Program areas at Arizona Bleeding Disorders
Community education - promote community awareness through various conferences and other media:1. Virtual north american camping conference for Hemophilia organizations - annual conference for 200 national and international attendees to promote and enhance the summer camp experience of childern with Bleeding disorders.2. Virtual annual statewide educational symposium - brings together those with Bleeding Disorders and their families from across the state to provide education to help them better manage this chronic condition.3. Conducted an advocacy summit conference via zoom to promote awareness within the Bleeding disorder community and the general public.4. Conducted a virtual hispanic heritage day with the hispanic population affected by Bleeding Disorders to educate and support their unique struggles in their native language.5. Conducted a (now) conference (national educational conference for individuals and families who are living with vonwillebrands).
Family assistance - provide emergency and temporary financial assistance to Hemophilia patients and their families. Lifeline- provides assistance for medical bills, insurance premiums and cobra payment assistance for the community.
Community support programs - provide education and support group meetings including:1. Quarterly meetings for the community as a whole that include education, pharmaceutical information, and time for interaction.2. Educational meetings that included: a. Learning to disclose your Bleeding disorder in a safe way. B. Understanding insurance and options available to our community. C. how to interact with legislators to promote insurance reform. D. nutrition and exercise - how to improve quality of life. E. mental health - how to improve quality of life. F. educational meetings for spanish-speaking community. G. on-going program for at-risk youth.3. Youth camps:
Health center - ongoing costs related to the managment of medical records and patient accounts. The program was discontinued in september 2021 and the buidling was subsequently sold.
Who funds Arizona Bleeding Disorders
Grants from foundations and other nonprofits
Personnel at Arizona Bleeding Disorders
Name | Title | Compensation | Date of data |
---|
Leigh Goldstein | Executive Director | $114,290 | 2024-10-01 |
Chelsea Guffy | Programs and Fundraising Director | $0 | 2024-10-01 |
Haydee Guevara | Member Services and Operations Manager | | 2024-10-01 |
Melissa Suzarrey | Community Outreach Manager | | 2024-10-01 |
Vickie Parra | Camp Programs and Conferences Manager | | 2024-10-01 |
...and 10 more key personnel |
Financials for Arizona Bleeding Disorders
Revenues | FYE 06/2023 | FYE 06/2022 | % Change |
---|
Total grants, contributions, etc. | $1,218,753 | $733,239 | 66.2% |
Program services | $12,483 | $11,823 | 5.6% |
Investment income and dividends | $360,608 | $75,284 | 379% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $7,878 | $-10,970 | 171.8% |
Net gain from sale of non-inventory assets | $0 | $321,178 | -100% |
Net income from fundraising events | $-6,517 | $5,208 | -225.1% |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $966 | $0 | 999% |
Total revenues | $1,594,171 | $1,135,762 | 40.4% |
Organizations like Arizona Bleeding Disorders
Organization | Type | Location | Revenue |
---|
Conquering CHD | 501(c)(3) | Middleton, WI | $645,405 |
Preeclampsia Foundation | 501(c)(3) | Melbourne, FL | $2,164,264 |
Platelet Disorder Support Association | 501(c)(3) | Brecksville, OH | $2,330,983 |
The Children's Heart Foundation | 501(c)(3) | Northbrook, IL | $3,378,951 |
Western Pennsylvania Bleeding | 501(c)(3) | Beaver, PA | $548,858 |
American Stroke Foundation | 501(c)(3) | Overland Park, KS | $737,258 |
Frannie Peabody Center (FPC) | 501(c)(3) | Portland, ME | $2,570,980 |
Pacific Northwest Bleeding Disorders | 501(c)(3) | Corvallis, OR | $603,450 |
Lone Star Bleeding Disorders Foundation | 501(c)(3) | Houston, TX | $663,733 |
The ALS Association - ALS Association of Georgia | 501(c)(3) | Sandy Springs, GA | $1,402,242 |
Data update history
October 1, 2024
Updated personnel
Identified 1 new personnel
June 6, 2024
Posted financials
Added Form 990 for fiscal year 2023
May 23, 2024
Updated personnel
Identified 4 new personnel
April 3, 2024
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingState / local levelFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- 826 N 5th Ave
- Phoenix, AZ 85003
- Metro area
- Phoenix-Mesa-Chandler, AZ
- County
- Maricopa County, AZ
- Website URL
- arizonahemophilia.org/Â
- Phone
- (602) 955-3947
IRS details
- EIN
- 86-0209257
- Fiscal year end
- June
- Taxreturn type
- Form 990
- Year formed
- 1967
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G43: Heart and Circulatory System Diseases, Disorders
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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