EIN 13-1962771

American Parkinson Disease Association (APDA)

IRS 501(c) type
501(c)(3)
Num. employees
46
Year formed
1961
Most recent tax filings
2023-08-01
Description
The American Parkinson's Disease Association was founded in 1961 to "ease the burden and find a cure" for Parkinson's disease. The organization focuses its energies on research, patient support, education and raising public awareness of the disease.
Total revenues
$12,931,965
2023
Total expenses
$15,357,104
2023
Total assets
$23,456,567
2023
Num. employees
46
2023

Program areas at APDA

Public awareness - apda currently provides (on-line and in print) more than 56 free educational publications, 34 in english, 19 in spanish, and 3 in simplified chinese to address medical and social aspects of the diagnosis, treatment, and care of people with Parkinson Disease. These publications and additional information distributed through apda's 15 chapters (13 of which are fully active), 12 information & referral centers, extensive website, and "800" telephone helpline. Apda also raises awareness through television public service announcement (psa) campaigns entitled "live with optimism," "look closer, and "mira mas de cerca" that have aired nationwide since 2015. Approximately 240,000 newsletters are mailed annually, and additional 420,000 sent via email. Contributed services include donated media (television and radio broadcasting and other forms of media, including public service announcements) valued at approximately $18,664,875 for the year ended august 31, 2023 and $2,670,800 for the year ended august 31, 2022. The fair value of the donated media is determined based on consideration of cash payments typically made by buyers for similar advertising and media, standard discounts given for similarly placed media, the media type and placement and other considerations. Apda does not recognize any revenue or expense from services contributed by volunteers because it does not meet the criteria for recognition under fasb asc 958, not-for-profit entities.
Research - apda proudly invests in eight centers for advanced research and supports grants to fund the most promising science focused on discovering the cause(s) and finding the cure for Parkinson's Disease. Since its founding in 1961, apda has been a funding partner in many of the major pd scientific breakthroughs.
Patient services and educational programs - apda aims to support every person and every family impacted by parkinson's. Through its nationwide system of chapters and information & referral (i&r) centers, apda uniquely delivers education, support and patient services to anyone with Parkinson's and their families each day. 12 information and referral centers are grant funded. Apda conducted 25 national patient education webinars/virtual education on topics that address the symptoms, treatments, and challenges of living with Parkinson's Disease and has reached over 113,000 individuals/unique views. Apda offered 30 national support group programs "press", Parkinson's roadmap for educaton and support services, in 23 markets.

Grants made by APDA

GranteeGrant descriptionAmount
University of PittsburghMedical Research - Advanced Centers$172,398
Emory UniversityMedical Research - Advanced Centers$105,000
Washington University in St. Louis (Wash. U)Medical Research$105,000
...and 43 more grants made totalling $2,331,421

Who funds American Parkinson Disease Association (APDA)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Parkinsons Unity WalkResearch and Awareness Activities Relating To Parkinson's Disease$212,500
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$135,999
American Online Giving FoundationGeneral Support$108,429
...and 128 more grants received totalling $1,251,780

Personnel at APDA

NameTitleCompensation
Leslie ChambersPresident and Chief Executive Officer$294,310
Michelle McDonaldChief Operations Officer$171,161
Rebecca GilbertChief Mission Officer$196,117
Chris SaliccoVice President Finance and Administration$118,940
Eloise CaggianoVice President Development and Marketing and Communications$153,041
...and 11 more key personnel

Financials for APDA

RevenuesFYE 08/2023
Total grants, contributions, etc.$13,177,640
Program services$0
Investment income and dividends$202,526
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$33,172
Net gain from sale of non-inventory assets$-165,272
Net income from fundraising events$-374,283
Net income from gaming activities$27,088
Net income from sales of inventory$0
Miscellaneous revenues$31,094
Total revenues$12,931,965

Form 990s for APDA

Fiscal year endingDate received by IRSFormPDF link
2023-082024-03-29990View PDF
2022-082023-03-29990View PDF
2021-082022-06-03990View PDF
2020-082021-04-14990View PDF
2019-082020-10-24990View PDF
...and 9 more Form 990s
Data update history
August 25, 2024
Received grants
Identified 23 new grant, including a grant for $108,429 from American Online Giving Foundation
May 21, 2024
Posted financials
Added Form 990 for fiscal year 2023
May 20, 2024
Updated personnel
Identified 2 new personnel
May 18, 2024
Received grants
Identified 1 new grant, including a grant for $5,628 from Jewish Communal Fund
January 2, 2024
Received grants
Identified 21 new grant, including a grant for $52,950 from National Christian Foundation / Natl Christian Charitable FDN Inc
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingGrassroots organizingOperates internationallyNational levelEndowed supportCommunity engagement / volunteeringGala fundraisersFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
2562 Hylan Blvd 61420
Staten Island, NY 10306
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
Richmond County, NY
Website URL
apdaparkinson.org/ 
Phone
(800) 223-2732
Facebook page
APDA.INC 
Twitter profile
@apdaparkinsons 
IRS details
EIN
13-1962771
Fiscal year end
August
Taxreturn type
Form 990
Year formed
1961
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
063671
FTB Entity ID
1672668
AB 488 data last updated ("as-of") date
2024-11-06
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