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EIN 46-3343666

Bardet Biedl Syndrome Foundation

IRS 501(c) type
501(c)(3)
Num. employees
0
City
West Chester
State
Pennsylvania
Year formed
2014
Most recent tax filings
2023-07-01
NTEE code, primary
G20: Birth Defects and Genetic Diseases
Description
The Bardet Biedl Syndrome Foundation funds research for Bardet Biedl Syndrome through programs such as providing grants to the Marshfield Clinic Research Institute to support their CRIBBS registry and organizing conferences and marketing expenses.
Total revenues
$372,565
2023
Total expenses
$172,225
2023
Total assets
$415,865
2023
Num. employees
0
2023

Program areas at Bardet Biedl Syndrome Foundation

Grants to Marshfield Clinic Research Institute to support their CRIBBS registry.
Conferences and Marketing Expenses
Fundraising
Contract services
Accounting fees

Grants made by Bardet Biedl Syndrome Foundation

GranteeGrant descriptionAmount
Marshfield Clinic Health System FoundationFunding Support of the Clinical Registry Investigating Bardet Biedl Syndrome$100,000

Who funds Bardet Biedl Syndrome Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Network for GoodUnrestricted$6,265
AmazonSmile FoundationGeneral Support$1,148
The David O and Martha G Campbell Family FoundationTo Further Charitable Purpose$1,000
...and 1 more grant received

Personnel at Bardet Biedl Syndrome Foundation

NameTitleCompensation
Nathan ArnesenTreasurer$0

Financials for Bardet Biedl Syndrome Foundation

RevenuesFYE 07/2023
Total grants, contributions, etc.$372,549
Program services$0
Investment income and dividends$16
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$372,565

Form 990s for Bardet Biedl Syndrome Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-072023-12-04990View PDF
2022-072022-12-13990EZView PDF
2021-072021-12-12990EZView PDF
2020-072021-11-17990EZView PDF
Data update history
February 6, 2024
Posted financials
Added Form 990 for fiscal year 2023
January 2, 2024
Received grants
Identified 1 new grant, including a grant for $1,148 from AmazonSmile Foundation
July 16, 2023
Posted financials
Added Form 990EZ for fiscal year 2022
June 29, 2023
Posted financials
Added Form 990EZ for fiscal year 2021
June 28, 2023
Updated personnel
Identified 2 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchPartially liquidatedFundraising eventsPeer-to-peer fundraisingFundraising races, competitions, and tournamentsTax deductible donationsNo full-time employees
General information
Address
403 Oermead LN
West Chester, PA 19380
Metro area
Philadelphia-Camden-Wilmington, PA-NJ-DE-MD
County
Chester County, PA
Website URL
bardetbiedl.org/ 
Phone
(801) 850-3750
IRS details
EIN
46-3343666
Fiscal year end
July
Taxreturn type
Form 990
Year formed
2014
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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