Program areas at Chordoma Foundation
(research) to accelerate the development of better treatments for Chordoma, we conducted, supported and enabled high-impact research spanning basic, translational and clinical science. This included carrying out preclinical studies in our laboratory, awarding research grants to academic investigators, operating repositories to supply the research community with key research-enabling resources, convening scientific meetings, and facilitating the design and initiation of well-justified clinical trials.
(patient services) to improve the lives of individuals affected by Chordoma, we helped patients and their families find accurate information about Chordoma and treatment options, overcome barriers to care, and get emotional support from peers. This included developing and distributing educational content, providing patient navigation services, hosting educational conferences, operating an online community forum for patients and families and providing financial assistance to individuals traveling to participate in clinical trials.
Grants made by Chordoma Foundation
Who funds Chordoma Foundation
Grants from foundations and other nonprofits
Personnel at Chordoma Foundation
| Name | Title | Compensation | Date of data |
|---|
| Sara Nick | Head of Enga | $123,299 | 2023-12-31 |
| Josh Sommer | Executive Director and President | $148,892 | 2024-08-19 |
| Kenny Brighton | Head of Philanthropy | $164,800 | 2023-12-31 |
| Gillian Parrish | Head of Engagement | | 2021-11-09 |
| Daniel Freed | Head of Target Disco | $183,188 | 2023-12-31 |
| ...and 3 more key personnel |
Financials for Chordoma Foundation
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $7,189,579 | $4,812,417 | 49.4% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $218,994 | $15,406 | 1321.5% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $11,567 | $34,192 | -66.2% |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $22,478 | $24,235 | -7.2% |
| Total revenues | $7,442,618 | $4,886,250 | 52.3% |
Organizations like Chordoma Foundation
| Organization | Type | Location | Revenue |
|---|
| Diabetes Research Institute Foundation (DRIF) | 501(c)(3) | Hollywood, FL | $7,129,662 |
| CureSearch for Children's Cancer | 501(c)(3) | Bethesda, MD | $4,389,970 |
| National Foundation for Cancer Research (NFCR) | 501(c)(3) | Rockville, MD | $9,162,442 |
| Sarcoma Foundation of America | 501(c)(3) | Damascus, MD | $3,674,023 |
| Fanconi Cancer Foundation | 501(c)(3) | Eugene, OR | $3,493,638 |
| Leukemia Research Foundation (LRF) | 501(c)(3) | Northfield, IL | $4,193,244 |
| H Lee Moffitt Cancer Center and Research Institute Foundation | 501(c)(3) | Tampa, FL | $34,168,930 |
| Lymphoma Research Foundation (LRF) | 501(c)(3) | New York, NY | $16,566,956 |
| Israel Cancer Research Fund | 501(c)(3) | New York, NY | $5,734,601 |
| American Institute for Cancer Research | 501(c)(3) | Arlington, VA | $11,885,794 |
Data update history
September 29, 2024
Posted financials
Added Form 990 for fiscal year 2023
November 6, 2023
Updated personnel
Identified 3 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchOperates internationallyNational levelTax deductible donationsAccepts online donations
General information
- Address
- PO Box 2127
- Durham, NC 27702
- Metro area
- Durham-Chapel Hill, NC
- County
- Durham County, NC
- Website URL
- chordomafoundation.org/Â
- Phone
- (919) 809-6779
IRS details
- EIN
- 20-8423943
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2007
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- H30: Cancer Research
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current - In Process
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0172706
- FTB Entity ID
- None yet
- AB 488 data last updated ("as-of") date
- 2024-10-16
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