EIN 04-3833868

AutismUp

IRS 501(c) type
501(c)(3)
Num. employees
100
Year formed
2005
Most recent tax filings
2023-12-01
NTEE code, primary
Description
AutismUp expands and enhances opportunities to improve quality of life for individuals with Autism Spectrum Disorder and their families. It offers a growing list of support programs, educational opportunities, and family gatherings in the greater Rochester area. AutismUp's Direct Programming helps individuals develop skills by moving from interest areas to more functional application of those skills. More than two dozen programs are offered throughout the year.
Also known as...
Upstate New York Families for Effective Autism Treatment
Total revenues
$2,050,372
2023
20192020202120222023$0$2m
Total expenses
$2,037,648
2023
20192020202120222023$0$2m
Total assets
$2,036,866
2023
20192020202120222023$1m$1.8m
Num. employees
100
2023
20192020202120222023050100

Program areas at AutismUp

AutismUps Direct Programming looks at the whole individual. We are creating a model where individuals move from interest areas to developed skills into more functional application of the skills. Included in this area are about three dozen programs offered during the year. These programs primarily focus on social skill development, adult readiness, sensory integration, fitness and emotional support. Given the pandemic, we began to offer a variety of virtual classes that allowed people to continue to be engaged. It also allowed us to expand the territory that we reach new participants.
AutismUp strives to support all individuals and their families in the greater Rochester area who are impacted by Autism Spectrum Disorder. We offer a growing list of support programs, educational opportunities and family gatherings as a way to help our member families improve their ability to support one another and their quality of life. The development of our Cycle of Support model is a key component of this area. This model includes several Family Navigators located at the Golisano Autism Center, one of whom is bilingual.We seek to improve our communitys ability to support and to include individuals with Autism Spectrum Disorder and their caregivers. This area includes our advocacy initiatives, collaboration with other agencies and community training opportunities.
In 2020 we embarked on our new frontier of direct programming with the creation of the Center for Community Transition. At the heart of this person-centered approach to skill building for adults is the Full Life Academy. We are offering about two dozen classes to individuals who have exited the school system and transitioned to adult services. Our modern approach and collaborative efforts with businesses in our community provides our participants with unique opportunities to further build skills and increase their independence.

Who funds AutismUp

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Max and Marian Farash Charitable FoundationCharitable Purpose$20,000
Rochester Area Community Foundation (RACF)For Summer Programs$18,000
United Way of Greater Rochester and the Finger LakesDonor Designations$17,984
...and 11 more grants received

Personnel at AutismUp

NameTitleCompensation
Sarah MilkoChief Executive Officer$15,000
Christina HiltonChief Financial Officer
Lisa PonticelloChief Marketing Officer
Jeff LydonChief Program Officer
Jeanne RiciglianoCommunity Transition Director
...and 6 more key personnel

Financials for AutismUp

RevenuesFYE 12/2023
Total grants, contributions, etc.$392,008
Program services$1,448,605
Investment income and dividends$9,496
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$200,263
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$2,050,372

Form 990s for AutismUp

Fiscal year endingDate received by IRSFormPDF link
2023-122024-10-22990View PDF
2022-122023-11-15990View PDF
2021-122022-11-03990View PDF
2020-122021-11-10990View PDF
2019-122021-04-02990View PDF
...and 10 more Form 990s
Data update history
December 2, 2024
Posted financials
Added Form 990 for fiscal year 2023
October 25, 2024
Updated personnel
Identified 10 new personnel
October 22, 2024
Received grants
Identified 1 new grant, including a grant for $1,850 from Ames-Amzalak Memorial Trust
July 14, 2024
Received grants
Identified 4 new grant, including a grant for $18,000 from Rochester Area Community Foundation (RACF)
January 15, 2024
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disordersAutism
Characteristics
Political advocacyConducts researchFundraising eventsPeer-to-peer fundraisingState / local levelReceives government fundingProvides scholarshipsGala fundraisersTax deductible donationsAccepts online donations
General information
Address
50 Science Pkwy
Rochester, NY 14620
Metro area
Rochester, NY
County
Monroe County, NY
Website URL
autismup.org/ 
Phone
(585) 248-9011
IRS details
EIN
04-3833868
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2005
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G84: Autism
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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