EIN 23-7400632

Bleeding Disorders Association of South Carolina

IRS 501(c) type
501(c)(3)
Num. employees
0
Year formed
1998
Most recent tax filings
2023-12-01
Description
Bleeding Disorders Association of South Carolina advocates for persons with bleeding disorders and their families, provides education and supportive services, and promotes ongoing research to improve quality of life. The association offers a family educational camp free of charge, an annual state meeting with financial reports, recognition of board members and awards for the community.
Also known as...
Hemophilia of South Carolina South Carolina Chapter
Total revenues
$401,157
2023
Total expenses
$450,869
2023
Total assets
$386,477
2023
Num. employees
0
2023

Program areas at Bleeding Disorders Association of South Carolina

BDASC Advocacy/Legislative Days in Columbia This event was attended by approximately 65 individuals; which included our members affected by bleeding disorders, healthcare providers who assist our community members with services and treatment, local and national organization with interest in assuring access to quality care and treatment, the states Department of Health and Environmental Control, Children with Special Health Care Needs, and our Industry partners. The Chapter provides informational support to community members in regards to advocacy awareness and training, education on health care access initiatives the chapter is working on, and addresses any concerns, while educating our elected officials on living with bleeding disorders. We provided awareness support and materials to government and state agencies to help promote a greater understanding of the challenges faced by people with bleeding disorders.
Annual Adult Connections Retreats and Symposiums Along with educating the families with children and teens, we invited just our adults to come together for the weekend and spend time networking and learning directly from families and individuals who live with bleeding disorders. This opportunity hosted 75 men and women with support and education on mental health, relationships, mens health, and womens health needs, and more. Individual had a sense of belonging and support which strengthens the organizations overall mission work.
BDASC 50th Annual State Meeting and Educational Conference Day This year we provide our members our 50th annual state-wide meeting and held a gala in celebration. We reported on the years financials and accomplishments. Board of Directors were recognized, and awards were given to our community members for yearly accomplishments. In addition, the HELLO Conference, Helping Embrace Life Learning Opportunities provided presentations and educational programs to support all areas of living well with bleeding disorders so those affected can reach their highest potentials without boundaries. This was a two-day event open to all members of the bleeding disorders community in South Carolina, healthcare providers, and associations. The attendance was over 185, locally and nationally. Our Friday evening dinner opening event included BDASCs mission moments, awards, and a key note presentation. The event included eight educational presentations and breakouts available on Saturday. Childcare was provided. A special program was provided also for the teens. The event concluded after dinner on Saturday. On Saturday, exhibiting was provided for participants to interface one-to-one with participating home care and manufacturing companies and their representatives to explore new treatment therapies and services.

Who funds Bleeding Disorders Association of South Carolina

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
National Bleeding Disorders FoundationState Based Advocacy Coalition & Chapter Capacity Grants$30,000
The Hemophilia Alliance FoundationPromote Hemophilia$24,000
Hemophilia Federation of America (HFA)Carrier Guilt Rap Session and Mind Heart Body Connection,cooking Demonstration - Event 2/26/2022 - Joint Event With Alaska and Pacific Northwest,when To Freak Out and Pathways To Best Care$12,000
...and 3 more grants received

Personnel at Bleeding Disorders Association of South Carolina

NameTitleCompensation
Sue MartinDirector
Joey KarkowiakTreasurer$0
Samantha JavorkaSecretary$0
Edna RabbVice President$0
Shelley CrispPresident$0
...and 6 more key personnel

Financials for Bleeding Disorders Association of South Carolina

RevenuesFYE 12/2023
Total grants, contributions, etc.$342,223
Program services$9,900
Investment income and dividends$7,027
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$42,007
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$401,157

Form 990s for Bleeding Disorders Association of South Carolina

Fiscal year endingDate received by IRSFormPDF link
2023-122024-05-06990View PDF
2022-122023-04-13990View PDF
2021-122022-03-30990View PDF
2020-122021-05-21990View PDF
2019-122021-01-21990View PDF
...and 8 more Form 990s
Data update history
July 18, 2024
Used new vendors
Identified 1 new vendor, including
January 2, 2024
Received grants
Identified 1 new grant, including a grant for $12,000 from Hemophilia Federation of America (HFA)
December 23, 2023
Received grants
Identified 3 new grant, including a grant for $30,000 from National Bleeding Disorders Foundation
June 16, 2023
Posted financials
Added Form 990 for fiscal year 2022
June 14, 2023
Updated personnel
Identified 5 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchPartially liquidatedFundraising eventsPeer-to-peer fundraisingState / local levelProvides scholarshipsFundraising races, competitions, and tournamentsTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
25 Woods Lake Rd 300
Greenville, SC 29607
Metro area
Greenville-Anderson, SC
County
Greenville County, SC
Website URL
bda-sc.org 
Phone
(864) 350-9941
IRS details
EIN
23-7400632
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1998
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G40: Diseases of Specific Organs
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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