Program areas at ATHN
Cdc surveillance - this center for disease control cooperative agreement funds the community counts cdc public health surveillance project to create a uniform set of demographic and health services utilization data characterizing the population with bleeding and clotting disorders and to monitor health indicators of these populations. Community counts consists of three parts, htc population profile, mortality reporting, and the registry for bleeding disorders surveillance. More than 122,809 patients are involved in the cdc surveillance project.
Hrsa mchb - this national hemophilia program is a cooperative agreement which funds the first national hemophilia program coordinating center. The project creates a national Network to optimize the care for patients with bleeding and thrombotic disorders over their lifetime and across generations and extends athn's leadership from the htcs and regions to a broader group of stakeholders such as professional organizations, patient advocacy groups, payers, and government partners.
Athn systems - this program comprises the software systems and capabilities required as a steward of a secure national database used to support clinical outcomes analysis, research, and public health with reporting by over 140 treatment centers, government entities, and researchers.
Data quality counts
Cdc covid vte program
Athn research prgorams
Who funds American Thrombosis and Hemostasis Network (ATHN)
Grants from foundations and other nonprofits
Personnel at ATHN
Name | Title | Compensation | Date of data |
---|
Crystal Watson | Chief Executive Officer | $323,881 | 2023-11-14 |
Moses Miles | Chief Operating Officer | $287,345 | 2023-07-26 |
Michael Niekamp | Chief Financial Officer | $128,413 | 2023-07-26 |
Tami Singleton | Chief Science Officer | | 2023-07-26 |
Linda Magliocco | Vice President , Finance and Administration | $214,936 | 2023-07-26 |
...and 9 more key personnel |
Financials for ATHN
Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
---|
Total grants, contributions, etc. | $13,465,526 | $13,254,943 | 1.6% |
Program services | $0 | $0 | - |
Investment income and dividends | $101,383 | $94,766 | 7% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $0 | $0 | - |
Net income from fundraising events | $0 | $0 | - |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $28,311 | $14,831 | 90.9% |
Total revenues | $13,595,220 | $13,364,540 | 1.7% |
Organizations like ATHN
Organization | Type | Location | Revenue |
---|
COPD Foundation | 501(c)(3) | Miami, FL | $7,966,723 |
The Marfan Foundation | 501(c)(3) | Port Washington, NY | $8,195,380 |
AIDS United | 501(c)(3) | Washington, DC | $16,299,347 |
Hyacinth Aids Foundation | 501(c)(3) | New Brunswick, NJ | $11,442,994 |
National Society to Prevent Blindness / Prevent Blindness America | 501(c)(3) | Chicago, IL | $5,068,074 |
American Epilepsy Society (AES) | 501(c)(3) | Chicago, IL | $10,000,415 |
Hemophilia of Georgia (HoG) | 501(c)(3) | Sandy Springs, GA | $28,674,349 |
Epilepsy Foundation New England | 501(c)(3) | Lowell, MA | $6,573,455 |
National Psoriasis Foundation | 501(c)(3) | Alexandria, VA | $11,591,439 |
Minnesota Brain Injury Alliance | 501(c)(3) | Roseville, MN | $5,203,664 |
Data update history
January 4, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 3, 2024
Updated personnel
Identified 3 new personnel
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 26, 2023
Updated personnel
Identified 3 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyProvides grantsConducts researchReceives government fundingTax deductible donations
General information
- Address
- 67 Red Rock Cir
- Rochester, NY 14626
- Metro area
- Rochester, NY
- County
- Monroe County, NY
- Phone
- (800) 360-2846
IRS details
- EIN
- 20-5244339
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2006
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G43: Heart and Circulatory System Diseases, Disorders
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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