Program areas at Christopher and Dana Reeve Foundation
The Foundation's quality of life grants program began in 1999 and expanded in 2001 with the establishment of the paralysis resource center funded by a federal grant from the centers for disease control and now the administration for community living. Since then, appropriations have continued annually, the most recent, effective july 1, 2023 for $10,000,000.the resource center provides interactive information services to the paralysis community and their caregivers. They also award quality of life grants twice a year to organizations whose projects and initiatives foster inclusion, involvement and community engagement, while promoting health and wellness for those affected by paralysis.
Public education and advocacy is a cornerstone of the Foundation. It maintains a constant presence in Washington, dc. Speaking out and educating the public and legislators on behalf of the paralysis community. Community outreach through its website enables the Foundation to educate the public on research initiatives currently underway.
The Christopher and Dana Reeve Foundation allocates its research dollars among two initatives covering the full bench-to-bedside continuum.1. The mission of the Christopher Reeve Foundation's north american clinical trials network (nactn) is to advance the quality of care and life for people with spinal cord injury (sci) through clinical trials of new therapies that provide strong evidence of safety and effectiveness. Nactn also has the objective of creating and evaluating best care practices for acute sci. Its research has been supported historically by multi-million department of defense awards.2. Epistim - the Reeve Foundation provides funding to various researchers who aim to study the effects of epidural spinal cord stimulation on people with chronic spinal cord injury including voluntary movement, cardiovascular, pulmonary and bowel and bladder control thereby improving their overall quality of life.the big idea is a study aimed at testing the effectiveness of epidural stimulation to promote significant levels of motor and autonomic control as well as the afore-mentioned secondary functions. The Foundation is currently working with its partners to facilitate the study conclusion in a way that is consistent with out commitment to the patients in the study.
Grants made by Christopher and Dana Reeve Foundation
Who funds Christopher and Dana Reeve Foundation
Grants from foundations and other nonprofits
Personnel at Christopher and Dana Reeve Foundation
Name | Title | Compensation | Date of data |
---|
Maggie Goldberg | President and Chief Executive Officer | | 2024-10-18 |
Richard Sherman | Chief Financial Officer | $90,469 | 2023-06-27 |
Regina Blye | Chief Program and Policy Officer | $134,706 | 2024-10-18 |
Denise Andersen | Chief Development Officer | | 2024-10-18 |
Marco Baptista Ph.D. | Chief Scientific Officer | $162,205 | 2024-10-18 |
...and 36 more key personnel |
Financials for Christopher and Dana Reeve Foundation
Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
---|
Total grants, contributions, etc. | $15,074,497 | $16,925,011 | -10.9% |
Program services | $0 | $0 | - |
Investment income and dividends | $8,078 | $4,366 | 85% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $1,506,371 | $-3,249 | 46464.1% |
Net income from fundraising events | $-425,936 | $-86,463 | -392.6% |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $0 | $0 | - |
Total revenues | $16,163,010 | $16,839,665 | -4% |
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American Foundation for Suicide Prevention | 501(c)(3) | New York, NY | $47,990,598 |
ALS Association (ALS) | 501(c)(3) | Arlington, VA | $55,567,608 |
Epilepsy Foundation | 501(c)(3) | Bowie, MD | $17,841,214 |
Data update history
October 18, 2024
Updated personnel
Identified 3 new personnel
July 17, 2024
Received grants
Identified 27 new grant, including a grant for $100,000 from FM Kirby Foundation November 28, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
Health
Characteristics
Political advocacyProvides grantsConducts researchLobbyingFundraising eventsOperates internationallyNational levelReceives government fundingFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- 636 Morris Turnpike Suite 3a
- Short Hills, NJ 07078
- Metro area
- New York-Newark-Jersey City, NY-NJ-PA
- County
- Essex County, NJ
- Website URL
- christopherreeve.org/Â
- Phone
- (973) 379-2690
- Facebook page
- ReeveFoundationÂ
- Twitter profile
- @reevefoundationÂ
IRS details
- EIN
- 22-2939536
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1988
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- H12: Medical Research Fund Raising and Fund Distribution
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current - Awaiting Reporting
- FTB status revoked
- Not revoked
- AG Registration Number
- 050464
- FTB Entity ID
- 2212358
- AB 488 data last updated ("as-of") date
- 2024-11-06
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