Cardio-Facio-Cutaneous International

Family services program: includes a robust website which allows users to access the latest resources; family outreach services to encourage affected families to connect; an email listserv and private facebook group where families support one another, as well as personal phone calls to families in crisis and to offer non-medical support when needed. Trained volunteer family liaisons are offered to new families to provide support and information. New families that register on the cfc International website receive a welcome packet, including a letter, brochure and guide to cfc syndrome. Cardio-cutaneous International also offers micro-grants to familities in need. Newsletters are mailed/emailed to over 1600 families and supporters. We maintain a web presence at www.cfcsyndrome.org.