1. Directory
  2. Texas
  3. Austin
  4. Beyond Batten Disease Foundation
EIN 26-3223661

Beyond Batten Disease Foundation

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Austin
State
Texas
Year formed
2008
Most recent tax filings
2023-06-01
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
Description
The Beyond Batten Disease Foundation aims to eradicate Juvenile Batten Disease by raising awareness and funds for research. They accelerate the discovery and development of medicines through granting funds and contracting services with academic institutions, biotechnology companies, and other organizations.
Total revenues
$1,028,636
2023
Total expenses
$1,036,148
2023
Total assets
$3,231,365
2023
Num. employees
0
2023

Program areas at Beyond Batten Disease Foundation

To accelerate the discovery and development of medicines to prevent, treat and cure juvenile Batten Disease. This is done through granting funds and contracting services with academic institutions, biotechnology companies, and other organizations with the capacity to assist in achieving our goals. The Foundation also spearheads the development of think-tank conferences and unique partnerships to drive juvenile Batten Disease research.

Grants made by Beyond Batten Disease Foundation

GranteeGrant descriptionAmount
Care Beyond DiagnosisGrant$25,000

Who funds Beyond Batten Disease Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Brian Duensing FoundationTo Provide Financial Assistance To Drive Research Into Batten Disease.$30,000
The Admirals Club of AustinGeneral Support$12,000
Paul B Hunter and Constance D Hunter Charitable FoundationBatten'battens's Disease Research$10,000
...and 7 more grants received

Personnel at Beyond Batten Disease Foundation

NameTitleCompensation
Mary Beth KiserPresident and Chief Executive Officer$0
Emily ArmstrongCommunications Manager
Emily LancasterDevelopment Manager
T Craig BensonBoard Chair / Director$0
Danielle KerkovichScientific Consultant / Scientific Officer$7,800

Financials for Beyond Batten Disease Foundation

RevenuesFYE 06/2023
Total grants, contributions, etc.$283,680
Program services$0
Investment income and dividends$36,334
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$325,063
Net income from fundraising events$41,518
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$342,041
Total revenues$1,028,636

Form 990s for Beyond Batten Disease Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-062024-05-14990View PDF
2022-062023-05-15990View PDF
2021-062022-04-29990View PDF
2020-062021-04-14990View PDF
2019-062020-10-06990View PDF
...and 9 more Form 990s
Data update history
July 23, 2024
Received grants
Identified 3 new grant, including a grant for $12,000 from The Admirals Club of Austin
July 18, 2024
Posted financials
Added Form 990 for fiscal year 2023
July 10, 2024
Received grants
Identified 2 new grant, including a grant for $10,000 from Paul B Hunter and Constance D Hunter Charitable Foundation
January 2, 2024
Received grants
Identified 1 new grant, including a grant for $5,000 from The Hillcrest Foundation
December 25, 2023
Received grants
Identified 3 new grant, including a grant for $10,194 from PayPal Giving Fund
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Operates donor advised fundsConducts researchFundraising eventsCommunity engagement / volunteeringTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
3305 Steck Ave
Austin, TX 78757
Metro area
Austin-Round Rock-Georgetown, TX
County
Travis County, TX
Website URL
beyondbatten.org/ 
Phone
(512) 275-2600
IRS details
EIN
26-3223661
Fiscal year end
June
Taxreturn type
Form 990
Year formed
2008
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
Not Operating or In Process of Dissolving
Charity Registration status
Withdrawn
FTB status revoked
Not revoked
AG Registration Number
CT0259564
FTB Entity ID
None yet
AB 488 data last updated ("as-of") date
2025-03-19
Free account sign-up

Want updates when Beyond Batten Disease Foundation has new information, or want to find more organizations like Beyond Batten Disease Foundation?

Create free Cause IQ account
Cause IQ is a website that helps companies grow, maintain, and serve their nonprofit clients, and helps nonprofits find additional foundation funding. Our data and tools help professionals prospect for nonprofits, research opportunities, benchmark their clients, and enrich existing information.
Nonprofits
Product
Customers
About

© 2025 Nonprofit Metrics LLC
Terms of Service and Privacy Policy