Program areas at American Syringomyelia and Chiari Alliance Project
ASAP works toward accomplishing its mission by providing Support and Education, Increasing awareness, early identification of patients and understanding of symptoms, cause and management of the disorders. We accomplish this through newsletters, website, annual medical conference, support group meetings, and webinars.
ASAP works toward accomplishing its mission by funding research. ASAPs goals include increasing public awareness of the existence of the disorder and its devastating effects financially supporting research efforts and raising funds to find all causes, to develop new treatments and to improve existing treatments coordinating the efforts of organizations working towards improving the lives of people with Syringomyelia and/or Chiari
Who funds American Syringomyelia and Chiari Alliance Project
Grants from foundations and other nonprofits
Personnel at American Syringomyelia and Chiari Alliance Project
| Name | Title | Compensation | Date of data |
|---|
| Patrice Schaublin | Executive Director | $65,984 | 2024-10-16 |
| Patricia Maxwell | Operations Director and Newsletter Editor | | 2024-10-16 |
| Jamie Mayhan | Program Director | | 2024-10-16 |
| Annie Chapman | Treasurer | $0 | 2024-03-28 |
| Eric Berning | President | $0 | 2023-05-31 |
| ...and 4 more key personnel |
Financials for American Syringomyelia and Chiari Alliance Project
| Revenues | FYE 05/2023 | FYE 05/2022 | % Change |
|---|
| Total grants, contributions, etc. | $181,216 | $156,128 | 16.1% |
| Program services | $5,158 | $0 | 999% |
| Investment income and dividends | $28,638 | $-17,894 | 260% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $684,848 | $1,065,799 | -35.7% |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $-12,465 | $7,012 | -277.8% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $245 | $344 | -28.8% |
| Miscellaneous revenues | $0 | $349 | -100% |
| Total revenues | $887,640 | $1,211,738 | -26.7% |
Organizations like American Syringomyelia and Chiari Alliance Project
| Organization | Type | Location | Revenue |
|---|
| CurePSP | 501(c)(3) | New York, NY | $3,308,947 |
| International Foundation for Gastrointestinal Disorders | 501(c)(3) | MT Pleasant, SC | $745,241 |
| Alzheimer's Disease Resource Center (ADRC) | 501(c)(3) | East Islip, NY | $593,639 |
| Alzheimer's Tennessee | 501(c)(3) | Knoxville, TN | $1,907,887 |
| Epilepsy Foundation of Greater Los Angel | 501(c)(3) | Los Angeles, CA | $1,736,089 |
| The Clearity Foundation | 501(c)(3) | San Diego, CA | $2,411,926 |
| Hilarity for Charity (HFC) | 501(c)(3) | Beverly Hills, CA | $2,853,252 |
| Reel Recovery | 501(c)(3) | Needham, MA | $701,254 |
| Brain Injury Association of Michigan | 501(c)(3) | Brighton, MI | $755,460 |
| Foundation for Hearing and Speech Resources | 501(c)(3) | Chicago, IL | $299,092 |
Data update history
May 20, 2024
Updated personnel
Identified 1 new personnel
June 17, 2023
Posted financials
Added Form 990 for fiscal year 2022
June 15, 2023
Updated personnel
Identified 2 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersProfessional associationsDisease-focused nonprofitsCharities
Issues
HealthDiseases and disordersMedical disciplines
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingNational levelAuction fundraisersFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- PO Box 1586
- Longview, TX 75606
- Metro area
- Longview, TX
- County
- Gregg County, TX
- Website URL
- asap.org/Â
- Phone
- (903) 236-7079
IRS details
- EIN
- 75-2245195
- Fiscal year end
- May
- Taxreturn type
- Form 990
- Year formed
- 1988
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G90: Medical Disciplines
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current
- FTB status revoked
- Not revoked
- AG Registration Number
- 110178
- FTB Entity ID
- AB 488 data last updated ("as-of") date
- 2024-10-16
Free account sign-up
Want updates when American Syringomyelia and Chiari Alliance Project has new information, or want to find more organizations like American Syringomyelia and Chiari Alliance Project?
Create free Cause IQ account