EIN 52-1825483

Childhood Leukemia Foundation

IRS 501(c) type
501(c)(3)
Num. employees
3
City
Year formed
1992
Most recent tax filings
2023-12-01
NTEE code, primary
Description
Childhood Leukemia Foundation proudly promotes patient education, advocacy, self-esteem and most of all smiles. All programs are free of charge, and available to any pediatric cancer patient living in the continental United States.
Total revenues
$3,777,571
2023
Total expenses
$3,618,500
2023
Total assets
$1,421,163
2023
Num. employees
3
2023

Program areas at Childhood Leukemia Foundation

Keeping kids connected ipads: the keeping kids connected ipad program allows young cancer patients to remain connected to their family, friends and schoolwork while actively receiving cancer treatment. Facetime, email and texts provide emotional and psychological support to hospitalized patients. Ipads also offer age appropriate distractions to help children cope with the anxiety and boredom associated with cancer treatment and hospital confinement. Playing a game, or engaging in artistic or musical activity, can relax a child and reduce the perceived trauma. Overall, the ipad is a welcomed tool for these patients to stay connected to their lives while in the hospital.
Hope binders: hope binders improve a patient's level of health literacy. Pediatric oncology patients and their families are overwhelmed with the amount of medical and insurance information associated with a chronic illness, such as caner. Our hope binder has 12 sections to reference and record medical information regarding the child's treatment. Additionally, the binders include helpful hints and valuable resources. Over 20,000 hope binders have been distributed to diagnosed patients within a network to hospitals through the u.s.
Hospital visits, special requests and other programs: in addition to Childhood Foundation's four core programs, there are additional needs associated with a child's cancer battle. For all of the miracles that modern day medicine can perform, the healing needs of the heart, mind and spirit remain central to the fight against cancer. A positive mindset and the financial burden of a cancer diagnosis are very real issues facing young cancer patients. Childhood Leukemia Foundation strives, whenever possible, to help "fill in the gaps to lift their spirits". Hospital visits are arranged to introduce supporters to the children we serve, while providing young cancer patients with an ipad or educational wish basket during the visit. We work with hospital healthcare professionals to identify and fulfill "every day needs" in their patient populations. We provide hospital holiday parties, pizza parties, end of treatment celebrations, in hospital birthday parties, special food gift card requests and deliveries, financial assistance for gas, tolls and small car repairs (for travel to and from treatment), video game carts for hospital play rooms, special hospital "go carts" for learning, funeral expenses, gift cards for necessities after catastrophic events, ice cream truck social events, arts & crafts activities, etc. To young cancer patients during a very difficult time in their lives.
Hugs u wear: our hugs u wear program offers human hair wigs to young cancer patients who have lost their own hair due to chemotherapy treatments. The hugs u wear is a custom-made, human hair wig sewn into a light-weight cap. It comes with a detachable hat. The child can choose from several styles to help deal with the stress and embarassment of hair loss. Hugs u wear promotes a self-image and ease the transition back to normal life. Over 6,000 hugs u wear have been provided to children in need throughout the u.s. due to the impact and concerns over health issues of covid-19, this program is no longer being offered.

Who funds Childhood Leukemia Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Merck Foundation a New Jersey Nonprofit CorporationContribution Provided$37,500
Marstine Family FoundationProvide Funds To Promote the Work of the Charity$25,000
American Online Giving FoundationGeneral Support$19,842
...and 21 more grants received totalling $152,561

Personnel at Childhood Leukemia Foundation

NameTitleCompensation
Barbara EstelleChief Operating Officer$72,801
Barbara Reid-HaramisExecutive Director$184,000
Albert McEvoyTreasurer$0
David WerrellSecretary$0
Eric FrankenfieldPresident$0
...and 1 more key personnel

Financials for Childhood Leukemia Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$3,654,263
Program services$0
Investment income and dividends$13,160
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$27,292
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$82,856
Total revenues$3,777,571

Form 990s for Childhood Leukemia Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-05-15990View PDF
2022-122023-05-13990View PDF
2021-122022-05-10990View PDF
2020-122021-05-24990View PDF
2019-122020-08-19990View PDF
...and 13 more Form 990s

Organizations like Childhood Leukemia Foundation

OrganizationLocationRevenue
Ryan's Case for SmilesWayne, PA$2,502,141
Andrew McDonough B Positive FoundationWilmington, DE$9,308,671
The Keep A Breast FoundationYucca Valley, CA$1,039,644
National Childrens Cancer Society (NCCS)Belleville, IL$12,485,673
National Cancer Center (NCC)West Islip, NY$4,551,747
United Cancer Support Foundation (UCSF)Knoxville, TN$1,249,092
Arms Wide Open Childhood Cancer Foundation (AWOCCF)Marlboro, NJ$2,099,962
Pink AidWestport, CT$2,061,615
Mib AgentsBarnard, VT$1,358,556
Fundacion CapPuerto Rico, $1,862,381
Data update history
August 25, 2024
Received grants
Identified 4 new grant, including a grant for $25,000 from Marstine Family Foundation
July 10, 2024
Posted financials
Added Form 990 for fiscal year 2023
May 18, 2024
Received grants
Identified 11 new grant, including a grant for $37,500 from Merck Foundation a New Jersey Nonprofit Corporation
October 26, 2023
Received grants
Identified 1 new grant, including a grant for $10,000 from Rite Aid Healthy Futures
August 13, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disordersCancer
Characteristics
Conducts researchFundraising eventsNational levelCommunity engagement / volunteeringAuction fundraisersTax deductible donationsAccepts online donations
General information
Address
807 Mantoloking Rd
Brick, NJ 08723
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
Ocean County, NJ
Website URL
clf4kids.org/ 
Phone
(888) 253-7109
Facebook page
ChildhoodLeukemiaFoundation 
Twitter profile
@clf4kids 
IRS details
EIN
52-1825483
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1992
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G30: Cancer
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current - In Process
FTB status revoked
Not revoked
AG Registration Number
103127
FTB Entity ID
2014763
AB 488 data last updated ("as-of") date
2024-10-16
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