EIN 84-1825399

Care-For-Rare America

IRS 501(c) type
501(c)(3)
Num. employees
0
Year formed
2019
Most recent tax filings
2021-12-01
NTEE code, primary
Description
Care-For-Rare America raises awareness and knowledge, supports research in rare pediatric diseases, fosters education and training of research scientists clinicians and students, and supports care for children with these diseases. The international Care-for-Rare Alliance creates a network of renowned doctors scientists researchers and clinicians who collaborate to help children with rare diseases through translational and interdisciplinary collaboration. They also support increased research on inherited disorders and offer care services to affected families.
Total revenues
$366,733
2021
Total expenses
$222,037
2021
Total assets
$420,459
2021
Num. employees
0
2021

Program areas at Care-For-Rare America

The international Care-for-Rare Alliance is a network of renowned doctors scientists researchers and clinicians committed to helping children with rare diseases through translational and interdisciplinary collaboration. We support increased research on inborn errors of immunity IEI which may present with severe or recurrent infections known as primary immunodeficiency diseases PID. With robust and growing partnerships in the Middle East Northern Africa Southeast Asia and South America many Alliance partners also focus their research collaborations on rare diseases of the blood bone marrow and the immune system. One of the most successful initiatives of the Alliance is the VEOIBD Consortium.

Personnel at Care-For-Rare America

NameTitleCompensation
Mark FriedDirector Executive Affairs$35,100
Drew SchilsonDirector of Administration$32,100
Jenna BelisleDirector of Donor Relations$32,100
Pratima PersaudDirector of Strategic Planning Gift Management$35,100
Hannah EwingDirector of Global Collaborations$32,100
...and 4 more key personnel

Financials for Care-For-Rare America

RevenuesFYE 12/2021
Total grants, contributions, etc.$366,733
Program services$0
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$366,733

Form 990s for Care-For-Rare America

Fiscal year endingDate received by IRSFormPDF link
2021-122023-11-10990View PDF
2020-122023-11-10990View PDF
Data update history
January 2, 2024
Posted financials
Added Form 990 for fiscal year 2021
December 25, 2023
Used new vendors
Identified 1 new vendor, including
April 29, 2021
Posted financials
Added Form 990N for fiscal year 2019
Nonprofit Types
Grantmaking organizationsDisease research fundraisersProfessional associationsDisease-focused nonprofitsCharities
Issues
HealthMedical disciplines
Characteristics
Conducts researchTax deductible donationsNo full-time employees
General information
Address
52 Cloutmans LN
Marblehead, MA 01945
Metro area
Boston-Cambridge-Newton, MA-NH
Phone
(617) 630-6900
IRS details
EIN
84-1825399
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2019
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G90: Medical Disciplines
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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