Program areas at Children's Cardiomyopathy Foundation
Support innovative research relevant to the cause, diagnosis and/or treatment of pediatric Cardiomyopathy through research grant awards and research collaborations with the national Cardiomyopathy registry.
Offer support services, resources and networking opportunities to help families with affected children cope with the challenges of living with pediatric Cardiomyopathy.
Heighten awareness of pediatric Cardiomyopathy among the general public, patient and medical community and develop accessible educational materials to meet their needs.
Generate widespread awareness of the disease among government, medical, and lay communities to promote increased focus and funding on research.
Grants made by Children's Cardiomyopathy Foundation
Who funds Children's Cardiomyopathy Foundation
Grants from foundations and other nonprofits
Personnel at Children's Cardiomyopathy Foundation
| Name | Title | Compensation | Date of data |
|---|
| Lucy Cannavale | Accountant and Chief Financial Officer | $0 | 2023-12-31 |
| Steve Lipshultz | Chief Medical Officer | | 2024-09-25 |
| Kathy Swenson | Executive Director | | 2024-09-25 |
| Lisa Yue | President | $49,992 | 2024-09-25 |
| Sheila Gibbons | Senior Director of Marketing | $62,424 | 2024-09-25 |
| ...and 5 more key personnel |
Financials for Children's Cardiomyopathy Foundation
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $566,893 | $433,202 | 30.9% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $51,994 | $34,542 | 50.5% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $119,076 | $108,019 | 10.2% |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $-2,420 | $69,944 | -103.5% |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $735,543 | $645,707 | 13.9% |
Organizations like Children's Cardiomyopathy Foundation
| Organization | Type | Location | Revenue |
|---|
| Conquering CHD | 501(c)(3) | Middleton, WI | $645,405 |
| Platelet Disorder Support Association | 501(c)(3) | Brecksville, OH | $2,330,983 |
| Preeclampsia Foundation | 501(c)(3) | Melbourne, FL | $2,164,264 |
| The Children's Heart Foundation | 501(c)(3) | Northbrook, IL | $3,378,951 |
| Vascular Birthmarks Foundation | 501(c)(3) | Latham, NY | $562,743 |
| The Aneurysm Foundation | 501(c)(3) | San Francisco, CA | $191,591 |
| American Stroke Foundation | 501(c)(3) | Overland Park, KS | $737,258 |
| Stroke Awareness Foundation | 501(c)(3) | Campbell, CA | $308,047 |
| Western Pennsylvania Bleeding | 501(c)(3) | Beaver, PA | $548,858 |
| Epilepsy Foundation of Greater Chicago | 501(c)(3) | Chicago, IL | $2,363,979 |
Data update history
September 25, 2024
Updated personnel
Identified 4 new personnel
August 17, 2024
Posted financials
Added Form 990 for fiscal year 2023
October 7, 2023
Updated personnel
Identified 1 new personnel
October 6, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- 24 W Railroad Ave 408
- Tenafly, NJ 07670
- Metro area
- New York-Newark-Jersey City, NY-NJ-PA
- County
- Bergen County, NJ
- Website URL
- childrenscardiomyopathy.org/pages/childrens-cardiomyopathy-foundation/Â
- Phone
- (866) 808-2873
IRS details
- EIN
- 75-2986661
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2002
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G43: Heart and Circulatory System Diseases, Disorders
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current
- FTB status revoked
- Not revoked
- AG Registration Number
- 118166
- FTB Entity ID
- None yet
- AB 488 data last updated ("as-of") date
- 2024-12-18
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