Program areas at Alzheimers Disease Data Initiative
Development and testing of the ad workbench, which will systematize and classify the body of scientific knowledge related to alzheimer'Alzheimers's Disease and related dementias in order to present it in a useful form. The ad workbench has permissioned access to 64 datasets; it will allow researchers to more easily utilize this Data and provide resources and tools at no cost to the researchers.
Communications and external engagement regarding the importance of ad research and the Data sources, resources and methodologies.
Use of the ad workbench and related activity to conduct ad research and support others' research by providing a Data sharing tools and resources. Appoximately 4,438 alzheimer'Alzheimers's and related dementia researchers from 114 countries have registered for an account to use the ad workbench to discover, access, and analyze alzheimer'Alzheimers's Disease and related dementias datasets. Approximately 1,362 workspaces have been commissioned, and 534 requests made to access datasets on the ad workbench.
Grants made by Alzheimers Disease Data Initiative
| Grantee | Grant description | Grant year | Amount |
|---|
| Trustees of Boston University | To Support Data Analysis and Other Research Conducted As Well As the Framingham Heart Study Project (for Accelerating Discovery for Ad Treatment and Prevention Through A Novel Data Accessibility Strategy) | 2023-12 | $365,766 |
| Banner Health | To Support Activities To Make the Anonymized Api Generation Datasets Available To the Scientific Community Via the Laboratory of Neuroimaging (Loni) | 2023-12 | $295,500 |
| Answer Als | To Support the Answer Als/addi Interoperability Project | 2023-12 | $150,000 |
| ...and 3 more grants made |
Who funds Alzheimers Disease Data Initiative
Grants from foundations and other nonprofits
Personnel at Alzheimers Disease Data Initiative
| Name | Title | Compensation | Date of data |
|---|
| Tetsuyuki Maruyama | Executive Director | $0 | 2023-12-31 |
| Shirley Prasad | Director of Policy, Advocacy and Communications | | 2023-08-03 |
| Mukta Phatak | Director , Data Science | | 2024-02-22 |
| Manny McBride | Director, Strategy Planning | | 2024-02-22 |
| Matthew Clement | Director , Scientific Strategy | | 2024-02-22 |
| ...and 9 more key personnel |
Financials for Alzheimers Disease Data Initiative
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $12,920,879 | $1,651,341 | 682.4% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $149,231 | $4,015 | 3616.8% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $-106,822 | $0 | -999% |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $12,963,288 | $1,655,356 | 683.1% |
Organizations like Alzheimers Disease Data Initiative
| Organization | Type | Location | Revenue |
|---|
| UsAgainstAlzheimer's | 501(c)(3) | Washington, DC | $8,535,403 |
| Davos Alzheimer's Collaborative | 501(c)(3) | Wayne, PA | $8,484,685 |
| CaringKind | 501(c)(3) | New York, NY | $5,564,426 |
| Dementia Society of America | 501(c)(3) | Doylestown, PA | $4,552,772 |
| National Comprehensive Cancer Network (NCCN) | 501(c)(3) | Plymouth Meeting, PA | $52,064,807 |
| Alzheimer's Foundation of America (AFA) | 501(c)(3) | New York, NY | $16,996,010 |
| Livewell Alliance | 501(c)(3) | Plantsville, CT | $15,969,469 |
| Alzheimer's Los Angeles | 501(c)(3) | Los Angeles, CA | $6,665,941 |
| Alzheimer's Orange County | 501(c)(3) | Irvine, CA | $11,719,206 |
| Global Alzheimer's Platform Foundation | 501(c)(3) | Washington, DC | $11,462,253 |
Data update history
January 9, 2025
Posted financials
Added Form 990 for fiscal year 2023
January 3, 2025
Used new vendors
Identified 1 new vendor, including
February 22, 2024
Updated personnel
Identified 21 new personnel
January 22, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 1, 2024
Used new vendors
Identified 3 new vendors, including , , and
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disordersPublic policy
Characteristics
Conducts researchPartially liquidatedOperates internationallyTax deductible donationsNo full-time employeesAccepts online donations
General information
- Address
- 4110 Carillon Point
- Kirkland, WA 98033
- Metro area
- Seattle-Tacoma-Bellevue, WA
- County
- King County, WA
- Website URL
- alzheimersdata.org/Â
- Phone
- (425) 497-4300
IRS details
- EIN
- 85-3776266
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2020
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G83: Alzheimers Disease
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Central organization
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