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EIN 46-2133007

Association for Creatine Deficiencies

IRS 501(c) type
501(c)(3)
Num. employees
4
City
Carlsbad
State
California
Year formed
2012
Most recent tax filings
2023-12-01
NTEE code, primary
G80: Specifically Named Diseases
Description
Charitable corporation promoting research to improve CCDS diagnosis and treatment; providing updated information, patient support, and public awareness campaigns.
Total revenues
$588,192
2023
Total expenses
$602,613
2023
Total assets
$674,679
2023
Num. employees
4
2023

Program areas at Association for Creatine Deficiencies

Providing accurate and up to date information through attendance at Medical & Scientific conferences, maintaining informational website, hosting CCDS conference and distributing recordings of talks to accelerate knowledge of creatine deficiencies and related research. Advocating for increased adoption of newborn screening. Supporting CCDS caregivers with webinars, opportunities to engage with researchers, and a structured virtual support group.Supporting research through fellowship grants and maintenance of a patient registry and natural history platform. Co-supporting research and patient communities through joint webinars, quarterly newsletters, online resources, etc.

Grants made by Association for Creatine Deficiencies

GranteeAmount
University of Utah$140,000
Uplifting Athletes$10,000

Who funds Association for Creatine Deficiencies

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Silicon Valley Community Foundation (SVCF)Health$150,000
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$24,600
American Online Giving FoundationGeneral Support$24,367
...and 6 more grants received

Personnel at Association for Creatine Deficiencies

NameTitleCompensation
Heidi WallisExecutive Director$91,346
Daniel CollerVice Board Chai$0
Kim TuminelloDirector of Advocacy$0
Randy AllenDirector of Fundraising$0
Celeste GrahamDirector of Education$0
...and 3 more key personnel

Financials for Association for Creatine Deficiencies

RevenuesFYE 12/2023
Total grants, contributions, etc.$574,134
Program services$5,000
Investment income and dividends$2,487
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$6,571
Total revenues$588,192

Form 990s for Association for Creatine Deficiencies

Fiscal year endingDate received by IRSFormPDF link
2023-122024-10-15990View PDF
2022-122023-10-23990View PDF
2021-122022-11-03990View PDF
2020-122022-03-01990View PDF
2019-122021-05-19990EZView PDF
...and 6 more Form 990s

Organizations like Association for Creatine Deficiencies

OrganizationLocationRevenue
National MPS SocietyDurham, NC$2,296,659
Fidec CorporationMiami, FL$337,536
The Amyloidosis FoundationClarkston, MI$710,435
Hope 4 HarperCarrollton, TX$440,256
CDA FoundationLafayette, CO$884,663
Nbia Disorders AssociationCypress, TX$532,494
PC ProjectHolladay, UT$654,819
Wylder Nation FoundationScottsdale, AZ$550,698
HHV-6 FoundationSanta Barbara, CA$176,939
The FamilieSCN2A FoundationGettysburg, PA$1,486,870
Data update history
October 21, 2024
Received grants
Identified 1 new grant, including a grant for $1,052 from Skyward Specialty Insurance Foundation
May 18, 2024
Received grants
Identified 3 new grant, including a grant for $24,367 from American Online Giving Foundation
December 24, 2023
Received grants
Identified 1 new grant, including a grant for $150,000 from Silicon Valley Community Foundation (SVCF)
November 27, 2023
Posted financials
Added Form 990 for fiscal year 2022
July 14, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsOperates internationallyTax deductible donationsAccepts online donations
General information
Address
6965 El Camino Real 105-598
Carlsbad, CA 92009
Metro area
San Diego-Chula Vista-Carlsbad, CA
County
San Diego County, CA
Website URL
creatineinfo.org/ 
Phone
(601) 942-2373
IRS details
EIN
46-2133007
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2012
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current - Awaiting Reporting
FTB status revoked
Not revoked
AG Registration Number
CT0278126
FTB Entity ID
4173101
AB 488 data last updated ("as-of") date
2024-11-20
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