of Childhood Foundation
Grant given to Dr. Alfred L. George, Jr at the Northwestern University to determine if molecular mechanisms underlying ATP1A3-associated neurological disorders are amenable to antisense oligonucleotide therapeutic strategies. This research also aims to demonstrate the electrophysiological effects of antisense-oligonucleotide (ASO) directed knock down of ATP1A3 in human neurons.
The AHCF contributed to research at Brown University lead by Anne Hart that developed C. elegans AHC ATP1A3 models. Aim 1 of the project generated custom C. elegans lines using CRISPR-Cas9-based genome editing of the C. elegans ATP1A3, called eat-6, to create AHC models and controls for three patient alleles: D801N, E815K, and L839P. Aim 2 examined the consequences of inserting these patient missense alleles using multiple assessments of eat-6 function: hatch/growth, NMJ sensitivity to aldicarb, egg laying, and pharyngeal pumping rates. Here, provide a summary of results, along with a set of four Supplementary Files that contain additional analysis, figures and raw data.
Contribute to the purchase of a specialized Microscope for Dr Kathy Sweadner's use in AHC-related projects at Mass General Research Institute
Grants made by Alternating Hemiplegia of Childhood Foundation
| Grantee | Grant description | Grant year | Amount |
|---|
| Brown University | Medical Research | 2024-06 | $11,822 |
Who funds Alternating Hemiplegia of Childhood Foundation
Grants from foundations and other nonprofits
Personnel at Alternating Hemiplegia of Childhood Foundation
| Name | Title | Compensation | Date of data |
|---|
| Vicky Platt | Vice President of Research | $0 | 2023-06-30 |
| Gene Andrasco | Treasurer | $0 | 2023-11-13 |
| Stephen Henderson | Secretary | $0 | 2023-06-30 |
| April Hawk | Vice - President of Education and Family Support | $0 | 2023-06-30 |
| Joshua Marszalek | President | $0 | 2023-06-30 |
| ...and 2 more key personnel |
Financials for Alternating Hemiplegia of Childhood Foundation
| Revenues | FYE 06/2024 | FYE 06/2023 | % Change |
|---|
| Total grants, contributions, etc. | $197,687 | $115,270 | 71.5% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $38,367 | $41,428 | -7.4% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $83,701 | $185,279 | -54.8% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $3,508 | $8,020 | -56.3% |
| Total revenues | $323,263 | $349,997 | -7.6% |
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Data update history
January 23, 2024
Posted financials
Added Form 990 for fiscal year 2023
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 14, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Operates donor advised fundsProvides grantsConducts researchFundraising eventsPeer-to-peer fundraisingCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donationsNo full-time employeesAccepts online donations
General information
- Address
- 2000 Town Ctr Suite 1900
- Southfield, MI 48075
- Metro area
- Detroit-Warren-Dearborn, MI
- County
- Oakland County, MI
- Website URL
- ahckids.org/Â
IRS details
- EIN
- 38-3225425
- Fiscal year end
- June
- Taxreturn type
- Form 990
- Year formed
- 1995
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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