Program areas at Boomer Esiason Foundation
A program to foster education and research in cystic fibrosis which includes the following initiatives: advocacy advancing key cystic fibrosis initiatives with a strong educational focus shared through the organization's advocacy platform, its ambassadors and through grants to other patient organizations; an educational component supporting family building in the cystic fibrosis community, providing clear, accessible information on reproductive health options, decisions, and challenges; nutrition and culinary advice with cystic fibrosis-specific education through engaging social media content; career development with a goal to improve educational and employment access for people with cystic fibrosis through counseling from disability experts, and coaching on self-advocacy through experts and role models; and grants to medical institutions and researchers who are driving scientific breakthroughs that will help the cystic fibrosis community.
A program that encourages people with cystic fibrosis to lead active, healthy lifestyles through various athletic events, highlighting the benefits of exercise and engaging participants in physical activity. It also features ncaa athletes living with cystic fibrosis, sharing their journeys of balancing cystic fibrosis care with higher education while competing at the highest level in collegiate sports, inspiring others to pursue both fitness and academic success.
A program designed to help families manage the financial burden of cystic fibrosis which includes the following initiatives: merit-based scholarships for cystic fibrosis community members pursuing higher education; financial hardship assistance offering temporary support during critical times, such as natural disasters, organ transplants, job loss, or medical emergencies; and an in vitro fertilization initiative providing financial resources for adults with cystic fibrosis facing challenges in building their families.
Grants made by Boomer Esiason Foundation
Who funds Boomer Esiason Foundation
Grants from foundations and other nonprofits
Personnel at Boomer Esiason Foundation
Name | Title | Compensation | Date of data |
---|
Bob Plansker | President and Chief Executive Officer | | 2024-09-22 |
Etsuko Murase | Chief Financial Officer and Chief Operating Officer | $147,878 | 2024-09-22 |
Gunnar Esiason | Executive Vice President , Strategy and Advocacy | $86,712 | 2024-09-22 |
Natalie Wandelt | Vice President, Development, Events and Programs | | 2023-04-27 |
Tami Amaker | Vice President , Development , Events and Programs | $127,380 | 2024-09-22 |
...and 10 more key personnel |
Financials for Boomer Esiason Foundation
Revenues | FYE 03/2024 | FYE 03/2023 | % Change |
---|
Total grants, contributions, etc. | $5,700,944 | $7,274,823 | -21.6% |
Program services | $0 | $0 | - |
Investment income and dividends | $218,778 | $11,233 | 1847.6% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $140 | $292 | -52.1% |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $500 | $-13 | 3946.2% |
Net income from fundraising events | $0 | $0 | - |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $0 | $18,078 | -100% |
Total revenues | $5,920,362 | $7,304,413 | -18.9% |
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Aids Research Foundation AMFAR | 501(c)(3) | New York, NY | $29,082,707 |
Lupus Foundation of America | 501(c)(3) | Washington, DC | $17,248,744 |
Data update history
September 22, 2024
Updated personnel
Identified 1 new personnel
September 21, 2024
Received grants
Identified 3 new grant, including a grant for $12,000 from Columbia University January 3, 2024
Received grants
Identified 7 new grant, including a grant for $250,000 from DCU for Kids November 12, 2023
Posted financials
Added Form 990 for fiscal year 2023
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthHuman servicesDiseases and disorders
Characteristics
Conducts researchFundraising eventsOperates internationallyNational levelEndowed supportCommunity engagement / volunteeringProvides scholarshipsFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- 7475 Wisconsin Ave 1100
- Bethesda, MD 20814
- Metro area
- Washington-Arlington-Alexandria, DC-VA-MD-WV
- County
- Montgomery County, MD
- Website URL
- esiason.org/Â
- Phone
- (646) 292-7930
- Facebook page
- BoomerEsiasonFoundationÂ
- Twitter profile
- @cysticfibrosisÂ
IRS details
- EIN
- 11-3142753
- Fiscal year end
- March
- Taxreturn type
- Form 990
- Year formed
- 1993
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G80: Specifically Named Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current
- FTB status revoked
- Not revoked
- AG Registration Number
- 112181
- FTB Entity ID
- None yet
- AB 488 data last updated ("as-of") date
- 2025-02-19
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